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The World Bank Technical Note on Accessibility a big resource providing strategic directions, guidance for the project cycle, thematic briefs and technical references. Thematic areas include WASH, ICT, Transportation, Urban Sector and Operations. Further, if you need accessibility standards for built environments, the technical references part of the guide looks like a good reference. (Apr, World Bank) The primary audience for this is World Bank teams. Given the range and significance of the projects they fund, this is a useful resource that is trying to leverage the Bank's role to help countries take more substantial accessibility actions within those projects.
An interactive feature on Inaccessible Cities featuring disabled people, their lives, and the urban infrastructure that gets in their way, in New York, Lagos and Mumbai. (Mar, Aljazeera)
The Against List. Reflections for designers to engage with disability, and questions to ask to avoid this dynamic:
'We have realized that advocating for “more disabled people in design” without advocating structural changes to what design is, how it operates, and what problems it seeks to solve is just advocating for a select few people to gain more power within an unjust system, while allowing the marginalization of others by that system to become more entrenched.' (Feb, Alex Haagaard)
The Zero Project 2022 Conference on Accessibility was held in Vienna and online. As well as the talks, including one by yours truly, see the 2022 report which describes the innovative practices and much more. (Feb)
The Special Rapporteur on Disability on Making International Protection Of Adults Consistent With The CRPD “A similar revolution of ideas is now permeating the field concerning the rights of older persons. Any future treaty on the rights of older persons is also likely to be grounded on dignity and autonomy. ” (Jul, Gerard Quinn)
Five priorities to tackle abuse of older people (1) combat ageism; (2) generate more and better data on prevalence and on risk and protective factors; (3) develop and scale up cost–effective solutions; (4) make an investment case for addressing the issue; and (5) raise funds to tackle the issue. (Jun, Decade of Healthy Ageing)
An easy-read version on how older people are treated very badly and what countries should do to make sure that older people get their human rights. (link to pdf, Jun, Independent Expert for UNHRC)
Madrid International Plan of Action on Ageing Country Progress reports (UNECE)
A policy brief on Better protecting the human rights in older age and the work of the UN group exploring this issue. (BAGSO)
Low Income Puts Older People’s Rights at Risk. Brief recap on ageing issues, and international discussions to start a drafting a treaty protecting older people's rights. (May, Human Rights Watch)
A meeting of the working group dedicated to strengthening the protection of the human rights of older persons. (Apr, UNDESA)
UN Advocacy Brief on Older Women: Inequality at the Intersection of Age and Gender (Mar, Decade of Healthy Ageing)
A background paper Measuring the Autonomy, Participation, and Contribution of Older People (link to pdf, March, Center for Inclusive Policy)
As part of the Age with Rights campaign a Global Rally calling for the stronger protection and promotion of older people's human rights. (Mar, Global Alliance for the Rights of Older People) See also from Human Rights Watch.
Baseline Report for the Decade of Healthy Ageing. It's striking to see how this summary avoids mentioning disability when its first page is basically an illustration of an adapted social model of disability. (Jan, WHO)
'Related – perhaps inseparable – from the physical health challenges faced by SBH adults and increased reports of mental health challenges. The lived experiences of many SBH adults involves increased isolation – in large part due to the changes in physical health described above, that can make it more difficult to enjoy a full social life. It is not surprising then that many people report an increase in anxiety and depression. This can result in a negative cycle, as people are less likely to make the effort to see others, which further increases the sense of isolation. ' (Dec, IF Global)
Marketing Matters on how AT startups need to invest in marketing (Jul, AT2030)
The Global Report on Assistive Technology: a new era in assistive technology (Jun, Assistive Technology)
Making the direct to consumer model work for Assistive Technology warns about “unintended charitable consequences”:
“AT distribution that depends on charitable and philanthropic funding are highly vulnerable to financial cuts and changes in priorities. What’s more, AT distribution cannot be a one-off event like a vaccination camp. Distributed AT must be maintained, adapted and changed as the needs of the user change. Few charitable models are able to accommodate such a model- over time, people can be left with AT that is no longer fit for purpose, and disillusioned as to its value.” (Jul, AT2030)
A scoping review of Technologies Measuring Manual Wheelchair Propulsion Metrics (May, Assistive Technology)
Interesting discussion on Center for Inclusive Policy on Why is access to assistive technology not a global priority? (May, CIP)
What do you call technology that's meant to be assistive but isn't? This essay explores the term Disability Dongle coined by Liz Jackson to refer to well intended but useless “solutions“. The essay explores experience of what happens when the authors call out these technologies and how their idea has spread. (Apr, Platypus)
Evidence brief on promoting access to assistive technology for individuals with disabilities in Low- and Middle-Income Settings. "Limited access to assistive technology is exacerbated by the lack of awareness about assistive technology and what the technology can offer to people with disabilities". (Dec, Disability Evidence Portal)
A systematic review of global population-based research Estimating need and coverage for five priority assistive products. “The finding of high unmet need (>60%) for each of the five APs emphasises the need to secure political prioritisation and funding to expand access to AT globally.” (Jan, BMJ Global Health)
TIDAL N+ "Transformative Innovation in the delivery of Assisted Living Products and Services" - "building a transdisciplinary network" (Jan, GDI)
Introduction to the companion papers to the global report on assistive technology (Dec, Assistive Technology Journal)
UNICEF to introduce 24 new assistive products into the global Supply Catalogue. "Through global tenders, UNICEF and WHO have been able to negotiate low-cost prices which will ensure these highly technical and specialized pieces of equipment can be quickly and easily ordered by field teams, partners, and governments." (Dec, UNICEF)
Measuring assistive technology supply and demand a scoping review (Dec, Assistive Technology Journal)
DisCrit Expanded a collection of essays where “a diverse group of authors engage in inward, outward, and margin-to-margin analyses that raise deep and enduring questions about how we as scholars and teachers account for and counteract the collusive nature of oppressions faced by minoritized individuals with disabilities, particularly in educational contexts. ” (Feb, TC Press)
International Perspectives: Disabilities, Social Connectedness, and COVID-19 the experiences of three Special Olympics International (SOI) connected families and how they navigated the pandemic. (Jul, Samuel Centre for Social Connectedness)
Millions of older people have died without being counted. WHO estimates 83% of excess mortality was among older people. (May, HelpAge)
Five ways older women are affected by the pandemic. “With only 35% of older women confirming daily mobility out of their house by themselves, 2 in 3 older women faced restricted mobility.” (Mar, UN Women)
After 2 Years of Covid, We’re Still Failing Older People. Part of a series marking the two year anniversary of the Covid-19 pandemic:
"Two years after the start of the Covid-19 pandemic, governments around the world are still failing to protect the rights of older people. From ageist comments by public figures to persistent staffing shortages and use of chemical restraints in care homes, the protection of older people’s rights has been put under the spotlight like never before -- and comes up lacking." (Mar, Human Rights Watch)
Key Concepts: Human Rights and the Economy a series on human rights on the economic recovery from the COVID crisis. (Not about disability - but maybe useful context, Feb, CESR)
The Global Platform Reader on COVID-19 and older people in low and middle-income countries (link to pdf, Jan, Corona Older)
An evidence brief on How can health and social care services promote the safety and well-being of people with intellectual disabilities during the COVID-19 pandemic in LMICs? (Nov, Disability Evidence)
Long covid could change the way we think about disability (Jun, Washington Post)
Many Long COVID Patients Identify as Disabled and Feelings Are Complicated (May, Verywell Mind)
Pandemics disable people — the history lesson that policymakers ignore Why the complacency over possible long-term effects of COVID-19? (Feb, Nature)
The 2022 D-30 Disability Impact List “honors the unique accomplishments of our most impactful community members globally” (Jul, Diversability)
The United Nations and others celebrated World Down Syndrome Day (Mar, UN)
Disability Debrief feature: Disability in the Heat Why authorities need to prioritise people at highest risk as temperatures rise
(Jul, Disability Debrief)
Heatwaves worsen mental health conditions (Jul, the Conversation)
Report on Disability Inclusion in National Climate Commitments and Policies The 2015 Paris Agreement calls on countries to outline the measures they will take to reduce emissions and adapt to climate change. Fewer than one in four countries make references to persons with disabilities in these plans, and where they do, it is often cursory. (Jun, IDA and McGill) See also coverage on the Guardian.
A briefing note for the Bonn Climate Conference 2022 on integrating human rights to climate action. (Jun, Human Rights and Climate Change Working Group)
A discussion exploring Climate Change, Environmental Activism, and Disability (SSIR)
Resource Page on Connections Between Climate Change and Disability (Disability & Philanthropy Forum)
See previously on the Debrief, Responses to climate change leaving disabled people behind on the IPCC report and recent floods in Australia. (Apr, Disability Debrief)
What I wish non-disabled people understood about disability and plastic. An illustrated coming showing “disabled people often suffer most from plastic pollution, but many also rely on plastic products for health, independence and dignity.” (Mar, Greenpeace)
Climate and sport: Paralympic champion Tatyana McFadden explains the link. (Apr, UN)
A policy paper on Locating disability inclusion in action on climate change with advice targeted to the UK government to make their climate action disability-inclusive. (Mar, CBM UK)
A feature exploring the link between disability and sustainability particularly from the view of the private sector. (Mar, Valuable 500)
On the IPCC report: Scant mention of disabled community, despite higher risk of climate change impact. (Mar, Stuff)
The missing conversation about disabled leadership in climate justice. "Disabled people are expert adapters – we spend our lives figuring out how to live and thrive in a world which was not designed for us." (Mar, Stuff)
The IPCC Sixth Assessment Report Climate Change 2022: Impacts, Adaptation and Vulnerability. "Across sectors and regions the most vulnerable people and systems are observed to be disproportionately affected. " Recommends that inclusive governance address vulnerabilities and inequalities related to disability. (March, IPCC)
The Sangyan's posts on climate change include reflections on Climate Change, Disability, and the Capability Approach and the displacement of people with disabilities as climate refugees. (Mar, Sangyan)
Disability and Climate Justice an overview of the current situation and recommendations to take forward (link to pdf, Dec, Open Society Foundations)
Cop26: Take stock, regroup and keep disability inclusion on the table for climate action "let's do better together". (Jan, Bond)
Policy Brief on the decade of healthy ageing in a climate-changing world (Jan, Decade of Healthy Ageing)
Environmental Justice and Disability with Pauline Castres - YouTube a nice conversation covering key issues and reflecting on COP. (Dec, Judy Heumann)
What is Climate resilient inclusive design and why do we need it? Global Disability Innovation Hub at COP26 (Nov, GDI)
Evidence for superior encoding of detailed visual memories in deaf signers. “Our findings add to evidence showing that deaf signers are at an advantage [... in the] retention of detailed visual memories over the longer term.” (May, Scientific Reports)
World Federation of the Deaf celebration of international mother language day: "by specifically recognizing the right of deaf people to have access in all areas of their lives to their Mother Language, sign language." (Feb)
The Global Digital Library has books available in three sign-languages, namely Cambodian, Kenyan and Rwandan.
The UN international World Braille Day (4 Jan, UN)
Peace, Disability, and the Violence of the Built Environment Reflections on how disability relates to studies of peace. (May, Peace Review)
Lifting the cloak of invisibility: civilians with disabilities in armed conflict. Discussion of how humanitarian law would relate to disability issues and bringing together conversations between people with disabilities and military representatives. “Steps must be taken to ensure that people living with disabilities and their representative organizations can and do shape the interpretation and implementation of International Humanitarian Law norms relevant to them.” (Apr, ICRC)
Cripple Punk: The Disabled Young People Smashing Ableism: “Spiked wheelchairs, studs and cigarettes – cpunk is about rejecting society's ‘inspiration porn’ narrative of physical disability.”:
“We need to see more disabled people behaving badly. And no, I don’t mean blind people littering or wheelchair users shoplifting. I mean we need to see more disabled people behaving like everyone else. We need to see more disabled people smoking, drinking and sticking up a middle finger. More disabled people who are angry, bitter and abjectly un-inspirational – because frankly, there are a lot of us. So where have we all been hiding?” (Jul)
Changing the narrative on disability: is representation in books getting better? Article sees increasing representation in children's literature but not “the same commitment to representation in the adult literature sector, where they say disability is still seen as a niche topic.” (May, the Guardian)
‘Deaf Utopia’ review – Nyle DiMarco’s memoir is enlightening, depending on how (and if) you read it (Apr, Limping Chicken)
Adaptive fashion: the $400bn opportunity to embrace Disability inclusion (Feb, MBS Group)
Geelong, an Australian ensemble of disabled actors, wins one of the world’s richest theatre prizes (Mar, the Guardian)
“I think my lover’s cane is sexy. The way they walk
like a rainstorm stumbles slow across the landscape.” (Poets.org)
23 New And Upcoming Novels With Disabled Main Characters (Mar, Buzzfeed)
Latest issue of Ability Magazine features the actor Greg Grunberg and articles from around the world. (Feb)
Review of Disability Studies special issue on disability, film and media. A wide ranging set of articles from self-presentation on instagram, radio in Kenya and disability metaphors in Korean news. (Feb)
A Different Narrative: Text within Disability Art. "Help the Normals". (Feb, Disability Arts)
Netflix is beefing up its its audio description and subtitling accessibility features and has a collection of its shows celebrating disability. (May, The Verge)
What Season 6 of 'This Is Us' Gets Right About Disability Representation (Apr, The Mighty)
A detailed look at Inevitable Foundation's Cost of Accommodations Report “features line budget research outlining the actual (not presumed) financial impact accommodations can have on TV and film budgets of various sizes as well as a survey of disabled talent on their experiences requesting accommodations”. For example, “30% of disabled talent have had to pay out-of-pocket for their accommodations.” (Apr, Hollywood Reporter)
See analysis and critique of the report from Crip News:
‘“Accommodation” as a framework assumes that we ought not to threaten a status quo. It assumes the benefits of inclusion, where disabled people have access to a process but don’t shape or lead its values. The report is a great example of what we might call inclusionism, accommodationism, incrementalism, or reformism.’
CODA won an Oscar: a flawed triumph for the Deaf community. “The movie and the awards ceremony show the power—and limits—of on-screen representation.” (Mar, Slate) See also the tension at the heart of CODA on the Atlantic.
Team Zenko Go An All-New Disability Inclusive Series From DreamWorks Animation And Mainframe Studios. “Team Zenko Go has managed to avoid all too familiar disability tropes such as, for instance, villains, victims or inspirations.” (Mar, Forbes)
Why is it Important to Identify the Population with Disabilities? an explainer video. (Jun, Washington Group on Disability Statistics)
Exploring the Use of Washington Group Questions to Identify People with Clinical Impairments Who Need Services including Assistive Products: Results from Five Population-Based Surveys (Apr, Environmental Research and Public Health)
Why do we need data on women and girls with disabilities? “One way to address this data gap has been the collection and use of qualitative data, including citizen-generated data from organizations of persons with disabilities and NGO allies to complement official statistics to measure gaps and progress. This use of qualitative data is especially important in emergency situations, such as during the COVID-19 pandemic” (Jul, CBM Global)
Explainer video on how the Washington Group question approach to measuring disability relate to the Social Model? (Jun, Center for Inclusive Policy)
Should you use the Washington Group questions in your humanitarian programming? A tool to help you decide. (Jun, Washington Group on Disability Statistics)
World Bank and Microsoft commit to narrow the data gap. With a “disability data hub” they plan to “expand both access to and the use of demographics and statistics data to ensure representation of disability, particularly in low- and middle-income countries.” (Jun, Microsoft)
Short video to understand the prevalence of disability (May, Center for Inclusive Policy)
Short video on Why is it important to identify the population with disabilities? (Apr, Center for Inclusive Policy)
Summary of an article on conducting online interviews with disabled young people during the COVID-19 pandemic. (Mar, International Journal of Social Research Methodology)
Report on how organizations within the UN are using Disability Statistics (link to pdf, Mar, UN)
How will data help us break the cycle of discrimination and intersectional disadvantages for girls and women with disabilities? (Mar, Inclusive Education Initiative)
A video introducing the Center of Excellence on Data for Children with Disabilities (Mar, UNICEF)
The World Bank Open Learning Campus elearning module on Collecting Data on Disability Inclusion. (World Bank)
Why Disability Data Matters Review of Leonard Cheshire’s latest disability data and the Disability Data Portal. "Where disability data does exist, it
can often remain unused. " (link to pdf, Feb, Leonard Cheshire)
All children count: Fostering inclusion through data. (Feb, Data 4 SDGs)
Addressing the dearth of disability-inclusive data in COVID-19 (Jan, Data Values Digest)
Workshop on Innovative methods for researching disability & COVID19 in the Global South for academics and practitioners, on 3rd March. (Disability Under Siege)
FIRAH applied disability research General call for projects - 2022 Project leaders can be from any country in the world but if they're not French then it has to be in partnership with a French organization. (Jan, FIRAH)
Data-driven advocacy for inclusive employment and social protection The experiences of organizations of persons with disabilities in Bangladesh and Kenya (Dec, Leonard Cheshire)
Disability Data Advocacy Toolkit updated version (link to pdf, Dec, CBM Global)
A new report, A Digital Cage is Still a Cage “At their most extreme, the use of new and emerging technologies could replicate the worst features of institutional care rather than facilitate independent living and inclusion within the community.” (Jun, University of Essex)
How to make the most of the Mac’s accessibility features (Jul, The Verge)
Celebrate Disability Pride, Uplift Gaming and Disability Communities and Creators with Team Xbox (Jul, Xbox)
By the Blind, For the Blind reflecting in particular on open source software where tools can be full integrated with the operating system. (Jun, Devin Prater)
The Performative A11yship of Global Accessibility Awareness Day (May, Adrian Roselli)
May 19th was Global Accessibility Awareness Day focusing on digital accessibility. (May, GAAD)
The Mobile Disability Gap Report 2021. A report on 7 low- and middle-income countries finds that persons with disabilities are significantly less likely to own a smartphone or use mobile internet. “The disability gap typically widens at each stage of the mobile internet journey” (Dec, GSMA)
Let's Discuss: Mobile World Congress and the mobile disability gap reflections on mobile and digital inclusion (Feb, Valuable 500)
Humanity should get the best from AI, not the worst Statement from Gerard Quinn, whose report we explored previously. (May, OHCHR)
Bot can spot depressed Twitter users in 9 out of 10 cases (Apr, Tech Xplore)
A new alliance for Disability Ethical? AI led by Scott Parker International, IBM, Oxford Brookes and others. "AI powered recruitment technology threatens the life chances of hundreds of millions of people with disabilities worldwide, as well as those of us who will become disabled in time." (March, Includes a collection of resources)
Special Rapporteur on the rights of persons with disabilities study on artificial intelligence and the rights of persons with disabilities. (link to pdf, Feb, UN) See also at EDF.
Policy Brief on Ageism in artificial intelligence for health (Feb, WHO)
What's Happening with Digital Accessibility in 2022 (Jul, UsableNet)
Web3 must learn from the past: People with disabilities are the largest untapped demographic (Jul, Venture Beat)
Exploration of alt-text including detailed advice (Jun, Accessible Social)
Digital Accessibility: The Next Frontier of Disability Rights Includes a discussion on justifying digital accessibility because of legal compliance or as an opportunity for growth, preferring the latter, quoting this reasoning: “[Focusing on lawsuits] capitalizes on this fear that disabled people are out there to sue you and make your life difficult …. It furthers this really horrible view of disabled people that we’re literally out there to get money and that we just use our disabilities for that.” (Jun, Women Enabled International)
Why Are iFrame Titles Important for Accessibility? (May, Bureau of Internet Accessibility)
An accessibility review of public and private sector websites shows private sector websites significantly worse. Even big companies that have made commitments on disability inclusion through membership of Valuable 500 still only offer a median accessibility score of 52.6, a fraction lower than the median score of Fortune 500 websites. (May, Silktide)
Microsoft Edge site ALT text adds more “making the web a more inclusive and accessible place, starting with the blind and low vision community.” (Microsoft)
5 Ways Delivery Apps Don't Deliver On Accessibility (May, UsableNet)
Rich Screen Reader Experiences for Accessible Data Visualization
“Although our design dimensions highlight a diverse landscape of screen reader experiences for data visualizations, our study participants attested to the value of following existing best practices. Namely, alt text and data tables provide a good baseline for making visualizations accessible. Thus, visualization authors should consider adopting our design dimensions to enable more granular information access patterns only after these initial pieces are in place.” (MIT Visualization Group)
WordPress 6.0 Features Numerous Accessibility Improvements (Apr)
Does Your Website Have Have Any of These 10 Most-Cited Accessibility Issues? (Apr, Equal Entry)
Takeaways from The Internet is Unusable: The Disabled View (Apr, Lireo Designs)
New Department of Justice ADA Web Accessibility Statement reiterating that accessibility online is covered by disability discrimination. (Mar, BOIA)
Zoom Continues to Miss the Boat on True Accessibility. (Mar, Living with Hearing Loss)
The Hidden Image Descriptions Making the Internet Accessible a feature on alternative text for images (Feb, NYT)
The case for describing race in alternative text attributes (Jan, Tolu Adegbite)
How creating an accessible product helped Stark build an inclusive team "You can’t build an accessible product without breaking down internal silos first" (Feb, The Drum)
Disabled And Here "a disability-led effort to provide free and inclusive images from our own perspective" (Affect the Verb)
6 Tips to make your Tweets more accessible and inclusive (Twitter)
A chrome plug-in Wordle for Screen Readers. Great game, and good to see some accessibility retrofitted: see also a site that gives you descriptive text to allow sharing the results in an accessible way. Another disappointing example of how things can go viral without accessibility being baked in.
Email Accessibility 4 Best Practices for Marketers (Jan, BOIA)
Android gets enhanced accessibility features (Jun, Chrome Unboxed)
Apple previews innovative accessibility features (May, Apple)
Accessibility Virtual Reality Meetup: What Is It Like in Spatial? See also an interview on how a blind person can use virtual reality. (May, Equal Entry)
Virtual Reality Is Here to Stay. It's Time to Make It Accessible. VR "needs to be more open-minded when it comes to what its ideal gamer looks like.":
"VR’s reliance on physical movements can be a deterrent for many players with motor disabilities. Beyond that, the headsets and screen resolution can lead to numerous barriers for low-vision users, so much so that games without appropriate features or accessible design are completely unplayable. And as accessibility evolves, the presence of VR is indicative of an industry that still has much to learn." (Mar, Wired)
Virtual Reality Accessibility: The Importance of Comfort Ratings and Reducing Motion (Feb, Equal Entry)
How we're improving the Discord experience for everyone (Jul, Discord)
LinkedIn Top Voices in Disability Advocacy: The 12 creators to follow (Jul, Linkedin)
Twitter reports that only .06% of images on Twitter are accessible. This too often includes tweets from organizations working on disability. (May, Twitter)
12 Disabled LGBTQIA+ Activists and Advocates Who You Need to Know (Jun, World Institute on Disability)
Older people using TikTok to defy ageist stereotypes, research finds (May, the Guardian)
A new TikTok feature changed the game for deaf users. Now, 'DeafTok' is a thriving, inclusive community. (Apr, Business Insider)
Twitter begins rollout of alt text badges for greater accessibility (Mar, Engadget)
How Captions In TikTok Videos And Dictionary.com Are Remaking Internet Culture And How We Literally Talk About Disability In Tech (Mar, Forbes)
Accessibility on Twitch: the complications of streaming (Feb, Euro Gamer)
Twitch streamers campaign for Disability Pride Month (Jan, Euro Gamer)
Short video on The Importance of Disability Inclusive Disaster Preparedness (Mar, CBM Australia)
Disability Inclusive Disaster Risk Reduction (DIDRR) Critical Insights and Good Practices from the Field (link to pdf, CBM)
Including Persons with Disabilities in Disaster Risk Reduction: A Research Study from Eight Countries around the world:
“The study revealed that most disability-inclusive disaster risk reduction initiatives come from non-governmental stakeholders, rather than government agendas aimed at prioritizing and institutionalizing disability inclusion. These initiatives are often reactive (following disaster responses by governments and I/NGOs) or project-based (externally funded instead of being included in the annual budget planning), which raises concerns about the sustainability of these actions and the DiDRR itself.” (May, Relief Web)
UNDRR page on disability inclusion in disaster risk reduction including description of how disability is included in its Strategic Framework 2022-2025. (Jan)
A brief on Inclusion of Marginalised Groups in Social Assistance in Crises (Feb, IDS)
Working paper on the The Risks and Outcomes of Getting Help for Marginalised People: Navigating Access to Social Assistance in Crises. Includes a section on persons with disabilities. (Feb, IDS)
High Risk in Conflicts for Children with Disabilities “Armed conflict takes a devastating toll on children with disabilities, yet governments and the UN have not done nearly enough to protect them." (Feb, Human Rights Watch)
UNDRR webinar Disability inclusive disaster risk reduction – still a tick marking exercise? (14 Feb)
Bridging the divide understanding collaborative action in disability-inclusive disaster risk reduction through socio-cultural activity theory: exploring the collaboration between people with and without disabilities. (Jan, Emerald)
A Mastercard brief on Bridging the Disability Gap with inclusive financial services, focussing on accessibility of financial services. (May, Mastercard)
Fintech can help improve lives of people with disabilities (May, China Daily)
Key sheet on Women's Economic Empowerment and Disability Inclusion in Financial Services. (link to pdf, WOW Helpdesk)
Pension or disability assistance: an unfair choice? “an older person with disabilities has to choose to receive either a disability benefit or an old-age pension. ” (Jun, Development Pathways)
ILO and UNICEF report on the role of social protection in the elimination of child labour. “Studies from Bangladesh, Nepal and Gansu Province, China, have found that children in households where adults are sick or disabled or have missed work are more likely to be in child labour within or outside the household.” (May, ILO)
A message to the IMF and World Bank: Targeted Safety Net Programs Fall Short on Rights Protection. (Apr, Human Rights Watch)
Coalition of international organizations holding a conference on Disability and Social Protection (Mar, Social Protection)
'Approaches by governments with schemes labelled for “poor people with severe disabilities who can’t work or care for themselves” have been widely internalised by disability rights activists, who often perceived social protection as demeaning expression charity rather than as rights-based support. In countries with very minimal social protection systems, leaders of many organisations of persons with disabilities (OPDs) would rather focus on employment and livelihood programs with the argument “jobs not charity”, not always taking into account challenges faced by those with high support needs, children with disabilities and their families, or older persons with disabilities. As a consequence, in many low- and middle-income countries, the disability movement and their allies did not engage significantly in framing the emergence of social protection systems. ' (links to pdfs, Feb, SD Direct)
Social protection and access to assistive technology in low- and middle-income countries by friend of the newsletter Alex Cote. (Dec, Assistive Technology Journal)
The Role of Parenting Interventions in Optimizing School Readiness for Children With Disabilities in Low and Middle Income Settings. “The global agenda urgently needs to move beyond token recognition of this marginalized group to inclusive early child intervention programs that consider existing practices, cultural beliefs, and developmental goals in the targeted communities. Children with disabilities in LMICs should receive culturally sensitive parenting interventions to improve learning and educational outcomes.” (Jun, Frontiers in Pediatrics)
Education Cannot Wait Policy and Accountability Framework on Disability Inclusion: Realizing the right to inclusive and equitable quality education of children and adolescents with disabilities in emergencies and protracted crises (May)
A call to action from a coalition of disability organizations on Transforming Education Summit calling for “resilient and inclusive education systems, equitable financing, and the removal of institutional and social barriers to inclusion so every child can benefit from quality education.” (GLAD)
Testing a wide range of technologies to address the reading needs of marginalized children “35% of the awards supporting solutions for children with disabilities.” (May, World Education Blog)
Deaf education in the developing world: what needs to change post-pandemic? (Jun, Global Partnership on Education)
World Vision's child protection work A visual journey of disability inclusion (April, World Vision)
Dismantling barriers and advancing disability-inclusive education: an examination of national laws and policies across 193 countries:
“While strong guarantees exist across diverse countries, we find that notable gaps remain. Forty-six percent of countries do not broadly prohibit disability-based discrimination through the completion of secondary education. Legislation in 35% of countries does not guarantee persons with disabilities access to integrated education in mainstream education environments along with necessary individualized accommodations through the completion of secondary school. Thirty-one percent of countries that make primary education compulsory do not pair compulsory education with guarantees to integration in mainstream education environments and individualized supports for students with disabilities.” (Apr, International Journal of Inclusive Education)
The Committee on the Rights of the Child (CRC) and the Committee on the Rights of Persons with Disabilities (CRPD) adopted a Joint Statement on the Rights of Children with Disabilities (link to docx, OHCHR)
A short guide on Achieving Quality Education for All (Mar, Centre for Inclusive Futures.)
A research protocol for study of Effectiveness of Inclusive Interventions for Children with Disabilities in Low- and Middle-income Countries. (link to pdf, Mar, UNICEF)
Evidence brief on overcoming issues of access to digital learning for primary school learners with disabilities in LMICs during Covid-19.
“Primary school learners with disabilities continue to face barriers or continue to be left behind in online/digital learning solutions as a result of the enduring implications of the ongoing COVID-19 restrictions on education. However, access can be improved if, learners with disabilities, parents and their teachers are consulted in the design and implementation of digital learning solutions.” (Jan, Disability Evidence Portal)
Evidence brief on utilising community resources to detect and support children with disabilities? - (Mar, Disability Evidence Portal)
Researching Disability-Inclusive Education: Perspectives from Researchers in sub-Saharan Africa and South Asia.
"Northern scholarship has long dominated the policy discourse on disability-inclusive education. The continued absence of Southern scholarship and overreliance of evidence and perspectives from the North is impeding contextual understanding and action on disability-inclusive education. While the lack of robust evidence is a concern, in parallel, there is an increasing acknowledgment that researchers based in sub-Saharan Africa and South Asia have limited opportunities to undertake, engage and publish their own research. This impedes their ability to contribute meaningfully to the disability-inclusive education agenda, both at a national and international level." (Feb, IEI)
When All Truly Means Everyone: Fulfilling the Right to Education of Children with Disabilities in Our Global Education Crisis Response. ECW is "committed to reaching 10% of children with disabilities across our investment portfolio. " (Feb, Education Cannot Wait)
An in-depth Inclusive Education Resources and Toolkit "reference for all staff working in education programming to mainstream inclusion in their work" (Jan, Save the Children)
Students with disabilities hardest hit by school closures (Feb, University of Gothenburg)
Further events on the CaNDER Seminar Series engaging seminars bringing researchers and practitioners together. (Feb)
A "landscape review" of ICT for Disability-Inclusive Education (link to pdf, Jan, World Bank)
In Inclusive education, The case for early identification and early intervention in assistive technology: assistive technology enables learning and so children who need it must be identified as soon as possible. (Dec, Assistive Technology Journal)
Best of UNICEF Research 2021: highlights research on support provided to children with disabilities in Montenegro and how children with developmental disabilities in Palestine experience stigma and discrimination. (Jan, UNICEF)
A new book Global Directions in Inclusive Education Conceptualizations, Practices, and Methodologies for the 21st Century. Edited By Matthew J. Schuelka, Suzanne Carrington (Dec, Routledge)
A review of the anthology Improving Accessible Digital Practices in Higher Education (Apr, Disability Studies Community)
The state of disability engagement survey data showing “employees with disabilities are having a far less favorable experience at work than their non-disabled counterparts. These significant differences are far greater than we have found for other diversity groups such as gender, race and sexual orientation.” (Mercer)
An Inclusive Workplaces Toolkit which gives guidance for employers how to make their workplaces inclusive of people with intellectual disabilities. “Creating a workplace that is more inclusive of people with intellectual disabilities primarily requires small tweaks and behaviour changes within a workplace that
make it easier for everyone to understand and be included in work.” (Jun, Inclusion International)
A review of effectiveness of interventions for improving livelihood outcomes for people with disabilities in low- and middle-income countries. The review finds studies reporting “positive impacts on livelihood impacts” but given the limited evidence it is hard to conclude about what works. This study calls for more studies. (Jun, Campbell Systematic Reviews)
“This programme is nation-building” reflections at the ending of a disability-inclusive employment programme in Nigeria, Kenya, Bangladesh and Uganda. (Jun, Inclusive Futures)
Equalising access to the labor market for persons with disabilities based on a project in Bangladesh, Kenya, Uganda and Nigeria. The report makes important points on how initiatives to support employment can have negative effects:
“Too often, employment of persons with disabilities has been approached
through a narrow lens of placing people into jobs, without securing
preconditions for inclusive employment such as inclusive workplace culture, provision of reasonable accommodation, and accessible transportation to work.
Worse, persons with disabilities have often been supported to access only a limited range of jobs based on prevailing stereotypes, usually low-wage and perceived low-skill roles, thereby perpetuating stigma and prejudice about what persons with disabilities can or cannot do. This is particularly the case for most marginalized groups, such as persons with intellectual disabilities.”
It also questions the emphasis on the ”business case” when advocating with employers, and argues for a “critical consciousness on disability amongst employers”:
“The business case approach to promote inclusive employment must
be rooted in human rights and social justice to ensure that a for-profit
argument does not lead to further exclusion of those with high risks
of marginalization. Employers need to recognize past and present
marginalization and discrimination of persons with disabilities and
take active responsibility to transform the labor market to become
open, accessible and inclusive for persons with disabilities.” (Jun, IDA)
New ILO database highlights labour market challenges of persons with disabilities. From 60 countries with available data:
“The labour force participation rate of people with disabilities is very low. Globally, seven in ten persons with disabilities are inactive (that is, neither in employment nor unemployed), compared with four in ten persons without disabilities. While the inactivity rate is higher for both women and men with disabilities than for those without, it is particularly high among women with disabilities. This suggests that they face a double disadvantage in the labour market on account of both their sex and their disability status.” (Jun, ILO)
How can public and civil services support people with disabilities into senior roles? (May, Global Government Forum)
This year's Harkin Summit was held in Belfast (Jun, BBC)
What is the future of work for people with disabilities? (May, World Economic Forum)
The Valuable 500 taking action: Inclusive moments from companies in the Valuable 500 network (May, Valuable 500)
LinkedIn Adds ‘Dyslexic Thinking’ To Skills List In Effort To Destigmatize. Dyslexic thinking being seen as ‘strengths in creative, problem-solving and communication skills’. (Mar, The Drum)
Is It The Yuk Factor? Disabilty Advocacy Is Growing Up. Interview with Susan Scott Parker. (Mar, Forbes)
The Valuable 500 Launch World’s First Global Directory of Disability Inclusion Specialists (Mar, Valuable 500)
An ILO report Transforming enterprises through diversity and inclusion. “Overcoming inclusion as a privilege of seniority is key to fully realizing the business benefits it offers” (Apr, ILO)
ILO Global Business and Disability Network Annual Report 2021 (ILO)
What is the current evidence on promoting employment for people with intellectual and developmental disabilities? Recommends supported employment; little evidence from low- and middle-income countries. (Jan, Disability Evidence Portal)
A spotlight on Inclusion Breakthroughs in 2021 (Feb, Valuable 500)
The upcoming G20, hosted by Indonesia will promote employment for persons with disabilities. (Jan, Antara News)
From the ITCILO with Cornell University, a course on Disability in the Workplace a 90 minutes training. (Jan, ILO)
A short brief from UN Women “addressing the intersection” of Gender, age, and disability. The brief focusses on older women with disabilities, which is very important to do – but I can't help but be disappointed by this brief not reflecting more deeply on how interventions on gender, age, and disability intersect. (Jun, UN Women)
A Compass to Steer Our Work in Gender Transformation and Inclusion - on steps to put gender equity into practice. (May, DRF)
Policy discussion on barriers for disability organizations, and especially women with disabilities, to be involved in discussions on gender equality. (Apr, Center for Inclusive Policy)
Mama Cash report If you stay quiet, you stay invisible featuring eight profiles of feminist disability rights activism.
"The activist groups featured in this collection are doing ground-breaking work – often with relatively limited resources. Many of them depended on volunteer labour and worked from their homes before they received their first funding. Sufficient and good quality financial and other resources are crucial for sustained activism. This is a key recommendation that most of the activists in this collection made, and one that we feel strongly about emphasising and amplifying. Funders need to provide consistent, long-term, core support so that feminist disability rights groups can strengthen themselves and sustain their work." (Feb)
Empowering women and changing minds on CBM Germany efforts to support women with disabilities. (Jan, D+C)
What does it take to create a space for women and girls with disabilities? content of a webinar. (Mar, IDA)
From Light for the World International: Women activists with disabilities say: "#BreakTheBias!" (Mar, LFTW)
CBM Australia stories from women with disabilities. (Mar, CBM)
Sightsavers joining the campaign to #BreakTheBias. (Mar, Sightsavers)
Series of videos featuring youth with disabilities. (Mar, IDA)
Will the 2022 Global Disability Summit result in a more equal world? As well highlighting the achievements of the summit, a concern raised that "overall, there aren’t enough commitments with concrete financing attached. " (Mar, Sightsavers)
Upcoming disability summit must be a turning point, position from President of Ghana, PM of Norway, chief of WHO, and president of the International Disability Alliance. (Feb, BMJ)
The next summit will be hosted by Jordan and Germany scheduled for Berlin, 2025.
An Accessible Future for Persons with Disabilities a beautiful multimedia feature on the World Bank's work on disability around the world, and their commitments for the summit. (Feb, World Bank)
Guterres opens Global Disability Summit with inclusivity call. Strange to see 'handicap' used in this article. (Feb, UN)
Discussion Paper on engagement of organizations of persons with disabilities: "OPDs are more consulted than before,
levels of participation remain insufficient. " The paper explores the gaps as well as good practices, particularly around investment in supporting representative organizations.
"While progress [on disability inclusion] is significant, it takes a lot more effort to turn these promises into action, and initiatives often fail to engage and consult with persons with disabilities themselves. Reasons vary but usually relate to gaps in understanding disability from a rights-based perspective or prejudice regarding OPDs’ capacity to contribute, limited knowledge of and contacts with OPDs, gaps in ensuring inclusive and accessible venues, information and methods to support active engagement of OPDs. This significantly reduces the relevance and impact of disability-inclusive investments and perpetuates paternalistic approaches whereby persons with disabilities are only recipients of aid. The Covid-19 global pandemic brutally recalled and exposed pervasive discriminations, with dramatic consequences as lives of persons with disabilities are not considered of equal importance. " (Feb, IDA)
Global Disability Summit 2022: another talkshop? Raises concerns, referring to concrete examples, about initiatives for disability inclusion "without the direct involvement of disabled people". Organizations working on disability rights "are yet to recognize the power of lived-experience and professional representation within their leadership ranks and thus continue making decisions around disability rights issues without the participation of disabled people". (Feb, Fred Ouko)
Sightsavers’ campaign petition for the Global Disability Summit hits 30,000 signatures from 111 countries. (Feb, Sightsavers)
Four priorities in inclusive education for the Global Disability Summit 2022 Collection of evidence in each priority. (Jan, Cambridge)
3 things to expect from the Global Disability Summit "The answers are there already – use them!" - agree with the sentiment that we have under-used solutions, but disagree we know "what it takes to implement the CRPD". (Feb, LFTW)
Recommendations from the Thematic Workshop on Inclusive Education (Jan, Global Disability Summit)
Ensure disability inclusion is not just a tick mark (Jan, Humanity and Inclusion)
International Summit On Disability And Health Aims To Achieve #HealthForAll (Jan, Health Policy Watch)
You can follow the GDS on social media and with its social media toolkit. Hashtags will be #CommitToChange and #GDS2022. Suggested prompt is “I believe in a disability-inclusive future because…” (Jan, Global Disability Summit)
Plenty of events on the way into this as well: see the event guide. covering the thematic, regional and side events.
See also the master guide (Global Disability Summit)
On Humanitarian response, a call for commitments to disability inclusion (Jan, Global Disability Summit)
Able Child Africa on their commitments and the Importance of the Global Disability Summit (Feb)
First day of Global Disability Summit results in ground-breaking commitments to disability rights from global leaders. (Feb, IDA)
Dutch Coalition on Disability and Development Commitments (Feb)
Light for the World committing to change. (Feb)
USAID commits to a Disability-Inclusive Future (Feb, short youtube, EducationLinks)
We must commit to inclusive education for people with disabilities (Feb, World Education Blog)
Girl's Education Challenge Leave No Girl Behind Updating our commitments to the most marginalized girls. (link to pdf, Feb)
Data and the Global Disability Summit: how to make sure commitments lead to change (Feb, Sightsavers)
Save the Children commits to ensure children with disabilities get fairer treatment. See also discussion of meaningful engagement. (Feb)
WHO-ITU global standard for accessibility of telehealth services: “very
often telehealth platforms are not compatible with devices such as screen readers that
facilitate people with vision impairment to access information, or the lack of captioning
or volume control in video conferencing impedes persons who are deaf or hard of
hearing to interact with health professionals virtually”. (WHO)
A report on access and equity in the Future of Virtual Health and Care features discussion and practices of inclusion of persons with disabilities. (Jun, Broadband Commission for Sustainable Development)
A selection of videos on rehabilitation from around the world shortlisted for WHO's Health For All Film Festival (Apr, WHO)
“People with disabilities often have lower levels of access and adherence to HIV treatment due to barriers with regard to the provision of services (eg, inadequate knowledge among health-care workers and inaccessibility of facilities) and the demand for services (eg, absence of autonomy and awareness of people with disabilities of HIV care needs and service availability). ” (Apr, The Lancet HIV)
Chronically ill face life-or-death challenges due to pandemic shortages. “Millions of chronically ill people struggle to get medical supplies amid global shortages.” (Mar, Washington Post)
Disrupting Global Health: From Allyship To Collective Liberation:
“We must understand that many disabled people across the world have experienced public health and biomedicine in violent and oppressive ways; and that that history continues to resonate today. So, we must engage meaningfully with (involve them as stakeholders) disabled people’s voices, opinions, activism, and advocacy,” (Mar, Forbes)
Evidence brief on what works to improve healthcare professionals’ competency on disability: “Negative healthcare professionals’ attitudes and stigma towards people with disabilities remain a major barrier in receiving equitable healthcare services. ” (Jan, Disability Evidence Portal)
Inclusive Medicine and Medical Education: Increasing the Number of Clinicians With Disabilities "Their experiences as patients position them to provide recommendations for promoting patient-centered care and reshaping healthcare systems and delivery processes to increase accessibility and improve patient outcomes." (Feb, Global Public Health)
Lessons from Long COVID: working with patients to design better research:
"Scientific research sets the medical and care agenda for patients with chronic illnesses. It also influences the wider social and economic agenda for people living with these conditions. The more socially and economically disadvantaged people are, the greater the potential influence on their lives. This is a huge responsibility that researchers are only able to fulfil with sharp awareness of the power structures involved in conducting research, with humility and with an openness to see things from different perspectives." (Feb, Nature)
The World Rehabilitation Alliance is open to membership applications. (May, WHO)
Factsheet on Rehabilitation through a gender lens (Dec, ReLAB-HS)
Global Stamp Issues a book exploring postage stamps marking the United Nations International Year of Disabled People, 1981. (Jun, Digital Disability) See a write up and samples on Disability Arts Online.
Review of Hearing Happiness: Deafness Cures in History “a spell-binding book of research and stories” (May, H-Disability)
The Historians magazine: The LGBTQ+ Edition 6 has an article on Disability and LGBT History, seeking out stories that show the intersections. (Feb)
UNHCR 2021 report on Age, Gender and Diversity Accountability “2021 marked an important turning point in UNHCR’s work
on persons with disabilities.”:
“Enhanced reporting by operations allowed UNHCR to
better capture the support provided to persons with
disabilities. Cumulatively, UNHCR operations supported
479,815 persons with disabilities worldwide, including at
least 7,615 children. ”
People with disabilities face 10-40% higher costs does Cash and Voucher Assistance account for this? “The way transfer values are calculated for people with disabilities must change” (May, Calp Network)
More disasters, less inclusion: will transformation start in Bali? Calls from IDA for the Global Platform for Disaster Risk Reduction to empower persons with disabilities. (May, PR Web)
IDMC 2022 Global Report on Internal Displacement includes a spotlight on displaced children with disabilities and promising practices. (May)
Humanitarian Networks and Partnerships Week Resources about Inclusion (May, HNPW)
Report on the role of Cash and Voucher Assistance in Increasing Equity and Inclusion for Girls and Children with Disabilities in Education in Emergencies. Report speaks to how this assistance “primarily addresses” the demand-side barriers to education in emergencies. (SDC and others)
UNHCR's Approach to Forcibly Displaced and Stateless Persons with Disabilities. Most of this brief describes the organization's approach to disability inclusion in general. (UNHCR)
Introductory video to the IASC Guidelines on inclusive humanitarian has been translated into Arabic, Bangla, French, Italian, Portuguese, Spanish, Swahili, Ukrainian and Russian. (Apr, EDF)
CBM's Humanitarian Hands on Tool is now available in more languages including Ukrainian. (CBM)
Migration data portal: Disability and human mobility (Feb, Migration Data Portal)
International Rescue Committee UK: Step by step – our work to become inclusive. (Feb, EDF)
"No One is Spared" Report on Older People at Heightened Risk in Conflict. Including disturbing examples of violence. (Feb, Human Rights Watch)
Data on disability and migration – what do we know? estimates of 12 million displaced persons around the world being disabled, and emerging practices on data. (Feb, Data 4 SDGs)
Give people with disabilities better protection in conflict and crises (Feb, The New Humanitarian)
Disability-inclusive data in migration: How far have we come? (Jan, Migration Data Portal)
December Newsletter from the Reference Group on Inclusion of Persons with Disabilities in Humanitarian Action (Dec, IDA)
An overall view on Aid policy trends to watch in 2022 Diversifying aid, its staff and its workplaces are one of the key themes to explore this year. The article puts this under the "decolonisation agenda" but there are many examples where genuine gains in diversity and inclusion are made without touching colonial dynamics. (Jan, The New Humanitarian)
Perhaps familiar to some of you, but this month I learned that physical rehabilitation centres are one of the ways that humanitarian impact bonds are being used. The idea of the impact bond is that you pay for results and they might be a means to secure different sources of funding. (Government Outcomes Lab)
Good to see these six reflections on Cash and Voucher Assistance in 2021 that shows the place of disability-inclusive cash assistance in a "patchy" shift to putting people at the centre of work. (Dec, CALP Network)
Disability Studies Quarterly special edition on indigeneity and disability: Kinship, Place, and Knowledge-Making (Jan)
Feeding practices of children within institution-based care: A retrospective analysis of surveillance data. “Feeding difficulties are common among children living in institution-based care (IBC), particularly but not exclusively among those children with disabilities.” (Mar, Maternal & Child Nutrition)
Disability Rights Funds welcomes Catalina Devandas as Executive Director. (Jul, DRF) Cata was the first person I interviewed on the Debrief to reflect on her years as Special Rapporteur on Disability.
Organizations of Persons with Disabilities Engagement Officer as a medium to strengthening the disability movement (Jul, IDA)
An interview with USAID employee (and friend of the newsletter, Josh Josa) who talking about his background and inclusive education (Jul, Government Matters)
A scoping review on Community Support for Persons with Disabilities in Low- and Middle-Income Countries. (Jul, Environmental Research and Public Health)
Stakeholder Group of Persons with Disabilities for Sustainable Development Position Paper for the High-Level Political Forum “governments must redouble their efforts to reach the most marginalized and furthest behind to implement policies and programs to address the discrimination and disadvantage faced by persons with disabilities. ” (link to pdf, Jul, Stakeholder Group)
The pursuit of authentic partnership: personal reflections from the executive director of CBM Global on the difference between partnership and imposition. (Feb, CBM Global)
Reflections on how racism in the aid sector relates to persons with disabilities and measures that can be taken to localize work on disability: “Any capacity-building programme should be locally and culturally designed and managed by a local CSO/DPO on its premises to build a disability movement locally. ” (Jun, Mosharraf Hossein)
Evidence digest on youth and disability inclusion (Jun, SD Direct)
The UNPRPD Annual Narrative and Financial Report 2021 (link to pdf, Jun, UNPRPD)
Lessons from our partnerships with local organisations of persons with disabilities. Featuring CBM Global's experiences and reactions from partners. “You are supporting with resources. We are getting job done. We should be paid in the same way, with same remuneration – that’s what equal partnership is!” (May, Bond)
UN Women experience with Disability Inclusion Markers. (Jan, UN Women)
In-depth conversation with World Bank Global Disability Advisor Charlotte Vuyiswa McClain-Nhlapo. “It is clear to me that my early exposure to racism and inequality influenced my life’s work for social justice and equality for all.” (Apr, Allfie)
Tracking disability inclusion in multilateral organizations a report tracking how inclusion changed between 2018 and 2022. “Although this report finds certain progress regarding the monitoring of disability inclusion since the first Global Disability Summit, particularly on strategies and commitments, the findings discuss how the step from ambitions to documentation of successful disability inclusion continues to be limited. ” (Mar, Fafo)
LFTW Fact Sheet on Intersectionality Unveiling intersecting discrimination (Mar, LFTW)
Working towards a more inclusive society: Five stories of how the UN is working with partners to advance disability inclusion. (Feb, UNSDG)
The High Level Political Forum will be in July: see the position paper on how it relates to disability and more from the Stakeholder Group of Persons with Disabilities. (IDA)
A new issue of Disability, CBR & Inclusive Development featuring a lively editorial on the need for local solutions. (Feb, DCIDJ)
Discussion on how development partners can ensure engagement of organizations of persons with disabilities in CIP's question of the month. (Feb, CIP)
Celebrating MIUSA's Story | Mobility International USA "If you have built castles in the air, your work need not be lost. They are where they should be. Now put foundations under them. " (MIUSA)
Intersectionality Resource Guide and Toolkit An Intersectional Approach to Leave No One Behind
'This does not require an “add and stir” approach, but rather a full shift in mindset—one that is willing to sit with the discomfort that comes with exploring the relational nature of power and discrimination both within and beyond UN systems.' (
'This does not require an “add and stir” approach, but rather a full shift in mindset—one that is willing to sit with the discomfort that comes with exploring the relational nature of power and discrimination both within and beyond UN systems.', Jan, UN Women)
A survey on the situation of persons with deafblindness (2022) (up to 14th Feb, WFDB)
World Federation of the Deaf review of 2021. (WFD)
Innovation to Inclusion Learning Update (link to pdf, Jan, Leonard Cheshire)
See the CIP question of the month on How civil society can work with large development partners and financial institutions to address disability inclusion. Hosted by the World Bank's lead on disability. (Jan)
Light for the World 2021: The year in review (Dec, LFTW)
Reflecting a Movement’s Principles in Grantmaking Structure Evidence on the Benefits of Participation (Dec, DRF)
See You Strategic Framework 2021-2024 Light for the World Netherlands is now See You: 'We see our values reflected in the Bible, as well as represented in the UNCRPD' (link to pdf, Nov, See You)
A report on CBM's work on Community Based Inclusive Development (Jun, CBM)
A review on corruption and the equal enjoyment of rights for persons with disabilities:
“People with disabilities are exposed to abuse by those that provide care, the embezzlement of funds intended to benefit persons with disabilities and extortion in the process of acquiring a disability certificate. [...] This impact of this corruption is caused, enabled or exacerbated by discrimination against persons with disabilities.“ (Apr, U4 Anti-Corruption Resource Centre)
Evidence brief on promoting effective implementation of legal capacity as outlined in Article 12 of the UN CRPD in LMICs. "Reforms for legal capacity do not engage a wide variety of stakeholders, and instead tend to reinforce existing powers structures" (Jan, Disability Evidence Portal)
The Valuable 500 reflects on What Disability Pride means to us. (Jul)
Disability Pride Month July “looks to celebrate disability as an identity by sharing the experiences of the disabled community” (Jul, Forbes)
How a Cyborg Challenges Reality “It seems obvious that cyborgs are first and foremost disabled people, and yet I’m stuck inside this other reality, defined by nondisabled people, where I make an appeal for personhood.” (Jun, NYT)
‘I’m a TV producer’s dream!’ – Rosie Jones on the trouble with being the poster girl for disabled comedy:
“sometimes think I am the ‘perfect amount of disabled’. I am being facetious but hear me out. I look disabled and I sound disabled, but I am not too disabled. I can appear on a panel show without disrupting the whole programme. There’s no need for subtitles, ramps or additional needs. I’m a TV producer’s dream!” (Mar, the Guardian)
Satirical take on Five Ways to Accommodate Sighties in the Workplace “Turn on the lights. You know this.” (Mar, Squeaky Wheel)
Jane Waithera′s fight against the stigma of albinism (short video, no subtitles, Feb, DW)
A powerful tribute to her body from Frances Ryan: Living in a woman’s body: this body is a genetic mistake – but it is sex, laughter and beauty too.
"This body is a genetic mistake, a pitiable stare, the scan on a mundane Tuesday lunchtime with a doctor speaking in hushed tones by the bed.
It is glorious too, thanks. It is deep-in-the-bones laughter at 2am with people who love you; only strangers care that it is sitting in a wheelchair while doing so (“Have you got a licence for that thing, sweetheart?”). It is straight-As, promotions and beating expectations as much as the odds. It is being buckled over from the pain, clutching a public toilet bowl, pills and dignity rattling at the bottom of a handbag. It is sex, fevered goosebumps and kisses to the skin like magic. It is warm summers with friends, sunshine on bare legs and 90s dance music ricocheting through the air. It is fucking knackered." (Feb, the Guardian)
Define Yourself: Riva Lehrer’s and Jan Grue’s Disability Memoirs (Jan, LA Review of Books)
Mental Health Apps Like BetterHelp Are a Privacy Nightmare, Mozilla Says. (May, Gizmodo)
Hope, empowerment, action: a new series dedicated to suicide prevention:
“To begin with, we need to abandon the myth that every suicide is the outcome of 'mental illness'. And we must reckon with the deep socioeconomic factors that make suicide one of the biggest public health challenges of our time.” (May, Sanity by Tanmoy)
A briefing on Financing Mental Health For All as part of universal healthcare: “the opportunity for once-in-a-generation change”. (Mar, United for Global Mental Health)
COVID-19 pandemic triggers 25% increase in prevalence of anxiety and depression worldwide (March, WHO)
Entry points for mental health and wellbeing a brief on how international cooperation can incorporate mental health. (Feb, Bond)
Mental health support for children and adolescents with hearing loss scoping review (Jan, BJPsych)
‘It’s not the waiting, it’s the indignity’: disabled passengers tell of air travel torment. (Jun, the Guardian)
How airline Apps let down blind passengers “Only one major UK airline’s App works with screenreaders for the blind” (May, Which)
Fostering an inclusive urban transport system. Survey on inclusion from 20 public-transport operators around the world. They found that there were initiatives for inclusion but they were usually not integrated. (Feb, McKinsey)
Experts at Dubai summit seek better travel facilities and accessibility for 'people of determination' worldwide (Jan, Gulf News)
CIP Question of the month is on the gap between policy and practice in disability rights in low and middle-income countries, and what can be done to close it. (Jun, CIP)
“Historically, legal recognition of disfigurement has been limited to disability laws and spaces. But is facial difference always classed as a disability? While it is true that there is often an overlap between the two characteristics, many members of the facial difference community indicate that facial difference is an identity in itself.” (link to pdf, May, Face Equality International)
We cannot keep leaving women with disabilities behind in leadership (May, African Arguments)
Open letter to the UN to protect gender parity and diversity of representation on the committee on the rights of persons with disabilities. (Sightsavers and 80 other signatories)
Why tax justice is critical to the rights of persons with disabilities. Injustices that persons with disabilities face “cannot be properly tackled without dedicated public resources. ” (Apr, CESR)
‘the use of public resources can help to tackle centuries of exclusion towards certain groups (like women, indigenous peoples, people with disabilities, LGBTIQ+ communities, and more) who have been systematically denied their rights. In fact, any group fighting for social justice is going to face, at some point, the question of “how to pay” to fix the problem.’ (Apr, CESR)
Report on disability legislation and how it works for people with Facial Disfigurements “While the UNCRPD provides a strong theoretical foundation for protecting the rights of people with facial disfigurements through its wide definition of disability, in reality, it has had more limited practical success, owing to the limited accountability measures in place” (link to pdf, May, Face Equality)
Unchaining Disability Law Global Considerations, Limitations and Possibilities in the Global South and East:
‘Over the past years, there have been increased legal measures to protect and promote the rights of persons with disabilities. Yet there has been significantly less action in relation to direct prosecution, despite mounting global pressure from disability rights advocates. The majority of persons with disabilities continue to live on the margins of, and often outside, the law, as the law offers them little or no protection because of deep stigmatization, inequality, and marginality. Institutions designed to protect persons with disabilities in countries positioned on the “global peripheries of law” are “places in the world where it is particularly difficult to realize human rights in practice.”’ (Mar, AJIL Unbound)
The proposal for a United Nations Convention on Tax aims to ensure that tax systems support realization of goals relating to equality, including the rights of persons with disabilities, and that States report on this. (Mar, Eurodad)
CRPD Committee Twenty-Sixth Session considered State reports of Hungary, Jamaica, Mexico,Switzerland and Venezuela. (Mar, OHCHR)
5 types of discriminatory laws that punish you for having leprosy (Jan, Leprosy Mission)
A paper exploring how Fiscal policy needs a focus on disability: how to make this possible? (in Spanish, Feb, Principles for Human Rights in Fiscal Policy)
Human Rights Watch World Report 2022 starts with a discussion of autocrats "on the defensive" and how democracies can "rise to the ocassion"; from there it is an update on human rights by country, including updates on disability rights. (Jan, Human Rights Watch)
A training course The Human Rights-Based Approach to Disability running in February-March (UNITAR)
The 15th session of the Conference of States Parties to the CRPD is scheduled in New York from 14th to 16h June (UN)
An evidence digest on LGBTIQ+ and disability inclusion (Jun, Social Development Direct)
Evidence brief on promoting the sexual health of men and women with physical disabilities in low- and middle- income countries. (Dec, Disability Evidence Portal)
Between Vulnerability and Sexual Agency recent history discussion in the US and UK contexts. (Feb, History Workshop)
Draft Guide to Publicly Available Influencing Toolkits a blog post collecting guides on influencing. (Not disability related, but maybe relevant for some of you.) (Feb, FP2P)
A great weekly newsletter Crip News with weekly updates on arts, culture and politics. Largely US/UK.
A podcast Road to Inclusion covering many themes relating to the Global Disability Summit. (link to youtube, also available on Spotify and other platforms, Jan, Atlas Alliance)
Alt text proved unexpected star of NASA’s Webb images:
“The image is divided horizontally by an undulating line between a cloudscape forming a nebula along the bottom portion and a comparatively clear upper portion,” reads one. “Speckled across both portions is a starfield, showing innumerable stars of many sizes. The smallest of these are small, distant, and faint points of light. The largest of these appear larger, closer, brighter, and more fully resolved with 8-point diffraction spikes. The upper portion of the image is bluish, and has wispy translucent cloudlike streaks rising from the nebula below.” (Jul, Washington Post)
How AstroAccess Plans to Extend Accessibility in Space. Good to see in this piece that NASA experiments in the area of disability and space exploration date back to the 1960s with a study on motion sickness as experienced by deaf men. (Jun, Payload)
The Right Stuff a great episode exploring the ways we imagine space, space travel, and what that means for life back on Earth. (Mar, Radiolab)
Special Olympics Unified with Refugees brings inclusion to the world's most marginalized (Apr, Fansided)
A blog on Inclusion through sport and sports programmes that have promoted this. (Mar, LFTW)
Stop Calling Paralympic and Disabled Athletes “Inspiring”. (Mar, Bitch Media)
Book review of More Than Medals A History of the Paralympics and Disability Sports in Postwar Japan. (Mar, H-Disability)
As an Afghan Paralympian, sport gave me opportunities all disabled people deserve (Mar, the Guardian)
See highlights and results of the Paralympic Winter Games held in Beijing between 4th and 13th March. (Mar, Paralympic)
Paralympic Classifications Are Meant To Level The Playing Field. Do They? Detailed breakdown of classification systems and results. (Mar, Five Thirty Eight)
Special Olympics Calls Off World Winter Games In Russia (Mar, Disability Scoop)
Opening ceremony of the Paralympics started with a speech calling for peace (4 Mar, Youtube, Channel 4 Sport)
IPC makes decisions regarding RPC and NPC Belarus. Decision for athletes from Russia and Belarus to participate as neutrals. And "The Paralympic Honour bestowed to Vladimir Putin, President of Russia, has been withdrawn." (2 Mar, IPC) Athletes of Ukraine criticised the IPC for not taking a strong enough stance, “choosing bloodshed and profits over principle and stakeholders”. See also video of their appeal, (28 Feb).
The Para Equestrian Digest a new monthly digest "building inclusion, one story at a time " (Feb, FEI)
Channel 4 presenting team for Winter Paralympics will all be disabled people (Feb, the Guardian)
Global estimates of violence against children with disabilities: an updated systematic review and meta-analysis. “This review shows that children with disabilities experience a high burden of all forms of violence, despite advances in awareness and policy in the past 10 years.” (Mar, Lancet Child & Adolescent Health) See also coverage on Disability Insider: “1 in 3 children with disabilities globally have experienced violence in their lifetimes”. And on NPR.
“For many persons with albinism, this is what their day-to-day realities entail – experiences of ostracism, rejection and the debilitating fear of being abducted or attacked on their way to school, work or home.” (Mar, OHCHR)
Rising Flame's From the Shadows to the Centre important collection of testimonies from women with disabilities. (link to pdf, Feb, Rising Flame)
The 1st of March is Disability Day of Mourning remembering people with disabilities who were victims of filicide (killed by their parents).
'When we say “filicide,” we are talking about a pattern of violence that starts when a parent or caregiver murders their child or adult relative with a disability and continues in how these murders are reported, discussed, justified, excused, and replicated.' (March, Disability Memorial)
Terminology Guidelines for Equality, inclusion and rights (Jun, Water Aid)
Progress on drinking water, sanitation and hygiene in schools: 2000-2021 Data update includes a section on disability which shows gaps in data and how changes are lagging: “schools were
more likely to have adapted infrastructure and
materials than disability-accessible toilets” (Jun, UNICEF)
Reflections on barriers to inclusion of older people with incontinence and their caregivers in humanitarian settings (Jan, Amita Bhakta)
A guide to making WASH workplaces inclusive considering gender equality, disability and social inclusion. (Dec, Institute for Sustainable Futures)
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Access to Services from Persons with Disabilities: Is Community Based Rehabilitation Making a Difference? “Our study indicates that a CBR program may be an effective way to provide services for persons with disabilities even in a conflict context such as Afghanistan.” (May, Journal of Environmental Research and Public Health)
Afghanistan Earthquake Response Overlooks People with Disabilities (Jul, Human Rights Watch)
Multi-sectoral needs assessments of Households with Disability “A significant proportion of households headed by a person with disability experience life-threatening circumstances and are in need of urgent life-saving humanitarian assistance to survive.” (Save the Children)
Helping the disabled in Afghanistan: rehab and assistive technology in centres staffed by people with physical disabilities (Dec, ICRC)
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Assistive Technology Innovate Now launch of its 5th Cohort on Digital AT and Entrepreneurship (April, AT Innovate Now)
A needs assessment of School Violence and Bullying of Children with Disabilities in the Eastern and Southern Africa Region. I hadn't heard of this before, in Zambia, one informant reported:
“There are traditional beliefs, that having sexual relations with a person who is disabled helps you to become cured from a particular disease such as HIV and AIDS. That persons with disabilities can be used as avenues for cleansing and that takes a step further from bullying into sexual violence, sexual abuse, and so on." (link to docx, Leonard Cheshire)
People with disabilities have been forgotten. Not any more. (Feb, African Arguments)
Workshop on Including Displaced Persons with Disabilities Workshop for African OPDs (Jan, IDA)
How a project seeks to solve the north-south power imbalance in leprosy and development work. (Apr, The Leprosy News)
Uncovering our Hidden Shame: Addressing Witchcraft Accusations and Ritual Attacks. Reports of ritual attacks against children with disabilities in eleven countries, and on children with albinism in five. Some reports from Benin suggest that midwives may kill new-born children with disabilities without informing the mothers.
“Children with disabilities and children with albinism in particular may be accused of witchcraft based on the circumstances of their birth or their congenital deformities, or the way they look or talk. Ritual attacks against children with albinism are also driven by myths, and the false belief that their body parts can be sold for money. ” (Jun, African Child Policy Forum) See also coverage on the Guardian.
Intersections between disability, masculinities, and violence: experiences and insights from men with physical disabilities from Ghana, Rwanda and South Africa. The article shares many fascinating quotes, and concludes, comparing with the situation of women with disabilities:
“men with disabilities report threats, verbal and physical abuse by people outside their household and emotional abuse within their households and not the same level of sexual and intimate partner violence as women with disabilities have reported in similar studies”. (Apr, BMC Public Health)
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Short video on accessibility to infrastructure, public services and information for persons with disabilities. (Mar, Down Syndrome Albania)
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Practical Guide for the Establishment of Support for the Exercise of the Legal Capacity of persons with disabilities. Also available in Portuguese and Spanish (links to pdf, OAS)
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Four Feet High Just caught up on this charming series from 2020. A portrait of young people figuring out identity issues on a rollercoaster of relationships, identity, inclusion and exclusion. 'Revolutionises the way the body is represented on the screen' (in Spanish, with subtitles in English and other languages, Dec, Arte TV)
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Are persons with disabilities included in the effort to leave no-one behind? An overview that shows the gaps in countries' ability to monitor the situation of persons with disabilities. See accompanying resource, Where are we?, questions to aid understanding of disability data and inform advocacy, and a blog post on lessons learned. (Feb, UNFPA)
Ensuring continuity of education of children with disabilities during emergencies (Dec, Global Partnership for Education)
Why Hiring Individuals With Disabilities Can Benefit Asia’s Workforce (Apr, Verve Times)
A resource guide for employers on Tapping the potential of persons with disabilities (Mar, ILO)
New report on OPD engagement in Humanitarian Action reflections from Bangladesh, Indonesia and Nepal. (May, CBM Global)
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How accessible is Melbourne for people with a disability? (Feb, The Age)
One-size-fits-all model of accessible housing ‘a disaster’ for Australians with disability. “There should be an option for us to stay together as a family and not be forced to relinquish care just because we don’t have the funds to build an accessible house.” (May, the Guardian)
Impacts of new and emerging assistive technologies for ageing and disabled housing. Exploring smart home assistive technologies.. (Dec)
Living with COVID-19 in the time of OMICRON: Escalating risks for people with disability in Australia and recommendations how to address them. (Jan, Centre of Research Excellence in Disability and Health)
People with disability 'completely overlooked' as Omicron surges (Dec)
Australian vaccine contractor prioritises aged care "NDIS participant vaccine rates remain lower than general population" (Jan, the Guardian)
Our understanding of limb difference is changing, and these young Australians are leading the way (Jul, ABC News)
The art of interpreting standup comedy in sign language. (Jun, the Guardian)
Adaptive fashion for people with disability showcased (May, SBS News)
Australian advertisers striving for inclusiveness through disability representation. (Mar, ABC News)
Doing research inclusively: co-production in action “provides practical strategies for every step of the co-design process in research.” (May)
"I'm about to drown": one phone call Sam Connor received during the recent floods. (Mar, Hireup)
Disability sector demands inclusive disaster preparedness (Apr, Probono)
Pleas for NSW flood survivors with disability to be prioritised for urgent housing, care. (Mar, ABC News)
Floods can worsen inequality. Here are 4 ways we can ensure people with disabilities aren't left behind (Apr, the Conversation)
Two-year wait for a wheelchair: inquiry hears of difficulty accessing NDIS for remote Indigenous communities (Jul, the Guardian)
When is a condition 'chronic' and when is it a 'disability'? The definition can determine the support you get (Jun, the Conversation)
Two directors of care provider charged with criminal neglect over death of Ann Marie Smith. (Jun, the Guardian)
Hackers Steal a ‘Very Large’ Batch of Private Data from Australia’s Disability Scheme: “this kind of data breach puts vulnerable people at serious risk of identity theft, fraud, and scams,” (Jun, Vice)
Concern millions of Australians with disability not on the NDIS have been 'forgotten' (May, ABC News)
National Disability Insurance Agency scrutinised woman’s social media posts to challenge her eligibility for the scheme (Mar, the Guardian)
Experts slam ‘culture of low expectations’ surrounding kids with disability, ‘routinely being let down by a widespread lack of support across both mainstream and specialist schools.’ (Jun, The Educator)
What we should all know about authentic inclusive classrooms (Jul, EduResearch Matters)
Why do students with disability go to 'special schools' when research tells us they do better in the mainstream system? (Jun, the Conversation)
‘Devastating impact’: Rise in proportion of disabled students expelled from Victorian government schools during COVID pandemic. “We expect it to be worse this year,” she said. “Every time students have gone back to school following a lockdown period, we have seen both formal and informal exclusions increase.” (Apr, The Age)
'The gap is widening': disability advocates say not all Australians are enjoying equal employment opportunities. (Jul, SBS News)
Low staff turnover, high loyalty and productivity gains: the business benefits of hiring people with intellectual disability (May, the Conversation)
People with disability working for legal pay as low as $2.27 an hour, inquiry hears (Apr, the Guardian)
Increasing board and executive representation (Jan, Australian Network on Disability)
Hospitals only note a person's intellectual disability 20% of the time – so they don't adjust their care. “Potentially avoidable deaths (from conditions that could have been prevented through individualised care or treatment, like viral pneumonia, asthma, or diabetes) are more than twice as likely in people with intellectual disability.” (May, the Conversation)
The association between chronic pain and pre-and-post migration experiences in resettled humanitarian refugee women residing in Australia. “Chronic pain was reported in 45% (n = 139) of women, and among these a further 66% (n = 120) also reported having a long-term disability or health condition that had lasted 12 months.” (May, BMC Public Health)
Migrants with disability are discriminated against with 'impossible' health requirements, advocacy groups say. “We're working with a young man who came to Australia as an asylum seeker and had a stroke. The federal government supports him to live in a nursing home, but they won’t allow him access to the National Disability Insurance Scheme to receive the support he needs to live a good life in the community.” (Apr, SBS News)
Sites of conscience redressing disability institutional violence (May, Incarceration)
Victorian government seizes control of supported care homes over abuse, ‘uninhabitable conditions’ (Jan, SMH)
Profile of Jane Edge, CEO of CBM Australia (Jul, Probono Australia)
Trapped, stripped of assets, and silenced. And it’s all perfectly legal photo-essay feature on challenging public guardianship. (Mar, ABC News)
Special Issue on Writing Disability in Australia (May, Australian Literary Studies)
”I lived in two worlds during COVID. One that suddenly got more open and inclusive, where I was asked to talk at events, on television, to Senate committees. I pasted lipstick on, and calmed my frizzy hair, adjusting a badly fitting shirt, so I could tell the world that disabled people needed help. Then I would scrub it all off, limp to the kitchen and face the anxiety swarm about there being no food.” (Meanjin)
Web Guide for Disability Access to Australian Beaches (Jun, Accessible Beaches)
‘This was indignity’: passenger with disability left without wheelchair at Sydney airport. (Jul, the Guardian)
‘We’re not a priority’: people with disabilities wait up to three hours for transport in regional Queensland. (Apr, the Guardian)
‘You can make money out of us’ the disabled people demanding more accessible travel and tourism (Dec, the Guardian)
Australia’s disability strategy 2021–2031 (Dec, APO)
This Election, We Need to Vote for Disability Rights — Here’s How (Apr, The Latch)
Scott Morrison: Australia PM faces backlash over 'blessed' disability remark (Apr, BBC)
Resource will help reduce prejudice against parents with intellectual disability (Jun, University of Sydney)
We've Got This: Stories by Disabled Parents edited by Eliza Hull. (Mar, Black Inc Books)
"I am on a mission to make dating more accessible and inclusive." (Women's Agenda)
‘Devastating’: woman with a disability met with disbelief after sexual assault, royal commission hears. (Mar, the Guardian)
Changing the landscape: a national resource to prevent violence against women and girls with disabilities (Feb, Our Watch)
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How did people in institutions fare during the corona pandemic? Short animated video comparing independent living solutions to the confinement in institutions. (Youtube, in German with English subtitles, Dec, Unabhängiger Monitoringausschuss)
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'16-year-old Eemon, who has a visual disability, said, "We are very ill-fated that our education has come to a halt for the past two years." Eemon had to join a courier service as a worker to support his family, as other members faced income loss as a result of the pandemic. It is highly unlikely that he will go back to his much-loved school, even though schools have reopened.' (Dec, The Daily Star)
Jobseekers with disabilities left out of Covid recovery plans (Dec, Dhaka Tribune)
Directives to hold special Covid-19 vaccination drive for people with disability (Jan, The Business Standard)
Data & evidence missing on the impact of climate change on persons with disabilities. “No data on how persons with disabilities have been affected by the flooding, persons with disabilities are scattered in this area and even getting cash support to these persons takes a bit of time. There are not so many OPDs to support them either.” (Jul, CBM Global)
Country's first wheelchair-bound news presenter makes debut "an initiative to bring people with disabilities into the mainstream to commemorate the golden jubilee of independence." (Dec, The Business Standard)
Improving disability data in Bangladesh Access Bangladesh Foundation’s leading advocacy. (Feb, DRF)
Web Accessibility is now a reality in Bangladesh, not a dream anymore (a bold description of the important initiatives taken.) (Dec, Digital Journal)
Interview with CBM Programmes director on how peer groups have enabled disabled people to participate in disaster risk reduction (Feb, CBM Australia)
People with disabilities demand Tk 2,000 a month (Apr, New Age Bd)
Deal inked to introduce ‘Bangabandhu Suraksha Bima’ for people with disabilities
a health insurance introduce for people with neurodevelopmental disabilities. (Feb, Business Insider BD)
Disability and Intrahousehold Investment Decisions in Education: Empirical Evidence from Bangladesh:
“we find the existence of disability bias on the part of parents, especially with regard to the enrollment decision for their children. Results from the direct method using the individual child dataset suggest that there is also a possibility of disability bias in investment decisions even for children who are already enrolled.” (link to pdf, Asian Development Review)
Over 500,000 special needs children affected by school closure "As many as 1,700 private and 77 government special needs schools were closed all over Bangladesh, impeding the mental and physical growth of special needs children. " [Since March 2020] (Feb, Dhaka Tribune)
Bangladesh expands tax incentive for employers of persons with disabilities and third-gender people (Jun, BD News)
Conquering the challenges in employment: a film made by Bangladesh OPDs (Mar, i2i)
Providing a dignified life for refugee children with disabilities. “In the Rohingya refugee camp, an accessible latrine is making a difference in Irfan’s life” (Jun, UNICEF)
The Special Rapporteur on the situation of human rights in Myanmar visited the facilities at Bhasan Char island, where Rohingya refugees are to be relocated:
“Structures, including residential housing, appear well constructed and are considerably stronger and more durable than those in Cox’s Bazar. Unfortunately, accessibility for persons with disabilities was clearly not factored into the planning and construction process.” (Mar, OHCHR)
Tip sheet on inclusion in the Rohingya Refugee Response (Feb, Relief Web)
Workshop on building Donor Investment in OPDs at the Country Level (Mar, IDA)
How Sadia became a strong advocate for people with disabilities (Dec, CBM Australia)
Mobilizing Disabled Peoples’ Organizations to Implement Bangladesh’s Disability Law (Yes, the Journal of Human Rights Practice has a paywall oh dear, Jan, Journal of Human Rights Practice)
Participation of People with Disability Program resources for disabled people's organizations to implement the UNCRPD. (Jan, Disability Bangladesh)
Advocacy on Disability Inclusive National Budget 2022-23 (Jan, The Daily Star)
Accessible latrines supporting independence in Cox's Bazar camps (Jun, Relief Web)
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Discussion on why “Veganism isn’t ableist” (Jun, Crip HumAnimal)
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“I want to achieve more, so that I can inspire more people” Living and Working with a Disability in Bhutan. A nice presentation of case studies and pictures from a project supporting disabled people with small grants. (Royal Thimphu College and Fora Education)
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‘Our country is getting old’: the man changing how Brazil sees dementia. “Developing countries are getting old in a shorter period of time without resources and with poverty.” (Jun, the Guardian)
Inclusion with Accessibility at Work a site with quite a few resources (in Portuguese)
The National Health Policy for People with Disabilities: An Analysis of the Content, Context and the Performance of Social Actors. “The coming to power of ultra-right governments triggered fiscal austerity, a setback in the implementation of the care network and a weakening in the content of various social policies related to the care of people with disabilities. During this era, the political approach changed, with the attempt to evade the role of the State, and the perspective of guaranteeing social rights. Undoubtedly, the neoliberal offensive on social policies, especially the Unified Health System, is the main obstacle to the effective implementation of the PNPCD in Brazil.” (Jun, Health Policy and Planning)
In Brazil, the Museum of Inclusion's exhibition on Fights, Rights and Conquests of persons with disabilities. (in Portuguese, Museum of Inclusion)
Outrage as mentally ill Black man dies in police car ‘gas chamber’ (May, the Guardian) See also on Human Rights Watch.
Portraits of Brazil with Disability A new podcast exploring a range of disability issues (in Portuguese, with transcription, Jan)
Great pictures of Paraskating (no image description, Feb, @Aurch, Instagram)
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Memorial to Kapka Panayotova – a great Independent Living activist (Dec, Disability Defenders Network Newsletter)
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New horizons for Light for the World Cambodia. “Our Light for the World Cambodia office has taken the exciting step of becoming a Cambodian non-profit.” (Mar, LFTW)
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Prejudice robs disabled women of work "Laws to protect disabled people are not enforced in the central African nation, leaving many without jobs. But a local organisation is helping equip disabled women for work." (Dec, New Frame)
Pascaline Mekati Matoko, the founder of Deaf Rights Cameroon Association, is passionate about promoting the rights and education of girls and women with disabilities. (Sightsavers)
Break the Bias: Paving the Way for Women in Healthcare features Pascaline Mekati Matoko, the founder of Deaf Rights Cameroon Association.
Cameroon ratified the UN Convention on the Rights of Persons with Disabilities (in French, Dec, Republique du Cameroun)
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New project tackles accessibility of heritage buildings
(Dec, Remi Network)
Woman with disabilities nears medically assisted death after a fruitless bid to secure an affordable apartment that doesn't worsen her chronic illnesses. (May, CTV News)
This Ontario family has spent years looking for wheelchair accessible housing. “These parents carry their eight-year-old son up and down stairs everyday with no end in sight.” (May, Toronto Star)
Court Case on whether appopriate housing is a human right for people with disabilities Nova Scotia government argues that it isn't and they have the right to define the quality of social serices people receive, not the court. (Jan, Halifax City News)
Outcomes in patients with and without disability admitted to hospital. "Patients with a disability who were admitted to hospital with COVID-19 had longer stays and elevated readmission risk than those without disabilities." (Jan, CMAJ)
Quebecers with disabilities struggle with rapid tests, say advocates after the province ran out of PCR tests for the general public. (Jan, CBC)
Accessibility of Canadian COVID-19 Testing Locations for People with Disabilities During the Third Wave of the COVID-19 Pandemic: "more than a year into the pandemic, there existed a clear lack of accessibility information for Canadian testing locations for people with disabilities." (Dec, MedRxiv)
COVID concerns of disabled people multiply as health protocols lifted (Mar, Policy Options Politiques)
High-risk Canadians feel forgotten as rules lift: “Can't we have lives too?” (Mar, CTV News)
Chronic exhaustion, derailed lives and no way out. This is long COVID. (Jan, Maclean's)
Disability rights don’t have to clash with environmental responsibility (Jul, the Conversation)
One Year Since Deadly Heatwave Protections Still Needed: 600 people died due to extreme heat in the summer of 2021, 91% of whom were 60 or older. (May, Human Rights Watch)
How Indigenous sign language is helping this woman connect with her culture (Jul, CBC)
Crip Rave Is the Revolutionary Collective Prioritising Accessibility. “There was the disorientation of the music, but also the vibrations, which left me sensing my pain in a different way ... I left that night with a new relationship to my body.” (May, RA)
Acting the part: A thematic analysis of the experiences of actors with disabilities. “Many actors experience inadequate accommodations, inaccessible work sites, stigma, and being limited to disability specific roles. As a result, actors with disabilities have implemented strategies to improve their success when faced with social and physical barriers in the industry.” (Mar, Canadian Journal of Disability Studies)
Alt-Text & Ambiguity A Poetic Approach to Image Description by Alex Haagaard and Liz Jackson (Apr, Akimbo)
#CripRitual exhibition of art exploring disability culture and ritual (#CripRitual)
Canadian goes viral for honest restaurant accessibility reviews on TikTok (Jun, DH News)
This woman with disabilities gets only $1,169 a month. She hopes the Ontario election changes that. (Apr, CBC)
What happened to the Canada Disability Benefit? “It is 2022, the election has been won and done, and as the cynics predicted, the Canada Disability Benefit is still nowhere to be seen.” (Apr, Canada's National Observer)
Opinion: It’s time for a culture shift where disability inclusion is concerned. By friend of the Debrief, Yazmine Laroche. (Jun, Globe and Mail)
Up to $270 million is available to fund projects to connect persons with disabilities with good jobs. (May, Government of Canada)
Job boards aren’t designed with disability in mind. That needs to change (Feb, CareerWise)
A report on disability inclusion in MBA programs “half of the respondents had a negative perception of employers' on-campus recruitment drives“ including stereotyping and ableism. (Access to Success)
Employers’ lessons learned in hiring, retaining and advancing employees with disabilities (Feb, Public Policy Forum)
Hiring more people with disabilities can address labour shortages > "Labour shortages are one of the biggest issues facing Canadian companies right now, but there’s an underrepresented and untapped pool of skilled Canadians that could help close the gap: people with disabilities." (Dec, Globe and Mail)
Invisible Institutions Podcast “a new documentary podcast exploring the past and present of institutions for people labelled with intellectual and developmental disabilities” (Invisible Institutions)
Discussion of and key points on Sheltered Workshops and Sub-Minimum Wage Labour 'Workers on average work more than 2 years in sheltered workshops, despite their label of “training programs”.' (Mar, Invisible Institutions)
Warehousing disabled people in long-term care homes needs to stop. Instead, nationalize home care. (Jan, the Conversation)
A new book Disability Injustice - Confronting Criminalization in Canada "Ableism is embedded in Canadian criminal justice institutions, policies, and practices, making incarceration and institutionalization dangerous – even deadly – for disabled people." Edited by Kelly Fritsch, Jeffrey Monaghan and Emily van der Meulen (Feb, UBC Press)
'We’re used to thinking of “healing” as specific treatments — surgery, pills, herbs, acupuncture. Those things are useful and important. But a cripped definition of healing would include anything that supports someone’s disabled body/mind. My cane; my friend’s garden bench chair they sit on while they weed; my heating pad and excellent ice packs; my friend’s sensory friendly hijab; the CRV my friend and his partner bought that can easily fit his wheelchair in the back; stim toys; my car with its disabled parking permit; the disabled parking spaces at the Grocery Outlet; the portable wheelchair at the protest; Zoom captions; the autistic Black, brown, Indigenous, Asian and mixed race group I hang out in online; and my close and extended disabled BIPOC friend family who are available to bitch and vent and commiserate and troubleshoot and doula each other: none of these are healing in the “cure” sense. But all of these things do a lot to ensure my or someone else’s chances of an excellent disabled life.' (Dec, The Tyee)
"People who required support could no longer access it; streets were no longer being cleared of snow in some areas; and sidewalks had vehicles parked on them. Public space was overrun by those whose interpretation of “freedom” left no room for social responsibility to others and treated someone else’s choice to wear a mask as a provocation." (Feb, The Maple)
Disability Justice in Queer Communities (Jul, Rainbow Salad)
I'm queer and disabled. Pride isn't accessible for me. (Jun, CBC)
Informing Future Paralympic Media Approaches: The Perspective of Canadian Paralympic Athletes. “I have no problem talking a little bit about how I got started in the sport or whatever. I just don't want that to be the primary focus of the article. I don't want it to be focused on my disability. I want it to be focused on my ability.” (Jun, Project ECHO)
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In drafting of the new constitution sign-language has been recognised as an official language (Mar, UN Special Envoy on Twitter)
Government apologizes to woman for forced sterilization. “Doctors performed procedure in 2002 without consent while Francisca was under anesthesia because she was HIV positive” (May, the Guardian)
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Shanghai Covid lockdown: The struggle of blind massage therapists (Jul, BBC)
310,000 seniors living alone in Shanghai and young people who help them (in Chinese, Apr, QQ)
Correlation between functional disability and quality of life among rural elderly in Anhui province,: a cross-sectional study. (Feb, BMC Public Health)
Book review of Disability in Contemporary China. Tracing representations of disability from Mao to now. (Apr, Disability Studies Community Blog)
Disability inclusion key to rural revitalization. On how China's poverty alleviation measures supported persons with disabilities: “between 2014 and 2019, the registered number of persons with disabilities living in extreme poverty fell from 7.19 million to 479,000, and reached zero by 2021.” (Mar, China Daily)
Disability Inclusion in China an overview helpdesk report. "The disability movement in China has been disproportionately affected by the Charity Law and Overseas NGO Law, which have necessitated a move from advocacy towards service provision. " (link to pdf, Nov, SD Direct)
Disabled Chinese Fight for Equal Rights Despite Paralympic Glory. (Mar, NYT) “Even China’s most decorated Paralympians have faced discrimination.” Sure, yes, as have decorated Paralympians in every other country?
Government paper on China's Parasports: Progress and the Protection of Rights. “The remarkable achievements of parasports in China reflect both the sportsmanship and sporting prowess of the disabled, and the progress China is making in human rights and national development.” (Mar, Xinhua)
China is a Paralympics star, but its people with disabilities face high hurdles (Feb, NPR)
“the perception of disability has changed a lot from my childhood. Now the group of people with disability is more diverse. So, some people are well educated and so they work for some big IT companies which are more open for us. And more importantly is that people with a disability can go outside to use the public transportation and also go shopping, and so the common people become more familiar with them. [...]”
“There were many public demonstrations before 2012, some of them legal, some of them illegal, and many of them broken up by the police. I remember there was a huge demonstration of wheelchair users in Anhui Province in about 2009 for various reasons, because people were being denied accessible homes. So, there was a big public movement at that time. And that’s all stopped. You do not see public activism or protest any longer in China. But what you do get is people working in much more subtle ways. ” (podcast, with transcript, Mar, BBC) (Mar, BBC)
China excels at the Paralympics, "but its disabled citizens are fighting for access. " Like many other countries doing well at the Paralympics, eh. (Jan, NPR)
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Colombia’s journey to produce disability statistics (Feb, Data 4 SDGs)
Mother says teacher offered her money to take her autistic daughter out of class (in Spanish, Feb, Blu Radio)
Cultivating Autonomy Colectiva Polimorfas: ‘Donors should listen. That’s the number one thing,’ says Yoli. ‘That’s what we do ourselves – we listen to the voices of people with disabilities that may be different from ours.’ (link to pdf, May, Mama Cash)
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From hospitals back to life An in-depth feature on pyschiatric institutions. "I've been in the hospital since I was eighteen. I'm eighty-one now." (in Czech but google translate seems to make sense, Jan, iROZHLAS)
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An unreported crisis: experiencing worst drought in fifty years (Jun, Age International)
Webinar on Who Eats Last? The impact of Food Insecurity on People with Disabilities in the Horn of Africa. (Jun, IDA CRPD Forum)
Urgent action needed to stop famine and the annihilation of pastoralism in the Horn of Africa, older people warn (devastating testimonies). (Jun, HelpAge)
Legislator Revives push for regional law (Mar, The New Times)
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Loneliness and Social Isolation Among Older People (Jan, UNFPA)
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Cairo sidewalks to be enhanced to enable access to persons with disabilities (Nov, Egypt Today)
Fingerspelling Systems in Egyptian Sign Language (Jun, North African Linguistics)
The Central Bank of Egypt introduces plastic money in Braille (in Arabic, Jul, Banky)
First e-library for blind people launched in Alexandria (Feb, Disability Insider)
Sheikh Imam: Voice of Dissent Profile on a blind oud player his music and politics from the 60s-80s and how they resonate through history and the Middle East today. (May, KC Network)
Egyptians with disabilities enjoy swimming at dedicated Mediterranean beach (Jul, Global Times)
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A rapid review of Disability inclusion for refugees in Ethiopia: an urgent need. One refugee from Jewi Camp, Gambella, said:
“The refugee camp is in rural area with harsh weather condition…It is extremely humid…. sitting on wheelchair for long time burned my back. It is very difficult to move around using wheelchair. In addition, the physical environment is not straight and flat to easily move round using wheelchair. I am sometimes trapped in ditches.” (May, Research and Evidence Facility)
Strengthening OPDs in Ethiopia increases impact and value for money: "For every $1 provided by CBM, FEAPD have generated approximately a staggering $14." (Nov, CBM Australia)
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The European Accessibility Act: came into effect in 2019 and “Member states must pass the necessary implementation laws by June 28, 2022” (May, Forbes)
World Elder Abuse Awareness Day: ways forward. (Jun, Age Platform)
Policy brief revisiting Mainstreaming Ageing: "A more effective integration of ageing into all policies at all levels will enhance societal preparedness for population ageing and benefit all age groups." (Feb, UNECE)
An important collection of synthesis reports on COVID-19 and people with disabilities assessing the impact of the crisis and informing disabiliyt-inclusive next steps. (Jul)
Joint Statement on the Social Climate Fund the fund “must be a transformative instrument tackling structural injustices” (Mar, EDF)
Implementing the Right of People with Disabilities to Participate in Cultural Life across Five European Countries: Narratives and Counternarratives. Research in Austria, the Netherlands, Poland, Portugal and Sweden:
“[This article] contrasts official narratives, which highlight good practices and steps taken to improve access to culture, with counternarratives that reveal a fragmentary approach to cultural participation of persons with disabilities, persisting barriers, limited recognition of artists with disabilities, and the perpetuation of stigma and stereotypes.” (Jun, Journal of Human Rights Practice)
A Narrative Literature Review of Barriers and Facilitators to Cultural Participation by People with Disabilities. Covers legislation and policies, funding and services, attitudes, accessibility and gaps in consultation.
"While adopting binding accessibility standards is important, to the extent that this results in a checklist approach to addressing barriers, it is unlikely to be sufficient. This is especially so given that existing guidelines can restrict themselves to addressing particular disability types and that many barriers occur in the realm of attitudes and lack of knowledge of a range of actors and in approaches to education. Moreover, standards alone are unlikely to address the need for support and interaction that seems necessary to facilitate access and participation, particularly for some groups such as people with [intellectual disabilities]." (Feb, Scandinavian Journal of Disability Research)
The European Blind Union is disappointed at first MEDIA calls for proposals 2022 European Commission calls for proposals to support the audiovisual industry did not live up to good practices on promoting accessibility. (Feb, EBU)
The Digital Services Act will create second-class internet users. (Jun, EDF)
The European Accessibility Act's June 2022 Deadline "the member states of the European Union must create their own digital accessibility law per the European Accessibility Act" (Feb, BOIA)
Civil society and EDF reacts to European Parliament’s Artificial Intelligence Act draft Report urging safeguarding people's rights in AI legislation. (May, EDF)
The Digital Services Act must ensure accessible digital services for persons with disabilities (Apr, Brussels Morning)
EDF welcomes regional roadmap to resilience on the adoption of the European Forum for Disaster Risk Reduction (EFDRR) Roadmap 2021-2030, which recognises persons with disabilities are more at risk during such crises. (Dec, EDF)
Review of Disability-inclusive Disaster Risk Reduction Policy across Europe and Central Asia. As well as countries with informal links with organizations of persons with disabilities, Italy and Serbia have disabled people's representatives engaged formally in working groups on disaster management. No country systematically disaggregates information by disability in DRR information systems. See also a collection of further resources on disability-inclusive disaster risk reduction. (Dec, EDF)
Social Protection and the Welfare State: What the EU can do to support persons with disabilities (Mar, EDF)
Rebuilding for sustainability and resilience: strengthening the integrated delivery of long-term care. “ European countries must reorient care models to emphasize person-centredness, user involvement, prevention, healthy ageing and enablement. ” (WHO)
The time to care about care: Responding to changing attitudes, expectations and preferences on long-term care in Europe.:
“Since 2007, the ability of care systems to adequately address evolving care needs has declined: residential care is unaffordable for many, and the supply of community-based services is falling considerably behind a rising demand. Rural communities and poorer individuals bear the brunt of growing capacity gaps, while women are disproportionately affected by the burden of frequent, intensive and undesired informal caregiving spells. ” (link to pdf, Apr, InCare)
Roadmap for user centered funding for long-term care and support. (Mar, UNIC Project)
Better Health, Better Lives? 10-Years on From the World Health Organization’s Declaration on the Health of Children With Intellectual Disabilities (Mar, Journal of Intellectual Disabilities)
Working at EU institutions not easy for ethnic minority staff “Working for the EU institutions is no walk in the park for people of colour or with disability, with almost 60 percent of respondents from both categories saying they have observed or experienced discrimination.” (May, EU Observer)
The right to work: enabling people with disabilities to thrive in the job market (Feb, Euronews)
Addressing the invisibility of women and girls with disabilities (Apr, Council of Europe)
On the European Regional Disability Summit and positive participation of European leaders. (Feb, EDF)
EDF position paper Recommendations on cancer screening and treatment. "Unfortunately, the mention of persons with disabilities in EU policies does not translate into concrete actions to ensure their equal access to cancer screening and care, and to address the pre-existing inequalities and factors putting them at higher risk of cancer or inadequate care." (Feb, EDF)
Policy brief on disability-inclusive health systems Highlights greater risk factors in health, limited service delivery and poor health outcomes. (WHO)
Refugees in Europe Need Mental Health Support (Apr, Human Rights Watch)
Deinstitutionalisation, disability and delay “After a decade of inertia, the EU has made little progress on the deinstitutionalisation of disabled people.” (May, Social Europe)
A Call for Change Role of the European Union funding in supporting deinstitutionalisation around the world. "The EU is in a particularly strong position to promote deinstitutionalisation reforms during the process of EU enlargement. " (Feb, EDF)
Inclusion Europe's 2022 Campaign is to End Segregation.
“The situation of people with disabilities more generally has improved over time. However, this is not true for all people and more limited for people with intellectual and developmental disabilities, who are more likely to be living in segregated or congregated settings and less likely to be experiencing real inclusion.” (Jan, Inclusion Europe)
Lack of inclusion of people with disabilities is worrying exclusion at the Conference on the Future of Europe (Dec, Euractiv)
What about young persons with disabilities? Key issues for how the European Year of Youth should include young people with disabilities. (Dec, EDF)
Does the future of Europe include disability? The Conference on the Future of Europe failed to address persons with disabilities. (May, Social Europe)
UN expert hails EU commitment to disability rights The Special Rapporteur's initial findings on his review of disability in Europe, celebrating efforts taken, and raising concern that some funding is still going to institutional arrangements for persons with disabilities. (Mar, OHCHR)
President of the European Parliament committed to work on improving the rights of Europeans with disabilities. (Mar, EDF)
Improving Accessibility and Access to Rights – Implementing the Strategy for the Rights of Persons with Disabilities 2021-2030. (March, EU France 22)
Joint Briefing for United Nations Committee on the Rights of Persons with Disabilities regarding the review of the implementation of the CRPD by the EU. "The EU has not taken enough measures to address equality and non-discrimination in its legislation and policies, and in particular to address intersectional and multiple forms of discrimination. " (Feb, EDF)
Political participation of persons with disabilities: what you need to know ahead of the 2024 European Elections. (May, EDF)
Human Rights Report 2022: political participation of persons with disabilities. Exploring the right to vote and the right to be a candidate in elections, the report finds some emerging good practices against a concerning backdrop:
“In the 2019 European Parliament elections, approximately 400,000 persons with disabilities in 14 countries were deprived from their right to vote on the basis of their disability.” (May, EDF)
The EU Parliament proposes a new electoral law ensuring the political rights of persons with disabilities. (May, EDF)
Action needed on voting rights, disability rights and free movement (Jan, European Interest)
Disability rights activists fight for access to cities' Pride events “People with disabilities who face barriers accessing Pride events and LGBTQ+ spaces say they're made to feel like a 'double minority.'” (Jun, Politico)
I appreciated this newsletter from Inclusion Europe updates on inclusion of people with intellectual disabilities in Europe albeit the subscription link is broken (Feb, Inclusion Europe)
Solidarity platform for people with disabilities (May, Inclusion Europe)
European Commission allocates €9 million for mental health assistance of Ukrainian refugees (Apr, EC)
the European Union Agency for Asylum Response to the War in Ukraine (Apr, EUAA)
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Salaries for disability professionals to increase but unlikely to be enough to calm a crisis. (Feb, Faire Face)
Afghan Evacuees Need Mental Health Support (Mar, Human Rights Watch)
The 2021 report of the Defender of Rights shows disability as the most frequent claim of discrimination (in French, Jul, Faire Face)
Pressure mounts on French disabilities minister accused of rape “In an earlier statement denying the allegations, Abad said his own disability meant he was incapable of sexually assaulting anyone.” (May, France 24) I don't know more than what's in this article, but I don't buy the disability excuse.
For the elections, a campaign 23 Million Voices of persons with disabilities and caregivers in France to remind politicians of the essential measures to integrate into their campaign program. (Mar, APF France Handicap)
Communication of the CNCPH on the protection and security of persons with disabilities in Ukraine (in French, 4 Mar)
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Nina’s story: How assistive technology is improving her quality of life (Jun, WHO)
Situation Analysis of the Rights of People with Disabilities Describes legislative and policy progress but "despite these changes, little has improved in the daily lives of many persons with disabilities in Georgia". (Jan, UNDP)
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'The court found the legislature had failed “to take measures to ensure that no one is at risk of being disadvantaged on the basis of disability in the allocation of life-sustaining treatment if shortages in intensive care resources arise.” The court ordered lawmakers to introduce stronger measures based on the constitutional right to nondiscrimination. They should consider disability rights training for medical staff and the creation of stronger procedures to identify disabilities.'
Blind Syrian granted asylum, is allowed to stay in Germany (Jun, InfoMigrants)
A lawyer sues the Ministry of Transport to ensure access to trains. (in German, Feb, Rollstuhl Kurier)
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How inclusion ambassadors are reducing disability stigma and discrimination (Apr, Sightsavers)
Criminal justice in Ghana as experienced by people with disabilities: “we found that the criminal justice system was unfriendly toward persons with disabilities due to factors such as lack of funds, inaccessible physical environments, language and communication barriers, and negative attitudes toward persons with disabilities” (Apr, Journal of Human Rights)
Mental Health Quarters is a youtube channel on mental health advocacy.
Learn How the Ghanaian Disability Rights Movement is Influencing National Policy. (Apr, DRF)
A town had banned deaf people from marrying each other one couple defied the decree for love. (Apr, BBC News Africa)
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Cooperation Protocol signed with the Ministry of Tourism to promote accessible tourism. (in Greek, Mar, National Confederation of Persons with Disabilities)
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Greater Inclusion Necessary for Haitians Living with a Disability (Dec, World Bank)
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Discussion of a research and community project that took Multidisciplinary Approaches to Disability from late 9th to early 20th Century:
“the “Disability before Disability” project recognized the vital relationship between disability communities in the past, present, and future. [...] The project provides representation of people who lived with physical, mental, and/or sensory differences across Iceland’s history not simply as a homogenous group defined by one common experience but as individuals with their own unique lives and stories. Responsible historical disability representation affects both society as a whole and disability communities, with the latter having a valuable opportunity to see their experiences reflected in the past.” (May, Scandinavian Journal of Disability Research)
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Uncertainty over Accessible India Campaign deadline seven years of work to increase accessibility of government buildings, public transport and websites. (Jun, The Hindu)
Mumbai: Living with a disability in the megacity (Mar, Aljazeera)
Lessons from Chennai on accessibility for the disabled (Jan, New Indian Express)
Delhi Police to visit homes of senior citizens every evening (Jul, Devdiscourse)
Food Delivery Service With A Difference: This Motorised Wheelchair “Gives Wings To People With Disabilities” (Jun, NDTV)
Covid scare keeps blind students away from school (Jul, Deccan Herald)
Interview with Alice Abraham, a young woman from Kerala “regarding the impact of climate change on her life and her disability.” (Jul, The Sangyan)
An ICT4 Inclusion Challenge on mitigating the impact of climate change on people with disabilities (May, ICT 4 Inclusion Challenge)
Will ‘Jalsa’ Improve Disability Representation in Indian Popular Culture? (Mar, BBC) See more on Surya Kasibhatla, the actor with cerebral palsy that stars in the thriller.
Data Gaps: Undercounting Disability In India Explores issues with surveys, disability certification and the unique disability id scheme. (Jul, IndiaSpend)
Factsheet: Disability In Jharkhand results from the National Family Health Survey showing less than 1% of the population having a disability. (Jun, The Sangyan)
State of digital accessibility in India (Dec, Financial Express)
Status of Disability Inclusion in Disaster Risk Management (Jun, The Sangyan)
In Tamil Nadu, Unique Disability Identity Cards go missing (Jun, DT Next)
Tangled In Red Tape, The Disability ID Card Process Is Steeped With Gender Barriers. As well as some of the expected implementation issues, this in-depth article discusses how "these problems multiply for women and transgender persons with disabilities." This includes a striking gap in disability card holder percentage of men and women. (Feb, Behan Box)
Around 71% of govt schools across country made "disabled friendly" according to Ministry data (Jun, Times of India)
For kids with disabilities, the pandemic may have been a reprieve “If not going to school has given them their first taste of learning in a safe and happy place, then schools have to be made safer and happier now that they are heading back” (Mar, Indian Express) I'm sure this doesn't generalize, but great to see cases of people who had a better time.
Enabling Inclusive: Best Practices in Disability Inclusion in Manufacturing Sector (link to pdf, Mar, IBDN)
The Supreme Court bats for disabled people in police force. “Experiment it for a while and if it does not work then you may not continue with it.” (May, Times of India)
Trans Persons With Disabilities Lack Enabling Social Systems and Healthcare Support: “the medical fraternity is patronising and insensitive towards their healthcare needs. It does not help that families, already struggling to cope with their disability, find it hard to come to terms with their gender identity.” (Jun, BehanBox)
Women With Disabilities Have To Constantly Negotiate Between Isolation And Intrusion
“We noted in our conversations with women with disabilities that they experience social isolation and the invasion of privacy simultaneously. Their body becomes available to other people — parents, doctors, nurses, physiotherapists, groups of medical students doing the round of wards, for example.”
Can a Blind Doctor Become a Psychiatrist? discussion of a case that has reached the Supreme Court. (Feb, The Wire)
Don't Mourn For Us, an advocacy poem by Aishwarya Othena (on Youtube, Dec, Rising Flame)
The Long-Run Effects of Psychotherapy on Depression, Beliefs and Economic Outcomes:
“We revisit two clinical trials that randomized depressed adults in India (n=775) to a brief course of psychotherapy or a control condition. Four to five years later, the treatment group was 11 percentage points less likely to be depressed than the control group. The more effective intervention averted 9 months of depression on average over five years and cost only $66 per recipient.” (link to pdf, May, Bhat et al)
Passengers with special needs: “A wheelchair is not what my sister needs at an airport” (Jul, The Indian Express)
Anger after India airline IndiGo removes disabled teenager “India's aviation minister has said he is investigating a domestic airline after it allegedly refused to let a disabled teenager board its flight.” (May, BBC)
Representation to West Bengal Transport Authorities on procurement of accessible, low floor buses. (Mar, Freedom of Movement Coalition)
Government advisory board on disability not re-constituted since November 2020 (Jun, The Hindu)
Desire, Sexuality And Choice: Disabled Indian Women And Queer Persons On Their Experiences. “I never stopped to think whether I liked them or not. I was just glad that someone liked me. I didn’t feel I had the right to say no. I thought ‘I will figure out how to like them too,’” (Mar, BehanBox)
Why It Is Hard For Disabled Women, Queer Persons To Leave Abusive Partners (Jun, BehanBox)
An impressive series of collaborations for Cripplentines Week 2022 "Cripplentines is rooted in the belief that all kinds of love should be celebrated". I particularly enjoyed picking out my favorite lipstick for you: "We deserve rough sex, slow sex, sex that makes us forget the ableist world for a while, sex that is loving, sex that values our disabled bodies." And the article on the space to dream of disability affirmative love:
"As single disabled young adults navigating (or trying to navigate) dating during a pandemic, there is so much despair and frustration. Yes, there are plenty of fish in the sea, but most of the fish are ableist and would rather not wear a mask because 'the omicron wave is mild, ya'."
“I am disabled, it doesn’t mean I have no dignity” (Jan, The Lancet)
Disability, Gender, Violence, Home and the City 'Nidhi Goyal takes us beyond keywords' with interesting reflections on a range of subjects, illustrated with concrete examples, from her experience of the city, the relations between access and safety, and the home itself:
- "To access a city space, I invite someone in my physical space, and allow them to touch me. [...] I disconnect my arms from my body, because I have to offer my arm to every stranger I meet."
- How disability shows us new forms of exclusion and violence, whether a family not speaking in sign language, or "for a disabled women, domestic violence is not giving her medications on time, putting away her assistive device where she cannot reach by herself, without asking her."
- Whether this is about getting dressed, whether to go out: "We don't consider that taking consent from a disabled woman is required at all." (Dec, Third Eye Portal)
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Information gap affecting the disabled (May, D+C)
How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia (Dec, Qualitative Health Research)
Government commits to expanding social assurance coverage for disabled people. (Jun, Antara)
The Hurdles to Disability-Inclusive Education (Jun, Jakarta Globe)
New skills helped my business recover from pandemic. Feature trainings for entrepreneurs with disabilities. (Feb, ILO)
CBM kicks off work to improve mental health institutions. (Feb, CBM) Unclear how this fits into a process of deinstitutionalization.
Disability Rights: A guide to monitoring compliance (Apr, Formasi Disabilitas)
Sticks and Stones Naufal Asy-Syaddad Encourages Other Young Indonesians with Autism to Know Their Rights (Jul, Disability Justice Project)
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‘We exist but we are ignored’: The Iranian disability rights activist on a mission to change things. (Mar, Independent)
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Fact sheet on Accessible documents for persons with vision impairments and persons with low vision in Iraq. (May, IOM)
Testimonials from the Bridge CRPD-SDGs Training "I have never seen a training so inclusive". Everything I've heard from people that have gone through this training around the world is extremely positive. (Nov, IDA)
Understanding Gender-Based Violence Service Barriers to Disability and Older Age Inclusion in Iraq. (Jan, Heartland Alliance) See also the blog on inclusive research methodologies.
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New grassroots organisation aims to change perceptions of disability with 'radical' events (Jun, Irish Examiner)
Government must not forget disabled people in this cost of living crisis (Jul, The Journal.ie)
Data accessed in Rehab disability group cyberattack (Mar, Irish Times)
disability and rehabilitation at the heart of its health system reform (Mar, WHO Europe)
Maeve McCormack Nolan obituary: Celebrated artist and disability advocate. (May, Irish Times)
Concern over future safeguarding incidents at disability services raised in Donegal review (Apr, The Irish Times)
Does Representation Miss the Point When it Comes to Creating Body Diversity in Fashion?
"Looking back on my relationship with my body—and perhaps more importantly, the world’s perception of it—it makes sense that I gravitated towards the fashion industry. Even in my teenage years, I knew that clothes could be used as a vehicle to create change. [...] It was also disappointing that such efforts were needed for people to see me the way I wanted to be seen." (Mar, Vogue)
Disabled Women Ireland Statement on supporting disabled people arriving from Ukraine (DWI)
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“The Internal Police Officer Has Not Retired but Has Slowed Down”: Israeli Women Reframe Their Ageing Experiences in the Second Half of Life (Jan, Journal of Applied Gerontology)
The Vulnerability of Emerging Sign Languages. An article on how Kufr Qassem Sign Language is merging with Israeli Sign Language as its users show a preference towards ISL. (link to pdf, Feb, MDPI)
Making Israel’s history and heritage accessible for all (Feb, Jerusalem Post)
Editorial on a government bill that allocates funding for disability inclusion: A major achievement for Israel (May, Jerusalem Post)
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Embracing and rejecting the medicalization of autism (Feb, Social Science and Medicine)
How a photo of a Syrian father and son led to a new life in Italy (photo shows father and son both with physical disabilities) (Feb, the Guardian)
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Japan’s Transit System and its efforts on disability access (Jun, Bloomberg)
Candidate with severe disability wins seat in Japan's upper house (Jul, Disability Insider)
Interview with Eiko Kimura "the first person with a severe disability who is a member of the House of Councillors in Japan" (Jan, Equal Entry)
Interview with Eiko Kimura, member of the Japanese Congress. (Nov, Disability Visibility Project)
Japan court awards damages to victims of forced sterilisation for first time three plaintiffs, in their 70s and 80s, receive payouts. (Feb, the Guardian)
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Government update on use of the Washington Group questions in the census and other surveys. (link to pdf, Feb, United Nations Statistical Commission)
Language in Medical Worlds: Hearing Technology for Deaf Jordanian Children "The focus on the acquisition of orality and speech for deaf Jordanians, to the exclusion of other forms of language and communication, can result in deaf Jordanian children not being able to communicate—in any modality—as well as their having a diminished sense of belonging to broader deaf collectivities." (Jan, Medical Anthropology)
Jordan’s sole refuge for people with disabilities risk closure as COVID-19 dries up donations (Jan, Global Voices)
‘Amman is a prison’: Rise in suicides highlights mental health crisis in Jordan: ‘Instead of addressing the structural problems, the government is trying to punish and repress the symptoms of the crisis.’ (Jun, The New Humanitarian)
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A new book: Disability and Social Justice in Kenya Scholars, Policymakers, and Activists in Conversation. “Kenya has been on the forefront of disability activism and disability rights since the middle of the twentieth century.” (Michigan Publishing)
Profile of John Wambua of the United Disabled Persons of Kenya. (Mar, Inclusive Futures)
Include persons with disability in climate action plans (Jan, The Standard)
Govt Offices to Start Using Sign Language in New Law (Jan, Kenyans)
Short video feature on Julia Ayen a Refugee artist “proving to the world that disability is not inability” (Jun, Citizen TV Kenya)
Report Highlights Increased Usage of Mobiles (May, Global Accessibility News)
We have ignored the plight of persons with disabilities (Apr, Nation)
What are the additional costs of living to people with disabilities? (Feb, Development Pathways)
Social protection for disability inclusion in Kenya See also synthesis paper that compares Uganda and Kenya. (Dec, Inclusive Futures)
Youth with disabilities decry costly learning equipment (Jun, The Star)
Are ALL Our Children Learning Uwezo Learning Assessment 2021 "1 in 5 girls with disability dropped out of school due [to] Covid-19 enforced schools' closure". (Feb, Usawa Agenda)
New $6 million Inclusive Futures programme launched which "aims to increase the inclusion of people with disabilities, particularly women, and improve labour rights at two large Kenyan companies. " (Mar, Inclusive Futures)
Unemployment in women with psychosocial disabilities during the COVID-19 pandemic: Lessons from Tana River County. "We found that the pandemic worsened their experiences of work and employment, and they did not receive any social welfare or support from the government." (Feb, Journal of International Development)
Safaricom in partnership to offer internships for People with Disabilities (Feb, KBC)
Business as Unusual Disability inclusion practices of private sector employers. (Dec, Kenya Business and Disability Network)
Profile of Easter Achieng (Mar, Inclusive Futures)
A fundraising appeal to support people in Kenya paying the devastating price for a climate crisis they have done nothing to create. (CBM UK)
Myth busting: a film made by Kenya OPDs (Mar, i2i)
Short video on participation in development projects Inclusivity in Kenya Meru Inclusive Trachoma (MINT) Programme (Jan, CBM Global)
Open letter to Kenyan Disability league leaders: “When will you rise to the occasion?” Argues that so far progress has been “low-hanging fruit” and ”having a few of persons with disabilities in to the system but not yet more robust gains for the Kenyans with disabilities.” (Apr, Mugami Paul)
Citizen Reporting series features small business owner's COVID-19 story (Mar, Inclusive Futures)
Kenyan activist Ashura Michael fights for disability and gender rights (short interview, no transcript, Feb, BBC)
Kenya Mental Health Investment Case 2021 Providing Evidence for the Long-Term Health, Social and Economic Benefits of Investment in Mental Health.
“Kenya has a standalone mental health policy, and efforts to review the outdated mental health act are on-going. [But] Mental health services are scarce and inaccessible, the
mental health workforce is limited, and budgetary allocation to mental health is inadequate.” (Jun, Ministry of Health)
Alienation in three parts: mental health in Kenyan women activists (Jun, ROAPE)
How Visually Impaired Kenyans Will Cast Their Votes (Jul, Kenyans.co.ke)
Blind Kenyan singer goes to court over rejected presidential candidacy. “A gospel singer who wants to be Kenya’s first disabled presidential candidate has brought a case in the country’s courts after being barred from the electoral race.” (Jun, the Guardian)
Experiences of Women and Girls with Disabilities around Gender Based Violence and Sexual Reproductive Health Rights. Surveys show women and girls with disabilities having faced a form of violence and that “the perpetrators of these heinous acts are mostly people known to the victims.” (Jun, Kenya Network of Women and Girls with Disabilities)
Interventions around Menstrual Health and Hygiene Must Be Inclusive of Women and Girls with Disabilities:
“The most rarely spoken about is how menstrual product manufacturers overlook consumers with disabilities. Most sanitary pads, tampons, or menstrual cups are not a better fit for women and girls who use assistive devices or have no limbs (hands and/or legs).
For women and girls who use prosthesis legs, wheelchairs, calipers, or crutches, the sanitary pad cannot be properly kept in place, which in the process causes leakage or even worse falls off during movement. Those without hands or fingers also find it difficult to tear the packet and insert the sanitary pad into their panty or insert the tampon or menstrual cup correctly.
Availability and high cost of menstrual products pauses a challenge to women and girls with disabilities in the rural areas causing them to opt for alternative solutions such as using rags, leaves, animal skins, and even cow dung that exposes them to multiple infections.” (May, Kenya Network of Women and Girls with Disabilities)
Forced to Beg: a video feature on disabled children trafficked from Tanzania and made to beg in Kenya. One of the alleged ringleaders is a disabled guy himself. Distressing images. (Jun, BBC)
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A Talk with Reema Humood: Multiple Sclerosis and its Literary Representation.
"The love of caretakers who don’t mean to suffocate you, but they do with their worries and fears, and the injustice and discrimination against people like me, rejecting us, excluding us, denying us the right to be…I discovered there was ‘us’ against ‘them’, the sick ones and the healthy ones, each group gazing at each other, afraid. Any attempt at meshing together, at understanding each other, stops and sinks in muddy waters" (Mar, Arab Lit)
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The Zero Project Latin America conference on Accessibility and ICT was held on 25th/26th May and sessions can be watched online. (May, Zero Project)
The path to inclusive local development good practice guide to the social and employment inclusion of young persons with disabilities (in Spanish, Dec, CEPAL)
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Sudanese refugee with disabled son: 'UNHCR Libya does not answer my calls'. After a journey through Chad and Egypt they faced imprisonment in Libya and are searching for assistance. (Feb, InfoMigrants)
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Crisis in Madagascar worsens following massive storms (Feb, CBM Australia)
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Age related increase in impairment across the life course: the use of Zomba curves to estimate assistive technology needs.
Mismanagement of public resources affecting healthcare of people with disability (Jul, Malawi24)
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A survey of over 700 people to examine opinions of the disability community regarding factors that influence their voting behaviour and disability issues that are important to them. Key priorities identified were employment, education, and enforcing rights. The study also shows reasons people did not register for disability cards: they were not aware of it, worried it might lead to stigma, or did not see how it would help them. (Make the Right Real) See coverage on Free Malaysia Today.
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Access to the Disability Allowance in the Maldives: National coverage and factors affecting uptake: “This research found that 25.6% of people with disabilities across the Maldives are receiving the Disability Allowance. Coverage was lowest for women, older adults, people living in the capital (Malé), wealthier households and people with sensory impairments. Factors affecting uptake included lack of information about the programme, perceptions of disability and eligibility criteria, geographical and financial factors, and stigma.” (May, Global Social Policy)
Process evaluation of the Disability Allowance programme in the Maldives. “Most importantly, the absence of linkages with the Medical Welfare scheme that provides assistive devices potentially limits the likelihood of the programme achieving intended objectives.” (Mar, International Social Security Review)
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Women’s Disability Rights Should Not Only Exist on Paper: “demanding inclusion in services provided for women, particularly related to gender-based violence.” (Mar, Human Rights Watch)
Manual on Justice and Persons with Disabilities a reference for judges and others in the legal system to apply a rights-based approach to disability. See also a launch event on youtube. (in Spanish, Dec, Supreme Court)
Mexico Bill Would Further Endanger Disability Rights “Right to Make Decisions Should Not Turn on ‘Capacity’” (Apr, Human Rights Watch)
Statements Urging Stronger Political Representation for People with Intellectual Disabilities (May, Human Rights Watch)
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Can review of the Madrid Plan on Ageing (MIPPA) Benefit the Middle East and North Africa (MENA) Region? (Feb, Population Ageing)
Arab Civil Society Organizations and the Issue of Disability, Inclusion and Sustainable Development (link to pdf, UNDEF)
Meet Ameera, Sesame Workshop’s Newest Muppet Friend a young girl that uses a bright purple wheelchair and forearm crutches. (Mar, Sesame Street International Social Impact)
Toxic positivity harms the disabled community (Apr, The National News)
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Give people with disabilities a chance to work experience of a woman with disability working at an electronic systems company. (Mar, ILO Voices)
Rapid Needs Assessment of Older Refugees
"Only 22% of older people interviewed had a disability. This is surprisingly low and may reflect that many of those with a disability have found it harder to flee their homes. Agencies should be prepared in coming weeks for older people arriving who need assistive aids such as hearing aids, wheelchairs, and incontinence pads, which may have been left behind, lost, or broken along the journey. " (link to pdf, 10 Mar, Help Age)
"I want to go back" testimonies from older people who left Ukraine. (11 Mar, Help Age)
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Last to flee: Older people’s experience of war crimes and displacement:
“The renewed fighting in 2020 underscored the unique risks of a particular group: older people. More than half of the ethnic Armenian civilians who were killed were over 60 years old. The oldest was 89. Many faced torture or other ill-treatment in detention. Others are still missing.” (May, Amnesty)
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A case study on Nepal’s changing climate and its impact on communities including persons with disabilities “I have never seen anything
like that in my whole life. The whole earth was shaking. Other people went
uphill as the flood started to rise. Later, I went up with the support of my
son-in-law too. I came here looking for better access to the market and
other facilities. But I lost everything. I am an old man with a physical
disability, it is very difficult for me now” (Jul, CBM Global)
Nepal’s first PhD candidate from the deaf community campaigns to promote Sign language (May, Nepali Times)
The eye and the other: Language and ethics in deaf Nepal (Mar, American Anthropologist)
How schools are including children with disabilities (Apr, UKFIET)
Books adapted into Nepali Sign-Language by Let's Read Asia with the Nepali Government (Dec, All Children Reading)
Lived Employment Experiences of Persons with Physical Disabilities: “over-protective behaviour from family members, discrimination by employers in recruitment, and continuance in employment were barriers.” (Apr, Scandinavian Journal of Disability Research)
Disability and Gender: Lived Experiences of Economic Hardships Faced by Women with Disabilities from Sudurpaschim Province (Apr, International Journal of Social Sciences and Management)
My Lens My Reality a photovoice study on the rights of women with disabilities. Appreciated the slippers that illustrate inclusion and exclusion (p16): “The slippers symbolize there are many members in the family. Dad, mom, brother, sister who are actually going outside to work. And me, I’m inside, with my disability, I was always in my room.” (Mar, SDDC) Some great pictures in here - first time I saw a pic of slippers that illustrates exclusion (on page 16).
Chhaupadi practice puts women with disabilities at higher risk On the practice of isolating women while menstruating: “Disabled girls and women are more prone to getting sexually violated while staying away in chhau sheds.” (Jul, Kathmandu Post)
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Reducing prejudices about people with disabilities interesting to see that it doesn't approve of the simulation exercises (in Dutch, google translate makes some sense, Jan, Movisie)
An interview about Haltebuddy: personalizing accessibility information in public transport. (Jan, Amserdam Intelligence)
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Government won't enforce accessibility, despite promising legislation to 'make NZ more accessible'. (Jul, Stuff)
Another month, another report on disabled people's housing “but is the government listening?” (Jun, RNZ News)
Mixed response from disability advocates over Covid welfare support funding. (Jun, Stuff)
Reporting on an inquiry into how government response to the Omicron wave impacted disabled people: they "do not appear to have been given prominence in government policy and decision making," (May, RNZ)
Ministry of Health 'so far removed from the day-to-day lives of disabled people' (Mar, RNZ)
'Oh well, we'll all get it' attitude to Omicron ignores increased risk to people with disabilities (Mar, Stuff)
For those of us with disabilities, lockdown won’t end as long as Covid strategies leave us behind (Dec, the Guardian)
Blind Scrabble master takes on the country's best (Apr, Stuff)
Stay home club “Making remote portraits of New Zealanders in isolation—using only their phone cameras.” (May, New Zealand Geographic)
How the government asked for social welfare advice, got it, ignored it, and the impact on people with disabilities. (Jun, Stuff)
Disabled people missing out on 'essential' support over relationship status (May, Stuff)
Woman wheeled herself to hospital when ambulance couldn't take her wheelchair (Jul, Stuff)
Girl, 12, denied residency because her autism does not meet 'acceptable standards of health'. (Apr, Sky)
New Zealand denies entry to autistic daughter of immigrant couple. “Rules do not allow people to move to New Zealand if they would impose a high cost to the health system”. (Apr, the Guardian)
Time to scrap ableist migration rules down under Áine, contributor to the Debrief, arguing for fair migration rules. (Apr, Overland)
Immigration policy discriminates against disabled “It’s become commonplace to read news stories about people with disabilities who have been denied New Zealand residency and face deportation.” (Mar, Stuff)
Government won't review 'discriminatory' immigration policy towards disabled people. (Mar, Stuff)
Abuse in Care: “Men raped disabled children, paid staff for access”. Testimonies from a commission of inquiry into institutional care. Further coverage at: 'a prison with no bars' and 'you can't walk away from this'. (Jul, Stuff) Also on NZ Herald: 'hellhole, worse than prison'
Chief Ombudsman scathing of environment at Wakari Hospital ward "We're mixing in this facility – not just patients who are mentally ill and need caring for – but we’re mixing them with those who come from a different forensic stream who have been involved in criminal offending and who are there for a very different reason; it’s not safe." (Feb, 1 News)
He Purapura Ora, he Māra Tipu. A report on survivors of abuse in care, their efforts to restore their lives and hold governments to account. (Dec, Abuse in Care Inquiry)
Human not machine: how autistic writers are writing new space for themselves:
“Why are autistic people so attracted to these magical or other-worldly connections? Most of us experience loneliness and isolation – and if we are repeatedly rejected by humans then the idea of friendship with ghosts or aliens may almost seem less far-fetched.
“It’s also the fantasy we might be able to meet someone else on equal terms; both of us having to adapt to and learn each other’s way of communicating, rather than always having to be the ones who make the effort, exhausting ourselves to the point of burnout.” (Apr, The Spinoff)
Not Built For Me: Freedom, frustration in navigating public transport with a disability (Mar, Stuff)
Disability advocates frustrated over feedback process for accessibility legislation (Jan, Stuff)
Appointment irks disabled community Ministry for Disabled People sees major appointments of people who do not identify as disabled. (Jan, Otago Daily Times)
More guidance needed for health providers on learning disability competency and sex education (Apr, Stuff)
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Childhood disability in rural Niger: a population-based assessment using the Key Informant Method. (Mar)
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Lagos: Life with a disability in the African megacity (Mar, Aljazeera)
Gaining respect and financial stability: stories from Nigerian women. Village Savings and Loans Associations to help women set up their own businesses and cover expenses. (Nov, CBM)
In a leprosy colony residents endure stigma and neglect. “There are 64 leprosy settlements across Nigeria but most are in varying states of disrepair with little to no funding.” The article describes how conditions have deteriorated in one colony since the missionaries who founded the colony then left, but people have remained, and new support is not sufficient. (Jun, Aljazeera)
Inclusive Education celebrating an amazing partnership & lasting impact (May, CBM UK)
Documentary released on women living with disabilities in mining communities (Jun, Guardian Nigeria)
Albinism group calls for reinstatement of free skin cancer treatment. (May, Radio Nigeria)
Calls Mount For Nigerian Airports To Be Made More Accessible (May, Inclusive News Network)
The House of Representatives passes a bill prohibiting discrimination against persons with disability (Jun, Nigerian Tribune)
Nigerian Disability Rights Acts: 3 years after Prospects and challenges (Jan, Pulse NG)
Lagos Govt Reiterates Commitment to People with Disabilities "with the launch of comic books aimed at promoting a friendly platform for disability inclusion." (Dec, This Day)
The Independent National Electoral Commission registers 73,609 voters with disabilities (Jul, Inclusive News)
Nigerians with disabilities seek inclusion in electoral process. (Jun, Aljazeera)
How organisations of persons with disabilities are keeping people safe. Among disability organizations ”there is limited understanding of key concepts of safeguarding, why they are important, and what needs to be in place to operationalise these concepts to keep people safe” (Mar, RSH)
Accessible Sanitation in the Workplace Important Considerations for Disability-Inclusive Employment in Nigeria and Bangladesh (Jan, IDS)
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When you talk about "those who are going to die from something anyway" then you are talking about me. "Aren't I, a human being, worth more than the local pub?" (in Norwegian, google translate makes sense, Jan)
Inaccessible Possibilities: experiences of using ICT to engage with services among young persons with disabilities: even though they're seen as digitally native doesn't mean they can use health and social services online. (Dec, Disability and Rehabilitation: Assistive Technology)
Balancing on a knife-edge: Experiences of older patients with acquired deafblindness when receiving existential care. "The patients can experience empowerment through the maintenance of trust and communion. However, if met with an overprotecting or neglecting attitude, older patients with acquired deafblindness can feel disempowered." (March, Nordisk Sygeplejeforskning)
Norway launched a new strategy for disability-inclusive development 2022-2025. (Feb)
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Organisations of Persons with Disabilities: Making a Difference in Vanuatu and Solomon Islands “It is testament to OPDs’ success that they have become sought-after partners for international agencies in the Pacific”. The report also describes how these agencies perceive and fund the OPD role limits what they can do and makes it harder for them to follow their own objectives. (Jun, CBM Global)
Australian leadership in disability inclusion at the 2022 Pacific Satellite Summit (Mar, CBM Australia)
A short video with nice footage introducing the UN Convention on the Rights of Persons with Disabilities (Jun, ILO)
Know your rights: Gender-Based Violence and Sexual and Reproductive Health during the COVID-19 Pandemic. (link to pdf, Feb, Women Enabled)
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Inequality, discrimination, and exclusion assessing CRPD compliance in Pacific Island legislation (Oct, UN ESCAP)
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Detailed article on care and the situation of persons with disabilities. (Mar, Dawn)
The Human Rights Ministry wants disability quota filled “The ministry for human rights on Saturday wrote official letters to 29 government departments to implement two percent disability employment quota.” (May, Dawn)
Afghan refugee removes obstacles barring kids with disabilities from school The Afgahn Refugee Disabled Union provides wheelchairs to help kids get to school. (Feb, UNHCHR)
Pakistani people with disabilities “It has taken a long time for Pakistan to pass legislation to contend with some of the challenges faced by PWDs” (Jul, Tribune)
Socio-Economic inclusion of PWDs Towards an Inclusive, Accessible & Sustainable Pakistan (Dec, Pakistan Today)
Parliament House fully has been made disability friendly (Dec, Pak NGOs)
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Soldiers handcuff and arrest intellectually disabled teen (13) for two hours, and then arrest two of his relatives and abuse them. (May, B'Tselem)
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Directive to regulate the management of regional and local governments on disability issues (in Spanish, Dec, El Peruano)
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Supporting OPDs Covid-19 response: reflections from the Philippines (Dec, CBM Australia)
On the Debrief: “I'm not rebellious” an interview with Abner Manlapaz, lifelong activist. (May)
The Humanitarian Needs and Priorities identified after Super Typhoon Rai includes mentions of persons with disabilities. (Dec, Relief Web)
Super Typhoon Rai leaves widespread destruction (Dec, CBM Global)
CBM partners with women leaders to create movement of change for disability “we are supporting the establishment of a federation of disability organisations in the Philippines to collect comprehensive data related to disability inequalities”. (Mar, CBM Australia)
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Survey report on 10 principles for successfully employing people with disabilities A mixture of experiences of disabled people, employers, and guidance for businesses to become more inclusive. (link to pdf, Dec, TAKpelnosprawni)
Horror Behind Closed Doors of Polish Residential Institution. “Women and Girls with Intellectual Disabilities Beaten, Tied, and Locked in Caged Bed” (Jun, Human Rights Watch)
Situation analysis on the assistive technology needs of Ukrainian people in Poland. (May, WHO)
Interview with Autism-Poland Association on the situation on the border with Ukraine (Apr, EDF)
Ukrainian families with disabilities get new chance “Ukrainian families are finding better opportunities for their children with disabilities in Poland. Local volunteer organizations help them on their journey to adapt to their new life.” (DW)
Special assistance is needed for some refugees on those with disabilities arriving in Poland (in Polish, March, Rzeczpospolita)
Poland representative stated that mong the over million Ukrainians who arrived fleeing the war, 100,000 are with disabilities, mostly children. They are arriving without basic assistive technologies like wheelchairs, canes, etc. Poland is trying to find Ukrainian sign language interpreters, develop accessibility and support. (9 Mar, Alejandro Moledo) Polish rehabilitation centres are offering their services for free.
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For Diogo, There's a new Metro station in Lisbon. (in Portuguese, May, #Lisboa Para Pessoas)
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Barriers and Opportunities to Employment for Persons with Disabilities (Nov, World Bank)
Tedtalk on How to alter the perception of mental health care in Russia “During the Soviet Union era, therapy was often used as a tool of political oppression. Since then, Russia has seen major reforms in mental health care -- but stigmas and distrust for the practice still live on.” (Jul, TED)
Mental Health Crisis Looms in Russia as Sanctions Fuel Drug Shortages, Job Losses (Mar, The Moscow Times)
A new book, The Broken Years: Russia's Disabled War Veterans, 1904–1921, which shows:
"the question of disabled veterans became bound up in broader political and social debates in the early twentieth century and fostered health care and social welfare policy. The experience of these 1.14 million war veterans reconfigured notions of heroism, sacrifice and patriotism while the period of 1915-1919 was marked by extensive political activism by disabled veterans." (Feb, Cambridge University Press)
Russian Soldiers Dream Of Being Injured In Ukraine, 'Getting Rich' From Disability Pay (Apr, International Business Times) I am sceptical of this dubiously sourced news. The publicly announced figures are in the region of €40,000 for families of soldiers who die, and almost €25,000 for those wounded. I question whether all those injured actually get that.
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UNICEF supplies hundreds of children with life-changing hearing aids “UNICEF was able to significantly reduce the prices for these quality devices, providing them to the Government of Rwanda for $118. At this point in time, the same hearing aid can cost as much as $2,000 if buying it commercially within Rwanda.” (Jun, UNICEF)
Dative's Story "I am a role model for Persons with Disabilities" (Jan, short video on Youtube, UNFPA)
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Leadership commitment is key to scaling disability inclusion (May, The Business Times)
Court upholds death sentence of man with learning disabilities “Outcry over drug smuggling case of Nagaenthran K Dharmalingam, who could be executed in days” (Mar, the Guardian)
Pending Execution Highlights Singapore’s Failures on Disability Rights. "During a hearing on March 1, Singapore’s highest court made clear that Singapore law does not prohibit the execution of people with intellectual or psychosocial disabilities." (Mar, Human Rights Watch)
Singapore courts set to consider executions amid fears authorities want to clear backlog Case of Nagaenthran K Dharmalingam, who has learning difficulties, among four to be heard next week (Feb, the Guardian)
Singapore urged to halt two executions over disability concerns (Feb, the Guardian)
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How People with Disabilities Face Climate Change in Solomon Islands: "Every high tide is right at my doorstep every time I wake up. That keeps me wondering if soon, we are going to sink in the sea with no option,” (May, Solomon Times)
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study from IOM on disability inclusion in Internally Displaced People sites in Kismayo. Among other barriers:
"Access to information remains a critical barrier preventing persons with disabilities from accessing services within the IDP site and broader community. Door-to-door or shelter-level information engagement is recommended for all organizations providing support in IDP sites to ensure greater service knowledge of persons with disabilities" (Feb, Relief Web)
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Brief audio on How accessible is South Africa? (May, EWN)
Load shedding life-threatening to people with disabilities. (Jul, Rolling Inspiration)
How load shedding impacts people living with disabilities (Jun)
South African Sign Language set to become official language (May, Disability Insider)
Monitoring disability inclusion: Setting a baseline for South Africa (May, African Journal of Disability)
Towards interventions on school dropouts for disabled learners amidst and post-COVID-19 pandemic. Calls for a “a systematic multi-stakeholder local community-based intervention approach”. (Jun)
Too many disabled children still fall through schooling gaps. Article points to a wild range of estimates of children with disabilities out of school: from 40,000 to 600,000. (Apr, Mail and Guardian)
Inclusive education in South Africa: path dependencies and emergences. “Addressing barriers to inclusive education seems to be less about clearing successive hurdles in a steeplechase race and more about understanding the complex ecology of education systems, and the various actors and socio-cultural, historical and economic processes that constitute these systems.” (Apr, International Journal of Inclusive Education)
3 ways in which universities can be more inclusive to disabled individuals during an emergency.
Inclusive development: clearing up misconceptions on disability in the workplace (Jun, Engineering News)
How education, training and development support the wellness of employees with disabilities. (Apr, African Journal of Disability)
Thirteen years after a disabled child spent a night in a filthy cell, court slashes damages payout. (Apr, Ground Up)
Cabinet approves Framework on Disability Rights Awareness Campaigns (May, SA News)
South African Autism community says 'government has overlooked us for long enough' (Feb, News 24)
Sexual abuse of children with intellectual disabilities stems from poor education, false beliefs and poor safety structures. Article gives distressing examples of violence, incest, rape and abduction. (Apr, Sunday Times)
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Seeing with fingertips: essay on the history and variations in Braille, including how they are used to render different scripts and languages. (Mar, Himal Southasian)
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Disabled advocacy group to resume rush-hour subway protests. “Demanding measures to improve mobility rights and budget for disability rights, SADD has been leading subway protests since late last year and often caused delays in metro services during rush hour as some of its members used their wheelchairs to prevent trains from departing.” (Apr, Yonhap News) See a detailed feature on the protests and how the movement goes back to 2001 in the Nation.
A column reflecting on deinstitutionalization and the leading politician from the government party who said that “deinstitutionalization is a matter of choice.” (Apr, Hankyoreh)
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feature on supporting access to education for children with disabilities: My Wheelchair, My Journey. (Feb, Education Cannot Wait)
Towards a Disability-Inclusive Humanitarian Response in South Sudan? See also the full version. While "tangible progress is being made", "serious gaps and challenges to disability inclusion remain":
"Humanitarian organizations still do not recognize the diversity of disability and lack strategies to include persons with intellectual and psychosocial impairments. Moreover, persons with disabilities rarely participate in the project design phase and seldom contribute to programme development due to persisting attitudinal, environmental and institutional barriers. Furthermore, the Humanitarian Country Team in South Sudan has no systematic approach for the collection, analysis and use of either disability-disaggregated data or information on risks, capacities and unmet needs of persons with disabilities. This results in important information gaps on barriers to inclusion. In addition, communication barriers and lack of ‘reasonable accommodation’ in consultation meetings hinder the full and effective participation of persons with hearing, visual and other types of disabilities and make them dependent on family members and caregivers. " (links to pdfs, February, IFHV)
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Plena Inclusión demands a plan to protect persons with intellectual disabilities in the face of the Omicron wave. (Dec, Discapnet)
New edition of the Spanish Journal on Disability (REDIS) (in Spanish, Dec, Discapnet)
Persons with intellectual disabilities and public sector job openings (in Spanish, Feb, Discapnet)
"The leader of the future, if they're not inclusive, won't be a leader" (in Spanish, Jan, Ethic)
Court confirms 14 years in prison for a former political leader for abuse of two persons with disability. (Mar, Eldiaro.)
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Atrocities of the Civil War Through the Eyes of Artists profile of artists with disabilities. (Ground Views)
The struggle for survival faced by Sri Lanka's senior citizens (Jul, HelpAge)
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Evaluation of science advice during the COVID-19 pandemic in Sweden “Many elderly people were administered morphine instead of oxygen despite available supplies, effectively ending their lives.” (Mar, Humanities and Social Sciences Communications)
Help to live before help to die powerful personal testimony on why end of life decisions shouldn't be left to medical professionals (Feb, Adolf Ratzka on Facebook)
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UN Committee scrutinizes disability inclusion in Swiss international cooperation. “There is no consistent approach to disability across Switzerland’s work internationally.” (Jul, EDF)
The Swiss Government responded to the concerns of the CRPD and this is a response to that from civil society in relation to Swiss international cooperation and humanitarian action. (Jan, SDDC)
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How Cognitive and Pyschosocial Difficulties Affect Learning Outcomes: A study of primary school children. “The findings suggest that psychosocial and cognitive support for children in emergencies is needed, not just for their wellbeing but to enable them to learn effectively.” (link to pdf, Mar, Journal on Education in Emergencies)
North-West Syria Protection Analysis Update June 2022 gives a disability prevalence of 32%, increasing to 39% for displaced persons. (link to pdf, Jun, Protection Sector)
Saeed’s smile: ‘Disability should never be a reason for exclusion’, and a description of a partnership with Sesame Street. (May, IRC)
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Including Children with Disabilities in Early Grade Math Assessments (Feb, Inclusive Development Partners)
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Thai royalists “outraged” over Lazada campaign “mocking disabled people” (May, Thaiger)
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Seeking Knowledge While Blind (Nov, Meshkal)
"We are all different" video featuring the situation of workers with disabilities, discrimination against them, and political actions taken. Great selection of people working in different areas including entrepreneurs and artists. (in Arabic, with English subtitles., Oct, Solidarity Center and UGTT)
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Turkish man sparks outrage for kicking 70-year-old Syrian refugee woman in the head (May, Stockholm Center for Freedom)
Protection Needs of Refugees with Disabilities Only one of the 300 research participants had a job; 9% had part-time work. (Jan, Relief Web)
'My heart is torn': As war rages on at home, these young disabled Ukrainian swimmers are stranded in Turkey. (Apr, CNN)
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Reasonable accommodation for Deaf persons on why provision of a sign language interpreter needs to be accompanied by further measures. (Mar, IDA)
Disability Inclusion Lifts Rural Ugandan Families From Poverty description of a poverty-reduction programme by BRAC (Jun, Africa.com)
Social protection for disability inclusion in Uganda. See also synthesis paper that compares Uganda and Kenya. (Dec, Inclusive Futures)
Understanding child disability: Factors associated with child disability at the Iganga-Mayuge Health and Demographic Surveillance Site (Apr, Plos One)
A music video on disability rights: Did You Know - Air Jay ft Daxx Kartel (Jul, Make 12.4% Work)
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Disability sport in Ukraine has 'died' thanks to the Russian invasion the country's Paralympic boss says. Ukraine came second in the overall medal table in this year's Winter Paralympics. (May, Business Insider)
A summary of the first 100 days: Ukrainians with intellectual disabilities and their families surviving the war (Jun, Inclusion Europe)
A video feature on What support do people with disabilities need? (Apr, Aljazeera)
Ongoing updates on the situation of people with intellectual disabilities and their families in Ukraine. Includes a concern about what a future after the conflict will look like: given stoppages of day-care services, “A new wave of institutionalisation is a great danger specifically for persons with intellectual disability.” (Apr, Inclusion Europe)
People with disabilities and mobility issues find themselves trapped in Kyiv a profile on a family unable to evacuate or get to the shelters (27 Feb, CNN)
Ukraine's 20 Paralympic athletes have yet to arrive in China (28 Feb, WPXI)
As conflict reignites, a Ukrainian family knows all too well 'the collateral damage of war' a case study of a family affected by the previous violence. (24 Feb, CTV News)
When a man can leave Ukraine under marial law (25 Feb, Visit Ukraine)
An open letter appealing for protection and safety of persons with disabilities in Ukraine See also a page with resources on inclusive emergency response. (Feb, EDF)
People with intellectual disabilities mustn't be abandoned A page with rolling updates, noting that current priorities include provision of basic supplies, especially medicine, and ensuring the safety and wellbeing of the 80,000 children and adults with disabilities in care homes. (Feb, Inclusion Europe)
Advocacy Note on Assisting Displaced and Conflict-Affected Older People (link to pdf, June 2020, Protection Cluster)
A working paper on the impact of COVID-19 on People with Disabilities: Perspectives of Organisations of People with Disabilities. Describes inaccessibility of healthcare, increased social isolation, restricted mobility and deepening poverty. While some organizations of persons with disabilities reported new partnerships, many had funding reduced. (Mar, Kiril Sharapov et al)
Recent Historiographical Trends in Scholarship on Disability and Socialism in Eastern Europe. A good overview of how research shows the place of disabled people and their relationships with socialism:
"A common thread that runs through the studies discussed in this paper is the emphasis on productivism in disability policies and expert discourses, a logic aimed at integrating the disabled into the socialist society by increasing their work capacity. The authors show that conceptions about disability were embedded in overarching biopolitical considerations revolving around labour productivity. While the socialist work ethos led to a segregation of the ‘productive’ from the ‘unproductive’, it would be misleading to conceive disability during state socialism exclusively as a history of discrimination and marginalisation. Disability histories ‘from below’ point to the fact that disabled people in various historical contexts played an active role in reproducing and recreating discourses that defined disability [...]"
"In state socialist countries, disabled persons and associations frequently articulated emancipatory claims and sought to prove their productivity and eagerness to participate in the workforce. However, these egalitarian aspirations had troublesome implications since integration into socialist societies was strictly conditional on their contribution to the labour force. Social security programmes were primarily formed as a reward system for work, not as a way to meet the needs of the disabled. While those recognised as partially disabled were to be integrated through work placement in regular or sheltered workplaces, this system ultimately had the opposite effect and created a segregated system of work." (Feb, Scandinavian Journal of Disability Research)
A very useful book for the region and Soviet context is Disability in Eastern Europe and the Former Soviet Union: History, policy and everyday life. It includes a chapter with Sarah Phillips research in Ukraine, who gives the then-position of disabled people. At a very outside view, it seems that the presence on the political stage may have increased since she wrote:
"Interviews with persons with disabilities in Ukraine and a review of the available literature indicate that quality of life for most mobility disabled people has improved considerably since perestroika and the collapse of the Soviet Union. Some improvements in infrastructure and life possibilities, however, are accompanied by a range of injustices that compel many people with disabilities in Ukraine to feel as if they live in a “parallel world” where their rights to full citizenship in the new Ukrainian state are circumscribed (Phillips 2002, 2011). This parallel world is constructed at the intersection of public discourse and institutional infrastructure. The “unknown population” of the disabled is made further invisible by a hegemonic discourse that refuses to acknowledge the presence of the disabled on the political stage." (2016)
For more detailed ethnographic research on persons with disabilities, Sarah Phillips 2010 book is Disability and Mobile Citizenship in Postsocialist Ukraine. See a detailed review by Cassandra Hartblay.
National Strategy for a Barrier-Free Environment in Ukraine presented "We set extremely ambitious goals". See also the government reporting on the first steps towards a barrier free environment in Oct 2021. (April 2021, Cabinet of Ministers)
Situation assessment of rehabilitation in Ukraine As of September 2020: "The rehabilitation sector in Ukraine is rapidly evolving and many examples of good practice are emerging." (2021, WHO)
Briefing Note: Impact of the COVID-19 pandemic on persons with disabilities. "The COVID-19 crisis has exacerbated existing institutional, attitudinal and environmental barriers that persons with disabilities face in exercising their rights and accessing basic services." (Oct 2020, UN)
Policy Recommendations to the Ukraine government. The document notes that as the government develops plans to implement its Strategy for Barrier-Free society:
"At the same time, many Ukrainians living with disabilities remain trapped in their homes, restricted in their access to transportation, health care, social services and public buildings. Ukraine continues to apply medical and charitable approaches to persons with disabilities, rather than the human rights-based approach of creating favourable conditions to the enjoyment of all human rights on an equal basis." (Dec 2021, UN)
Ukraine's inaccessible cities "Ukraine’s urban accessibility issues are part of the country’s Soviet inheritance." (2021, Atlantic Council)
Sarah Phillips has been researching with disabled people in the Ukraine for around 20 yeras. Refusal to Die is an essay revisiting the current situation of those she knows.
"Back in his Kyiv hotel, Dmitrii keeps his good humor. He sends me jokes and memes on Telegram. He claims he’s glad he got stranded with the other hotel guests, who rely on his cool head and jokes to get through each day. He won’t answer my questions about his supplies of food and medicines. Dmitrii has survived everything else: Can he survive a war? I hope he will keep up his streak and refuse to die." (11 Mar, Cultural Anthropology)
Discrimination against people with disabilities is one example of how Russia operates outside rule of law (Mar, Canada's National Observer: News & Analysis) Sure, I guess, I wonder what it is an example of when other countries do it though.
In war disabled people cannot be left behind. Quotes a Paralympian saying in 2016, "Ukraine has already won 37 medals in the Paralympics, 12 of them are gold… We have more medals than wheelchair ramps in an average Ukrainian town." (27 Feb, The Once and Future Cripple)
Q&A with Ilya Kaminsky, Ukrainian-American poet a beautiful wide-ranging issues that touches on Deaf Gain and its contribution to the larger world.
"We must remember that even in the most difficult situations, people are still able to retain their humanity. They fall in love, they marry, and they have children. We must honor that too, and not just speak of the darkness of war. We must honor human survival, because if we don’t do this, if we don’t pay attention to every aspect, we dehumanize the suffering." (25 Feb, Daily Princetonian)
The War in Ukraine Is a Reproductive Health Crisis for Millions "Russia's invasion is making it harder to deliver babies and provide birth control, abortion services, and other essential care." (16 Mar, Wired)
The Fight for Ukraine Is Also a Fight for LGBTQ Rights “People Are Not Coming Back to the Closet” (4 Mar, Vanity Fair)
Support for LGBTI People in Ukraine (ILGA-Europe)
Joint Statement on the Situation of Older Persons in Ukraine. “Those older persons who have relocated to other areas within Ukraine have undertaken arduous journeys, beset with risk, lacking access to basic health care and other needs while on the move—all while being away from their families and loved ones. Many of those who have remained in their own towns have also experienced limited access to services and a breakdown of their social networks.” (Jun, HelpAge and others)
UN Human Rights experts on the Millions of displaced traumatised and urgently need help (May, OHCHR)
UN Committee warns that 2.7 million people with disabilities at risk (Apr, OHCHR)
the UN Head of Human Rights Monitoring Mission in Ukraine on the situation in Ukraine: (Mar, OHCHR)
World Blind Union stands united with Ukraine and is taking action to help (Mar, WBU)
An open letter from social scientists of disability call to Stop the War in Ukraine
European Disability Forum Resolution on Protection and safety of persons with disabilities in the war in Ukraine. Recommendations to the European Union and Member States. (link to pdf, 11 Mar)
The European Blind Union Protect blind and partially sighted people "Stop War Immediately" (link to pdf, 7 Mar)
UN Human Rights Experts: Protecting life must be a priority "Many more risk dying as a result of the destruction of essential infrastructure, including health care facilities and institutions for older persons with disabilities." (8 Mar, OHCHR) See also statement on older people and those with disabilities face heightened risks (4 March).
Global Alliance for Disaster Resource Acceleration (GADRA), Statement on Russian Invasion of Ukraine (1 Mar, WID)
Down Syndrome International statement on Ukraine conflict (1 Mar)
G3ict and IAAP Statement: Protection and Safety of Persons with Disabilities in Ukraine (28 Feb)
International Disability Alliance: Through this conflict in Ukraine, what happens to persons with disabilities? (Mar, IDA)
Covid and Disability project Letter from Kiril Sharapov
"Organisations of persons with disabilities remain one of the last remaining systems of support for people they have been taking care of within the context of the pandemic and now within the context of this catastrophic war. They continue, where and when they can, to provide support to the most vulnerable individuals and their families. Their knowledge and expertise must inform all current and future relief efforts provided by the Government of Ukraine and by the international donors and humanitarian agencies." (3 Mar)
Diakonia International Humanitarian Law Centre calls to Protect persons with disabilities in the Ukraine conflict (10 Mar)
War in Ukraine shows devastating impact of heavy bombing and shelling on civilian population. "Explosive weapons kill and/or cause complex injuries. They are the cause of massive forced displacement. Entire communities suffer extensive psychological trauma, with particularly acute consequences on children." (8 Mar, Humanity and Inclusion)
CRPD Committee opens first full session since 2019: The situation of persons with disabilities in Ukraine in focus. (Mar, IDA) See also detailed report of the Committee Meeting.
Autism Europe Call to ensure the protection of Ukrainian autistic people "autistic people and their families are largely invisible and underserved by humanitarian aid dedicated to supporting the people of Ukraine" (3 Mar, Autism Europe)
European Network on Independent Living War in Ukraine: Leave No One Behind (Mar, ENIL)
Appeal from the National Assembly of People with Disabilities of Ukraine appeal for help to "defend peace in our country", which speaks to the active role disabled people and their organizations are playing:
"Today in Ukraine, people with disabilities and disabled people’s organizations are helping our State and are standing shoulder to shoulder with our defenders. Everyone is trying to help as best they can: by cooking meals, working as dispatchers, delivering medicines, helping in hospitals, offering shelter to displaced people within the country, joining territorial civilian defence forces, or making Molotov cocktails. Yesterday we received information that a son, father and husband was killed near Kiev when defending his family, his home. He used a wheelchair but also joined the defence forces. Our world-famous paralympic athletes took up arms. We are united. " (2 Mar, EDF)
The United States International Council on Disabilities Calls for the Protection And Safety of Ukrainians with Disabilities (link to pdf, 25 Feb)
‘Calls kept coming’: Ukraine’s network for the blind shelters displaced people: factories predominantly staffed by people with visual impairments provide shelter. (Jun, the Guardian)
Evacuating the Vulnerable Amid the Terror of War photos and descriptions of the work of Vostok-SOS, evacuating people from Eastern Ukraine. (Jun, NYT)
How Misha, a 19-Year-Old With Down Syndrome, Escaped Ukraine (May, WSJ)
Here’s what Ukrainians with disabilities face as we cope with war A first-hand account of the first days of invasion and leaving Kharkiv to Western Ukraine by a blind woman with other disabled family members. (Apr, The New Humanitarian)
A rescue was organized from Russian occupied territory for a Ukrainian mother and disabled daughter (Apr, Info Migrants)
I fled Ukraine with a disability. “In this state of war, you start to think differently. You understand that HIV therapy is your life, and you understand just how badly you need access to this therapy.” (Apr, Business Insider)
The hearing impaired Ukrainians fighting to survive war (Mar, La Prensa Latina)
The Informal International Network Getting Disabled Ukrainians Out of the War Zone Important especially in highlighting the active role persons with disabilities themselves play in humanitarian response. (Apr, Time)
Ministry of Social Policy reports on the evacuation of About 5,000 children from vulnerable categories being brought up in institutional care facilities (Mar, Ministry of Social Policy of Ukraine)
Rules and documents from the Ministry of Social policy on who can accompany children and people with disabilities when crossing the border (in Ukrainian, I used google translate, Mar, HB)
The Global Effort To Evacuate Children With Cancer (15 Mar, Forbes)
BBC Ouch podcast 'I think of my wheelchair more than myself now' with Tanya from Fight for your Right, and a disabled Russian journalist who left Moscow after her article denouncing the Ukraine war went viral. (no transcript I think, 18 Mar, BBC)
Disabled children fleeing Kyiv received by Poles, Hungarians. Evacuation of residents of orphanages for children with disabilities. (3 Mar, KTAR News)
In-depth conversation with Tanya Herasymova, of Fight for your Right (15 Mar, Natasha Lipman)
In Touch podcast on the blind people and organizations supporting people in Poland and children with visual impairments in Lviv. As with so much of the response, these are individual, ad-hoc measures. (with transcript, 15 Mar, BBC)
Refugees on the Moldova-Ukraine border "We saw a fairly large number of older people arriving, as well as some people with disabilities who were being assisted in their journey. But the number is disproportionately low, compared to the population of Ukraine." (15 Mar, HelpAge)
As Millions Flee, Disabled Ukrainians Forced to Fend for Themselves (11 Mar, New Mobility)
Escaping the horror in Ukraine is not an option for many disabled children and their families One parent, stuck near the Polish border for several days described their daughter's need to resume physical therapy:
"Vika has been without rehabilitation for a very long time, her condition is deteriorating," Chuiska said. "She is constantly growing and her muscles do not develop at the same pace, so she is starting to lose the progress. She has started falling while walking and her legs are not developing well, she has pain in her legs now." (11 Mar, CNN)
Humanitarian efforts aren't doing enough to evacuate Ukrainians with disabilities A deeper look at the barriers disabled people are facing to leave, including being stopped at the border.
"Despite collective condemnation of Russia and support for Ukraine's sovereignty among the international community, the humanitarian response has lacked inclusivity and accessibility for many. From inaccessible evacuation centers to a lack of information in accessible formats such as braille or sign language, the lack of proper resources for people with disabilities has had devastating consequences." (8 Mar, MSNBC)
The Disabled Ukrainians Doing What the UN Can’t (or Won’t?) Behind the scenes on the ad-hoc connections within the disability community and lack of support from humanitarian organizations.
'But as we made these connections, reaching the highest heights of the “who’s who” of the humanitarian field, we were turned down every time. The typical line was that the organization lacked the ability to evacuate “personnel with those needs” – in other words, people with disabilities.
How fascinating (read: infuriating), given that every single one claims to serve the disability community in their promotional materials and appeals for funding. ' [...]
'Notice a pattern here? The disability community, already under-resourced and struggling, is consistently the only one to step in to help.' (9 Mar, FP2P)
Chaos, upheaval and exhaustion for Ukraine's disabled children. Evacuation of children with disabilities from one centre. "The bus to the Polish border was a capsule of exhaustion, grief and tender mercies." (8 Mar, BBC)
Ukrainian woman says people with disabilities 'left behind' after 'almost impossible' journey across the border. The experience of Tanya Herasymova, project coordinator of Fight For Our Right. "The only people who offered support is volunteers. Without people, such people, it couldn't be possible to evacuate for us." (2 Mar, Irish Mirror)
Ukraine orphanages: Children tied up and men in cots: “A BBC News investigation exposes the abuse and neglect of disabled people locked away in institutions across Ukraine.” BBC iPlayer has a feature Locked Away. (Jul, BBC)
As Russia’s invasion continues, Ukraine’s elderly and disabled struggle to survive “After a recent visit to hard-hit northeastern Ukraine, unarmed civilian protectors are exposing the lack of humanitarian engagement with the country’s most vulnerable populations.” (Jul, Waging Nonviolence)
Younger people ran from the shelling – we couldn’t (Jul, Age International)
Complex injuries from explosive weapons in Ukraine (Jun, Humanity and Inclusion)
People with disabilities left behind during the war in Ukraine (Jul, Devex)
War in Ukraine takes heavy toll on those with disabilities, and many can't leave (Jun, ABC News)
Older People No Longer Invisible Casualties of War in Ukraine (May, Human Rights Watch)
Interview with Child With Future on the situation of children with autism (Apr, EDF)
Alone under siege: how older women are being left behind in Ukraine. “I wonder why some young people evacuate their cats and hamsters, but leave their parents behind,” says Roman Vodyanyk, head doctor at Severodonetsk hospital in Luhansk (May, the Guardian)
In April a team from Disability Rights International visited Ukraine's institutions to report on those Left Behind in the War: “DRI finds that Ukraine’s children with disabilities with the greatest support needs are living in atrocious conditions – entirely overlooked by major international relief agencies and receiving little support from abroad.”:
“In two of four facilities DRI visited. However, we found that children and adults with greater support needs were left behind in the institutions of western Ukraine while less impaired or non-disabled children from the same institution were moved to Poland, Italy, and Germany. Directors we interviewed report that children with greater impairments are being left behind in institutions in the east.
“Children with greater impairments face the largest brunt of increased dangers. DRI investigators observed children tied down, left in beds in near total inactivity, and held in dark, poorly ventilated rooms that are so understaffed that they are enveloped in smells of urine and feces. Children rock back and forth or self-abuse as a result of years of emotional neglect. Staff have no resources or knowledge about how to respond to this behavior other than to restrain them for much of the day.” (May, DRI)
‘We have to go’: nursing home residents await evacuation in Donbas (Apr, the Guardian)
‘I feel so lost’: The elderly in Ukraine, left behind, mourn (Apr, AP News)
People with disabilities cannot escape the terrors of war (Mar, Huckmag)
An unfolding horror story: Ukraine's disabled population has been left behind (Apr, iNews)
Public Health Catastrophe Looms in Ukraine “Even before the war, the country struggled with epidemics of H.I.V., tuberculosis and hepatitis. The conflict threatens to undo decades of progress.” (Mar, NYT) See also in the Independent.
One month of the Russian war on Ukraine in the words of families of people with intellectual disabilities. Photos and testimonies from around the country in this vital collection:
- “Children are locked between four walls, do not have proper communication. After the explosions, many people have a fear of going out in the streets. All our achievements have come to nothing.”
- “They bomb outside the window; we sit in apartments with adult children who do not understand why you can't go outside, why you can't go to the centre. They have problematic behaviour and epilepsy seizures.”
- “I'm from Mariupol. It is hell.” (Mar, Inclusion Europe)
Updates on People with intellectual disabilities and families in Ukraine affected by Russian war. (Inclusion Europe) Includes the testimony of a mother with a 9-year-old son with autism:
"With the start of the war, we moved to another area, a city close to the border, but it did not last long, only 5 days.
My son was always nervous, resolving to dissatisfied kicking. The neighbours often complained about the noise. Any walk was accompanied by screaming, crying, the child’s lips trembled and his face lost colour.
When we left the apartment, we had to take out all our belongings, he ran and packed his bags, anxiously inspected whether we had forgotten anything. Eventually we returned home, I felt calmer and so did my son.
But the sirens and the basement became the next problem. Dragging him there was not easy, he did not understand why we were there and what was happening.
Then we decided to live improve it a bit in our basement, brought some things, goodies. Everything seemed to be fine, because the time in the basement lasted up to an hour. But later we had to stay there until 6 o’clock, we can’t get used to it.
We also have a curfew and at 20.00 the light should go out. This has become another problem for the child he can not understand. Because when you turn off the light, you need to sleep, and his biological clock says it’s not time. We are faced with self-aggression, he began to bite his hands and cry, lying on the ground. There was no way of a hug, the child did not want it categorically.
There was little light from the TV and nightlights and then we lit candles. For now, it’s calm.
I believe that everything will end soon, but my son has autism, and some things will become a habit for him. For example, we had dinner in the basement several times, and now he takes his dinner and demands to go downstairs, even if the sirens are not on." (16 March)
The Disasters Emergency Committee (DEC) warns that millions of older people and people with disabilities now at high risk. "Nine out of ten older people need help to get food because they may have mobility issues and many live alone." (10 Mar, Age International) See also the press release from DEC.
For an overall view, see this UNDP warning that 30% of the population are likely to require life-saving humanitarian assistance and 90% of the population could be facing poverty and vulnerability to poverty. Does not mention persons with disabilities. (16 Mar)
Press Conference on experiences of persons with disabilities Act Now to Support Ukrainians with Disabilities and their Families. As well as giving context, gave testimonies of people in Ukraine:
“I am in Kyiv in the capital together with my adult daughter who is autistic and has behavioral disorders. Currently we cannot possibly leave the city of Kyiv. I also have my mother who is 82 years old. She cannot move. We cannot go downstairs to the bomb shelter. Please believe me and we are not alone in this situation. There are many of us in this situation, all over the city of Kyiv, all over Ukraine.” -- Yuliaa Klepets
“one of our NGO leaders has a son with autism and cannot leave him for more than one hour. Which means that she cannot queue for the pharmacy, for the supermarket, for the bank machine and therefore cannot get the drugs, the food, the money she needs. She needs help for even these basic amenities. We also know that those with severe disabilities, and those whose parents are older, they do not leave Ukraine. The trip is so difficult and so long.” -- Raisa Kravchenko (10 Mar, EASPD)
A plea from disabled Ukrainians: ‘We have no chance without help’ (9 Mar, Washington Post)
Professor fears for elderly immobile mother in Mariupol. "Her feeling is, it will just take too much time and effort to evacuate her out of her home and out of the war zone, and her plans are basically to stay put for as long as she can because she feels that really the world belongs to the future, to the women and children and the younger generations." (4 Mar, BBC)
Millions with disabilities ‘abandoned’ in Ukraine, charities fear “We have had disabled people who have called medical humanitarian-oriented agencies, have called their crisis hotline and said, ‘Hi, I’m a wheelchair user, with pressure sores. I need help’, and have been told: ‘Oh, we don’t help people with disabilities, you should call the Department of Social Protection’. If they manage to reach the borders, the refugee centres and buses are 'not wheelchair accessible'". (8 Mar, Independent)
Under Shelling in Kharkiv People with Disabilities Need to Evacuate Safely. (7 Mar, Human Rights Watch)
Stories from the ground in Ukraine collected testimonies from persons with disabilities.
"I move with the aid of a stroller. My mother lives with me, 78 years old and has suffered a stroke. We stayed at home. We run to our 'shelter' to the toilet, taped door and towels, with a bath of water in case it turns off, with pillows on the floor. I never thought bread and drinking water, chocolate, I will store in the washing machine. Near the washing machine there is a backpack with medicines, clothes. My mom and I went to our shelter nine times today. When there is no bombing, I call persons with disabilities, I ask whether all is well, what help is needed.' - person in Zhytomyr on 4th March (Mar, EDF)
"Everyone is either running — out of buildings, into buildings — or is standing still in shock. And on the top floor of our five-story apartment building, one man stands alone on his balcony, leaning on the railing, apathetically smoking and watching the fire." (does not mention disability, 2 Mar, LA Review of Books)
People with intellectual disabilities, families in Ukraine April Updates (Apr, Inclusion Europe)
HelpAge have a series of blogs on the situation of older people in the war. (Apr, HelpAge)
Generations Beat Online had put together news links on the situation of older persons in Ukraine (Apr, GBO News)
Protection Monitoring Highlights on how organizations are supporting displaced persons, including persons with disabilities. See the protection snapshot of 7th April for brief notes on support to those remaining in institutions. (Apr, Protection Cluster Ukraine)
Disability Inclusion Helpdesk Report Impacts of the Ukraine invasion for persons with disabilities and priority entry points in humanitarian response. (11 Mar, Inclusive Futures)
Resources, particularly from Germany and Slovakia, on Support for Sick, Disabled and Deaf People affected by the war. (Nowar.Help)
Updates from Inclusion Europe
Psychoeducational resources on PTSD and trauma translated into Ukrainian, Polish and Russian. (10 Mar, Psychology Tools)
Global Alliance for Disaster Resource Acceleration (GADRA) updates on support efforts to disability-led organizations in Ukraine (WID)
World Federation of the Deaf Updates on Ukraine. "Several deaf associations throughout the country dispersed these announcements. Interpreters have also been at work to ensure that government announcements are accessible, and a 24/7 video relay network still works to guarantee deaf people their right to make phone calls at all hours as necessary." (17 Mar)
The Partnership for Inclusive Disaster Strategies Ukraine Crisis. Practical information and resources.
The National Assembly of People with Disabilities has frequent updates on the evolving situation, in Ukrainian.
A Ukrainian translation of the WG Short Set on Functioning is now available. (Mar, The Washington Group on Disability Statistics)
HelpAge page on Supporting older people in the Ukraine crisis
European Disability Forum page on Ukraine War providing updates, testimonies of disabled people, resources, and further links. See also:
UNHCR portal on the Ukraine Refugee Situation which gives an indication of overall numbers in destination countries as well as the flash reports on the situation of displacement and refugees. (UNHCR)
Advice and support for those affected by the Ukrainian crisis Overview of organizations and resources in relation to older people, people with dementia and their families. (Alzheimer's Disease International)
Social media posts chart life and death of girl in Russian strike (Jul, the Guardian)
Russian attack in Vinnytsia: “Among them was a four-year-old girl with Down syndrome, Liza, who never made it home from her speech therapy session.” (Jul, EDF)
‘Thank You for Not Killing Us’ An ordeal at a mental health facility in Ukraine illuminated the horrors of the Russian occupation, as the facility was taken hostage:
“The siege at the mental health facility dragged on for weeks, during which the building lost heat, water and electricity, and more than a dozen patients lost their lives. What unfolded there represents the depths of despair and at the same time amazing pluck under a brief but harrowing Russian occupation.“ (Apr, NYT)
Ukrainians With Disabilities At Breaking Point As Russian Onslaught Bears Down (Mar, Forbes)
Russian troops shoot dead disabled Ukrainian volunteer "The Governor claimed that Kononov, who voluntarily provided food, water, medicines, etc., to Ukrainian soldiers fighting pro-Moscow militants in Luhansk, was killed whilst he sat in his wheelchair at his home" (14 Mar, Republic World) See more in Hromadske, in Ukranian. And a tribute from Fight for Right.
Russia hit a psychoneurological institution in Pushcha-Vodytsya, Kyiv Patients and staff were evacuated in advance. (13 Mar, Spravdi)
Russian forces take over psychiatric hospital in central Ukraine "Russian forces have taken control of a psychiatric hospital in the town of Borodyanka in Ukraine's Kyiv region, with 670 people inside, the regional governor Oleksiy Kuleba told local media." (5 Mar, Reuters)
A school for the deaf hit, no injuries reported, on weekend of 5th/6th March. (7 Mar, World Federation of the Deaf)
Russia Shells Kharkiv Care Home for Adults, Children With Disabilities 73 were evacuated and no casualties were reported of the 330 residents. (12 Mar, Business Insider)
The reconstruction of Ukraine must take into account human diversity — human rights defender Yuliya Sachuk (Jul, Fight For Right)
Sound of Silence “Now, a non-profit organization [Off The Grid Missions] is helping people who are deaf or hard of hearing learn of the danger.” (Jul, The News with Shepard Smith)
UNICEF launched project to support children with disabilities and their families (Jul, Disability Insider)
We must not neglect rehabilitation in Ukraine “The damage and disruption to usual health services, coupled with conflict related traumatic injuries and the forced displacement of millions of people, will create an enormous surge in rehabilitation needs.” (Aug, eClinicalMedicine)
Ukraine highlights efforts to close digital divide for people with disabilities (Jun, Relief Web)
‘I just can’t stand aside if I know that I can help’ “Disability rights activist Tetiana Barantsova escaped the war in Ukraine in a wheelchair. Now she’s helping others with disabilities to do the same.“ (Jun, UNHCR)
Open letter to US administration to Protect the Rights of People with Disabilities and Older People (Jul, Partnership for Inclusive Disaster Strategies and others)
Disabled children and the war against Ukraine “The EU should ensure its humanitarian aid involves this vulnerable group while also supporting community-based disability support,” (Jun, Euractiv)
Key Principles and Recommendations for Inclusive Cash and Voucher Assistance in Ukraine (May, EDF)
People with disabilities in Ukraine are being left behind. “It's time for concerted humanitarian action” (May, World Economic Forum)
Facebook group helps Ukrainian refugees with autistic children (Apr, InfoMigrants)
EDF Position Paper, the Recommended response to children from institutions in Ukraine. (Apr, EDF)
Support for the remaining disabled people in Ukraine as Nippon Foundation launches new initiative for those who are ‘trapped or abandoned’ (May, Valuable 500)
Short video montage on Off-The-Grid Missions supporting Deaf and Hard of Hearing people in Ukraine. (Apr, Off-The-Grid Missions)
A nice photoessay on the Luhansk Association of Organizations of People with Disabilities and the work they did before the most recent invasion as well as how they are responding now. (Mar, UNDP)
In the humanitarian response, the Age and Disability Technical Working Group is a forum for exchange and working to “effective mainstreaming of age and disability into the humanitarian response” since 2015. (Apr, OCHA Humanitarian Response)
Webinar discussion from GADRA and Fight for Right Ukrainians with disabilities In-depth discussion on the response. Include insights into the volunteer networks coordinating the response, some of the organizations supporting, and the challenges being faced. (11 Mar) See also the webinar transcript.
Fight for Right's Call to Action Prioritize Ukrainians with Disabilities. Relates experiences and calls for inclusion in response. (2 Mar, The Partnership for Inclusive Disaster Strategies) See also practical information for people with disabilities seeking to evacuate.
Update from the National Assembly of People with Disabilities of Ukraine on how they are responding (scroll down for English text, 17 Mar, NAIU)
Relief Web hub on the Ukraine Humanitarian Crisis. Overall information and key documents from the international humanitarian response.
Armed conflict and displacement heightens risks of all forms of sexual violence including trafficking in persons. Calls for responses to risks of trafficking in persons to be inclusive and ensure the rights of persons with disabilities. (16 Mar, OHCHR)
The UN High Commission for Refugees Summary of Regional Refugee Response Plan. Mentions the need to target and adapt services for persons with disabilities. (UNHCR)
Resources on the Protection of Persons with Disabilities during Armed Conflict (link to docx, UN Special Rapporteur on the Rights of Persons with Disabilities)
Global Protection Cluster update on Protection of persons with disabilities in Ukraine. Describes recommendations for an inclusive humanitarian response. (8 Mar)
Disabled people in Ukraine at risk of being abandoned and forgotten (7 Mar, Eye Witness News)
Persons with disabilities in Ukraine face a ‘crisis within a crisis’ "Civil society calls on the EU, national governments and humanitarian organisations to step up efforts to protect Ukraine’s 2.7 million persons with disabilities who risk abandonment, death or a lack of shelter amid Russia’s invasion." (15 Mar, Euractiv)
A rapid review: Can social protection be sustained and support a humanitarian response? "the Ukrainian Government has moved with remarkable speed to adapt systems to ensure the delivery of existing programmes." Includes mention of disability-related benefits. (14 Mar, CIDT)
Survey of more than 1,500 over-60s: Older people on the edge of survival "Older people make up a third of all people in need of assistance in Ukraine, making this conflict the ‘oldest’ humanitarian crisis in the world. One in four people in Ukraine are over 60-years-old and Ukraine has the largest percentage of older people affected by conflict in a single country in the world." (Mar)
“We Live Like We Are Homeless” The Consequences of Conflict for Displaced People with Disabilities in Eastern Ukraine (Mar 2020, Human Rights Watch)
Ukraine frontline: disabled and elderly people threatened after 7 years of conflict (Oct 2021, Fair Planet)
Access to health-care services for older persons and persons with disabilities living in Eastern Ukraine along the "line of contact". "In the two oblasts of Luhansk and Donetsk, where health indicators were among the lowest even before the conflict, the situation has grown worse, leaving those living in the area to face increased health expenditure, including transport costs and out-of-pocket payments for services that are supposed to be free." (2021, WHO)
How People with Disabilities Live in the Donetsk and Luhansk Oblasts Based on a survey in both government and nongovernment-controlled areas. (2019)
People with Limited Mobility Can’t Access Pensions Challenges those who live in nongovernment-controlled areas had to access their benefits. (Jan 2020, Human Rights Watch)
Back to contents.
How to sing in sign language: meet the interpreter joining Mohammed Abdu on stage (Jun, The National News)
Back to contents.
Outrage as ministers reject post-Grenfell safety plans for disabled people “Personal fire evacuation plans were in public inquiry’s proposals, which ministers had said they would ‘accept in full’” (May, the Guardian) See further detail on inside housing.
Covid-19 and the Crisis in Social Care: Exploring the Experiences of Disabled People in the Pandemic: “the social care crisis has challenged the goal of independent living.”. (Apr, CUP)
Health and healthcare for people with disabilities in the UK during the COVID-19 pandemic: “As the UK opens up, it is important that health care services and social policy address the poor mental health and social isolation of people with disability so that the inequalities occurring early in the pandemic do not become further entrenched.” (Jan, Disability and Health Journal)
COVID-19 pandemic impact on psychotropic prescribing for adults with intellectual disability: an observational study in English specialist community services: "The pandemic caused an increase in psychotropic prescribing associated with lockdown severity and urban settings." (Jan, BJPsych)
‘They gave her a bed to die in’: family of woman with Down’s Syndrome denied intensive care seek answers from Covid-19 inquiry. (Jul, the Guardian)
Disabled people are being left out of COVID recovery. “Here are five ways to change that” (Apr, the Conversation)
‘Completely Inhumane’: Government’s Relaxed Approach to COVID Represents a Regression for Disabled People’s Rights (Mar, Byline Times)
Booster jabs are vital – why is it so difficult for clinically vulnerable people to access them? (Dec, the Guardian)
Doctors with long Covid say they have been denied disability benefits. (Jun, the Guardian)
Alarm after EHRC says long Covid should not be treated as disability (May, the Guardian)
First orthodox siddur for people with disabilities launched in UK (Jun, Jerusalem Post)
Disabled youth participation within activism and social movement bases: “[Young disabled people] feel pressure to agree with those who have identified the cause, advised by established figures on ways in which they should demonstrate resistance, and are requested to provide recommendations that will improve the situation for young people: a limited involvement.” (Jun, Current Sociology)
Radio play Pride and Protest offers a window into the current struggle for disability rights. (May, Disability Arts Online)
Tickboxes and Tokenism? Service User Involvement Report 2022 (Feb, Shaping our Lives)
Disability and the heatwave: Cooling solutions and disability as weather alert goes red (Jul, BBC)
City’s co-produced climate action plan ‘is a world first’
featuring Bristol's climate plan, which we also covered on the debrief (Jul, Disability News Service)
Glasgow disabled facing hostility for car use “Disabled people are facing "climate-change themed" hostility and aggression for using cars, according to a charity.” (May, The Herald)
A new Community Climate Action Plan in Bristol (Mar, Bristol DEF)
Up to the Challenge report examining the National Disability Strategy and how it addresses climate change. "Disabled people across the country are excluded from the important work to tackle climate change." (Feb, Oxford)
For disabled environmentalists discrimination and exclusion are a daily reality (Jan, Greenpeace)
Why I co-created a Twitter bot for BSL interpreter requests (Jul, The Limping Chicken)
A Sociolinguistic History of British Sign Language in Northern Ireland. "The study shows how the Protestant schools played an important role in the transmission of BSL in the island of Ireland." (Mar, Sign Language Studies)
British Sign Language to become recognised language in the UK (Jan, the Guardian)
Why everyone should learn some sign language (Jan, New Scientist)
"These days the argument for and against Braille continues in several arenas. Blind people are divided in regards to its usefulness, schools debate whether it is worth recruiting qualified teachers, and governments fail to set aside funding to either train those teachers or fund their employment in local authorities. ‘Has technology replaced Braille?’ is a question I hear thrown around by the media more often than I should, usually accompanied by an article about a technology that will revolutionise how blind people read, rendering Braille unnecessary. It has not failed to escape me that whilst I’ve seen countless such articles, Braille is still firmly in place as the writing system used by blind people globally." (Jan, Catch These Words)
‘Don’t tone it down’ – inside the invasion of British museums by disabled artists. (Jun, the Guardian)
Being Hybrid A guide to hybrid events for the literature sector. (Jun, Spread the Word)
Britain's Got Talent 2022 Eva Abley's performances, a 14 year-old comedian. (May, Adnan Entertainment)
Starring Rosie Jones Disability Benefits is a comedy take on getting disability benefits from the government, and if that doesn't work, getting the disability benefit in a life of crime. (May, Channel 4)
Broadcasters unite to create ‘passports’ “that will remove barriers and support better inclusion of disabled people and other colleagues at work.” (Mar, Channel 4)
Let’s storm Parliament! Then Barbara Met Alan is a film from BBC on the ”punks who risked their lives to fix ableist Britain”. See also on “these stories change how people think”. (Mar, the Guardian) One line I enjoyed from the film: “It was 1990, nothing in law, just a pat on the head and a fuck off if you moan too much”. See also a comment on what the film misses out.
‘It’s time for us to live our lives to the full’. Line of Duty’s Tommy Jessop on changing the world for people with Down’s syndrome. (Feb, the Guardian)
I'm thrilled that Rose Ayling-Ellis won Strictly Come Dancing: see her interview in the Guardian talking about her life, career and the show. (Dec, the Guardian)
BBC Unveils Latest Statistics on Disability, Ethnicity Representation. “53% of teams monitored achieving their targets for disability representation, an increase of 35 percentage points over the last year and a half.” (Apr, Variety)
Channel 4 creative brief Disability Disruption commission "ripping up the playbook and showing disabled people as they have never been seen before on British TV." (Feb, Channel 4) See also coverage on Broadcast.
Outcomes for disabled people in the UK: 2021 detailed statistics from a range of datasets. (Feb, ONS)
As a disabled person, social media has been a lifeline "The internet bypasses what keeps us apart: inaccessible transport, a lack of appropriate care, pain and fatigue. [...] The real power of the disability community, [comes] in the slow accumulation of knowledge that accrues from bearing witness to each other’s lives." (Jan, Financial Times)
From disability to destitution devastating analysis on the economic situation of persons with disabilities. (Jul, JRF)
‘I see price rises of 25-50%’: how inflation is affecting people with a disability or illness (Jul, the Guardian)
A survey of almost 700 people What disabled consumers choose to buy and why “90 per cent were affected at the decision-making stage of purchases by either; limitations of design, limitations in available information, or how information was presented.” (Jun, BDF) See also on Forbes.
In a survey of 1,200 disabled people, more than half feel “anxious, depressed or hopeless” about financial worries and problems (Apr, Yahoo! News)
Disabled people facing ‘impossible choices to survive’ in cost of living crisis, “amid a perfect storm of soaring energy prices, increasing fuel and food costs and cuts to government support”. (Mar, the Guardian)
Rising living costs will push more disabled people into destitution "Benefits are falling far behind the extra costs associated with disability," (Feb, New Statesman)
New data shows food insecurity major challenge to levelling up agenda "People who are limited a lot by disability are approximately 5 times more likely to be food insecure (in the past six months) than people who aren’t living with a disability." (Feb, Food Foundation)
Five-month disability benefits delay causing hardship (Jul, the Guardian)
Great video on how support workers can enable a social life (Apr, Open Future Learning)
Government spent £440m fighting disability claimants as whistleblowers claim system broken. (Apr, ITV)
Disabled People trapped waiting years for vital home adaptations (Apr, The Bureau of Investigative Journalism)
Secret DWP report reveals unmet needs of disability benefit claimants (Feb, Disability News Service)
Children with Disabilities forced to travel hundreds of miles for school. (Apr, The Bureau)
Changing Children’s Attitudes to Disability through Music: "A core driver for change appeared to be sharing enjoyable musical activities with competent musicians who had disabilities." (Feb, Disabilities)
Disabled students are being let down by universities (Jun, Metro)
‘I was dismissed as simple’: People reveal the reality of disability discrimination at work (May, Metro.co.uk)
The blind farmer: ‘It’s all I ever wanted to do. Now I can help others do it’ (May, the Guardian)
Disability pay gaps in the UK: 2021 “The disability pay gap, the gap between median pay for disabled employees and non-disabled employees, was 13.8% in 2021”. There is a slightly wider pay-gap for men with disabilities, and considerably wider for those with more activity limitations, or with autism listed as their main impairment. (Apr, ONS)
Business Without Barriers: interviews with successful disabled entrepreneurs and personal accounts from employers who are helping to break down barriers to employment. (FSB)
Disability Smart Awards (Dec, Business Disability Forum)
A BBC show Ellie Simmonds: A World Without Dwarfism?
“A pioneering drug is coming on the market that promises to make children with achondroplasia - Ellie’s form of dwarfism - grow closer to average height. A genetic condition, achondroplasia is the most common type of dwarfism in the UK, and the new treatment raises the question: if cutting-edge medicine can stop disability in its tracks, should we use it?” (Apr, BBC)
Dr Peter Scott-Morgan dies: Tributes to world's first 'cyborg' ‘And when I say “Cyborg”, I don’t just mean any old cyborg, you understand, but by far the most advanced human cybernetic organism ever created in 13.8 billion years.’ (Jun, Metro.co.uk)
‘The lady without legs or arms’: how an artist shattered Victorian ideas about disability. (May, the Guardian)
The Jewish Deaf Association launch new website: Jewish Deaf History (London) discussion of the history and website. (May, Limping Chicken)
The 1921 census is a snapshot of a post-war Britain where disability suddenly became visible: "Poignant, defiant notes by men living with war wounds show the roots of the ongoing fight for disability rights taking hold". (Jan, Inews)
Jamaicans with disabilities facing ‘unjust’ deportation from UK. “Most of the Jamaicans facing deportation next week on a government flight live with a disability or health problem and came to Britain as children” (May, Independent)
Non-verbal black teenager who has never left UK detained at immigration centre. “Boy who went missing from hospital arrested and held at Gatwick facility after being wrongly recorded as Nigerian” (Apr, the Guardian)
A Mural on Disability and Migration bringing together the disabled movement and asylum sector. (Youtube, Dec, Disability Murals)
A new book, open access, Deprivation of Liberty in the Shadows of the Institution on how restrictive practices from institutions continued as services were provided in the community. (Mar, Bristol University Press)
My Freedom A retrospective on the 10th anniversary of abuse reported at residential facility Winterbourne View. "My freedom means I go to bed when I want. " (Bemix)
The shameful legacy of the Lennox Castle hospital Scotland's largest institutiono for people with learning disabilities, which closed 20 years ago. (Jan, BBC)
On the new International Development Strategy, People with Disabilities don’t have the luxury of time “there is no observable strategy to focus concerted efforts on eradicating poverty and improving the lives of the most marginalised.” (May, CBM UK)
UK Government's Strategy for International Development must include older people “we are disappointed that the Strategy did not refer explicitly to the impact of global ageing, did not consider needs throughout the life course, or address the specific needs and rights of older people.” (May, Age International)
Meeting the Ambition of the new FCDO Disability Inclusion & Rights Strategy (Apr, CBM UK)
Launch of a new development policy, FCDO disability inclusion and rights strategy 2022 to 2030. See a blog post welcoming the new strategy from CBM UK. (Feb, Gov UK)
Pushing at the Boundaries of Legal Personhood. “Could we then imagine a framework of legal personhood that recognises persons with removeable parts?” (Jun, Frontiers of Sociolegal Studies)
Disabled people don’t need your outrage – we need you to fight with us for change (Jul, the Guardian)
What Does it Mean to Forge a Body? Autonomy through Disability Cures and Gender Transition (Apr, Catch these Words)
I'm treated differently depending on what kind of wheelchair I use - on the difference between using a manual and powered wheelchair. (Feb, Metro)
“No you’re not” collection of profiles of autistic women (Feb, Wellcome Collection)
My Life With Dynamic Disabilities: What You Should Know (Dec, Refinery29)
Unbound an animation reacting to the phrase "wheelchair bound": "my wheels travel the world, and they dance, whirl in light and colour" (subtitles but no visual description, Dec, BBC)
The Guardian view on mental health privatisation: unsafe spaces. “Businesses that fail patients while making profit margins of 15%-20% are no substitute for investment in the NHS” (Apr, the Guardian)
Autistic people are six times more likely to attempt suicide – poor mental health support may be to blame (Apr, The Conversation)
A critique of digital mental health via assessing the psychodigitalisation of the COVID-19 crisis (Feb, Psychotherapy and Politics International)
Disabled passengers bearing brunt of travel disruption (Jun, the Guardian)
Airports must stop failing disabled passengers, says UK regulator. (Jun, the Guardian)
Disabled campaigners are to thank for accessibility on the Elizabeth Line “A decade ago, Transport for All campaigned hard for the Line to be accessible, and were successful in securing £33 million additional investment to make this happen” (May, Transport for All) The Elizabeth Line will make a big difference for me in getting across London. Can't wait to try it out.
Death of blind man hit by train ruled accident. ‘Matt Stringer, chief executive of the Royal National Institute of Blind People, said the death "was not an isolated incident".’ (May, BBC) See also other experiences and reflections on access issues at train stations.
UK Ministry of Justice Treats People with Disabilities as an Afterthought: "Human Rights Act Consultation Exercise Fails Fully to Include People with Disabilities". (Mar, Human Rights Watch)
Bristol appoints disability equality commissioners to tackle inequality Interesting to see this at city-level. (Feb, Bristol)
High Court declares National Disability Strategy unlawful due to inadequate consultation (Jan, Bindmans)
Breaking down Barriers: a report on Improving Disabled Representation & Participation (Mar, Disability Policy Centre)
‘Deaf’ Liz Truss – a curious choice of insult reflecting on the Russian Foreign Minister's comments. (Limping Chicken)
Do accessible sex toys exist? Podcast (no transcript, Feb, BBC)
Activity levels among disabled people have failed to return to pre-Covid levels (Jun, the Guardian)
‘Stare at me because I deserve to be stared at’: Lauren Steadman and the evolution of representation at the Paralympics (Mar, the 19th)
Older people’s organisations across the UK call on the Prime Minister to take further action to support older people affected by war in Ukraine (10 Mar, Older People's Commissioner for Wales)
Back to contents.
More than 30 years after ADA, cities fail to be accessible (Jun, ABC 15)
New York: What is the megacity like for people with disabilities? “New York City, one of the world’s largest and most diverse cities, is considered by some to be one of the least accessible in the United States when it comes to public transportation.” (Mar, Aljazeera)
‘Where the bats hung out’: How a basement hideaway at UC Berkeley nurtured a generation of blind innovators (Mar, Stat)
Accessible NYC A summary of what the city authorities are doing for accessibility and inclusion. (links to pdf, NYC)
America Was in an Early-Death Crisis Long Before COVID (Jul, The Atlantic)
Disability At Home practical solutions and photographs that “document the ingenuity and creativity that caregivers and disabled people, including those with chronic illnesses, use every day to make home accessible.” (Laura Mauldin)
This is old, but I liked seeing this wheelchair kitted-out to plow snow with tracks and an attached blade. (2016, WOWT 6 News)
Racial disparities persist for disabled youth in spending on services for California children and teens with developmental disabilities. (May, Los Angeles Times)
How Disability Exacerbates Anti-Blackness: Anti-Blackness and Ableism Led to Ryan Coogler's Arrest (Mar, ARD)
Discussion of the book Mark of Slavery and its exploration of the intersection of slavery and disability. (Feb, Disability Insider)
Asian Americans with disabilities are often overlooked. A new youth-led group aims to change that. (Jan, NBC News)
COVID continues to hit nursing homes harder, “Cases are surging everywhere, and nursing home residents remain more likely to face severe illness and death.” (Jul, 19th News)
Employment Consequences of COVID-19 for People with Disabilities and Employers. "The pandemic adversely affected employment of PWD as reported by workers and employers. Findings parallel the experience of the non-disabled workforce, but reveal vulnerabilities that reflect disability consequences and the need for job accommodations." (Jan, Journal of Occupational Rehabilitation)
"COVID-19 Likely Resulted in 1.2 Million More Disabled People by the End of 2021" More information would be needed to substantiate the claim about 1.2 million disabled people, as it’s not clear whether higher numbers are due to changes in individual circumstances or changes in the environment. (Thanks to Jennifer Madans for background on this., Feb, American Progress)
People with Disabilities and COVID-19 Economic Impact Payments “Persons with disabilities were significantly more likely to spend their checks on basic needs, like food and rent, and less likely to spend on second-order items like charity or savings. These results suggest that future stimulus efforts should consider an increased amount for persons with disabilities.” (May, Journal of Poverty)
The White House releases a plan to help people who are especially vulnerable to Covid-19. (Feb, NYT)
Disabled Deaths Are Not Your “Encouraging News” '“Comorbidities” is a weaselly, cruel, violent word.' (Jan, Disability Visibility Project)
A letter to the health authorities responding to CDC comments that had referred to the deaths of those 'unwell to begin with': "The public health response to COVID-19 has treated people with disabilities as disposable." See more on Huffpost (link to pdf, Jan, coalition of disability organizations)
High-Risk Pandemic Stories: A Syllabus. "We are not alone" (Jan, Disability Visibility Project)
Biden and CDC's Covid-19 variant guidelines "have disabled people feeling left for dead" (Jan, MSNBC)
The Equal Employment Opportunity Commissions details when COVID-19 can be a disability including if you get fired because of having symptoms of COVID-19 (Dec, The Hill)
Rest May Be the Best Treatment for Long COVID. Our Disability Policies Should Reflect That. “The continuing crisis around long COVID should inspire policymakers to embrace a more flexible frame of reference around what it means to be disabled, and to design more generous short-term disability policies, including a federal short-term disability benefit. Allowing long haulers to rest in the short term might help them avoid years or decades of significant, often disabling long-term health consequences.” (Jul, TCF)
Many try to return to normal from COVID, but disabled people face a different reality “All we're really asking for is for a masking policy that will allow us to be able to go to the store, to go to the doctor, go get the mail, without risking [our health],” (Jul, NPR)
Long Covid Is Showing Up in the Employment Data (Jun, Washington Post)
Patients with long covid symptoms face tough disability benefit fights: "Patients and doctors say safety net is unprepared for novel claims stemming from the pandemic". (Mar, Washington Post)
The Millions of People Stuck in Pandemic Limbo 'Each individual infection is its own high-stakes gamble. [...] Over the past year, as many Americans reveled in their restored freedoms, many immunocompromised people felt theirs shrinking.':
'As the coronavirus moves from a furious boil to a gentle simmer, many immunocompromised people (like everyone else) hope to slowly expand their life again. But right now, “it’s like asking someone who cannot swim to jump into the ocean instead of trying a pool,” [...]'
'Beyond equitable access to treatments, the people I spoke with mostly want structural changes—better ventilation standards, widespread availability of tests, paid sick leave, and measures to improve vaccination rates. Above all else, they want flexibility, in both private and public spaces. That means remote-work and remote-school options, but also mask mandates for essential spaces such as grocery stores and pharmacies [...] But in terms of what individual people can do for them, the most common request I heard was: Just have a heart. Regardless of your own choices, don’t jeer at us for being mindful of our higher risks, and definitely don’t tell us that our lives are worth less.' (Feb, The Atlantic)
At-Home Coronavirus Tests Are Inaccessible to Blind People: “It’s your personal health information, you should be the first to know." (Jan, NYT)
What Does ‘Living With Covid-19’ Mean For Disabled And Chronically Ill People? A useful balanced view of pessimistic and hopeful outcomes. (Dec, Forbes)
32 Years After the ADA, People with Disabilities Still Are Left Behind in Faith Institutions as religious organizations have exemptions from the law. (Jul, Respect Ability)
5 Reasons Why Disability Activism Is Still Hard One is that “Like the rest of society, disabled people are divided and polarized” (May, Forbes)
Foundations Pledge More Than $3 Million to Launch Disability-Focused Philanthropy-Serving Organization. See also on the disability inclusion pledge which has been signed by over sixty philanthropic organizations. (Mar, Disability & Philanthropy Forum)
It’s not just heat stroke. Extreme temperatures pose special risk to people with chronic illness (Jul, Statnews)
Where Food Sustainability and Disability Clash “Services like grocery and meal delivery are generally not environmentally or worker-friendly, using lots of single-use plastic and relying on underpaid gig workers. But they’re often the safest and most accessible avenues for disabled and chronically ill people.” (Jun, FoodPrint)
Ageing and the Climate Crisis aging (Jun, ASA Generations)
In best of times, New Orleans is hard on people with disabilities. In hurricanes, it's deadly. (Jun, Nola)
Severe weather can mean life or death for people with disabilities. (May, Fox9)
Climate change is forcing care workers to act as first responders. “A new pilot program in California aims to provide the training and resources they need to take care of their clients and themselves. But advocates say increased responsibility should equal more pay.” (May, 19th News)
Ensuring the Safety of People With Disabilities During Climate Change (Apr, Santa Clara University)
DeafBlind Communities May Be Creating a New Language of Touch. “Protactile began as a movement for autonomy and a system of tactile communication. Now, some linguists argue, it is becoming a language of its own” (May, New Yorker)
Mean Baby by Selma Blair review “Written with warmth and candour, the actor’s new memoir chronicles her alcoholism and MS diagnosis – alongside tales of dressing up with Carrie Fisher” (Jul, the Guardian)
Disability in Theatre: Strategies for Combating Ableism by Meeting Actors’ Access Needs. (Apr, On Stage Blog)
How The Grammys Got Accessibility Right, And What They Could Have Done Better - An Interview With Lachi (Apr, Forbes)
Contemplating Beauty in a Disabled Body “My looks don’t fit into classical ideals of order, proportion, symmetry. So what was I looking for in that gallery in Rome?” (Mar, New York Times Magazine) An essay by Chloé Cooper Jones, whose book Easy Beauty has just come out. I enjoyed her discussion of the book on longform, sadly no transcript.
Review of ‘True Biz,’ by Sara Novic (Mar, NYT) See also a discussion on Power, Privilege, and Love in a Residential School for Deaf Students (Electric Literature).
Sofía Jirau Makes History as the First Victoria’s Secret Model With Down Syndrome (Feb, Glamour)
Disability Justice from A to Z A Coloring Book For Our Communities (Jan, Sins Invalid)
Beauty & Disability The Entrenched History of Ableism in the Beauty Industry (Dec, World Institute on Disability)
Accurate Disability Representation In Mass Media: 8 Powerful Film and Television Performances By Actors With Disabilities. (May, Kids Included Together)
DisLabeled, a short pilot episode, The Original Hackers. “Join comedian Brian McCarthy and other disabled designers, creators, and advocates who help him navigate his sudden vision loss with humor, innovation, and authenticity.” (Mar, Bric TV)
‘As We See It’ Is Not a Typical Portrayal of Autism starring three leads who are on the autism spectrum (Jan, NYT)
Ahead of the Golden Globes Shining a Spotlight on Disability-Inclusive Nominations (Jan, Respect Ability)
Disability Matters: A toolkit for newsrooms to better serve the disability community (Apr, Reynolds Journalism Institute)
"Although I was happy to learn that Starbucks was trying to be more inclusive, to me, hiring people with disabilities isn’t a big news story — and neither is a corporation making one store accessible to deaf and hard-of-hearing customers. I felt that the real story was how some of those workers had master’s degrees, yet they had trouble finding jobs elsewhere because of their disability." (Feb, NYT)
Short video campaign Spotlights Black Disabled Creatives (Feb, Respect Ability)
Disability Data Snapshot: Asian Americans and Pacific Islanders. (Jul, U.S. Department of Labor Blog)
Anticipate and Adjust: Cultivating Access in Human-Centered Methods. (Summary of a research paper on approaches to accessibility in human-computer interaction research communities., Apr, Kelly Mack)
Fulfilling our commitment to accessibility and inclusion reports from a recent "digital forum" (Feb, Microsoft Industry Blogs)
Ableism And Disability Discrimination In New Surveillance Technologies. How new surveillance technologies in education, policing, health care, and the workplace disproportionately harm disabled people (May, CDT)
The Biden Administration warns that Hiring algorithms, and artificial intelligence risk violating Americans with Disabilities Act (May, NBC News) See the detailed guidance, from the Equal Employment Opportunity Commission and a summary from ADA.gov. Also on Forbes and Bloomberg Law.
In Our Tech Reckoning, People with Disabilities are Demanding a Reckoning of their Own (Jan, Tech Policy Press)
How AI is being used to improve disability employment (Jan, Microsoft)
How Accessible are Dating Apps? “these services offer little to no recourse for individuals who may have visual impairments.” (Jul, Accessibility.com)
For people with disabilities, AI can only go so far to make the web more accessible (May, Protocol)
LGBTQ+ artists and those with disabilities see Etsy as a lifeline “Many sellers who live at the intersection of multiple marginalized identities were already struggling before the e-commerce site’s latest fee increase.” (Apr, 19th News)
App & Web Accessibility Lawsuits Break Records (Dec, UsableNet)
Who’s in Charge? Information Technology and Disability Justice in the United States. 'Can disabled people be called “users” or said to “have access” to technology if they are regularly denied agency over how they use technology?'
"Disabled people in the United States are surrounded, defined, and, to some degree, controlled by data, technology, and information—from medical technology and therapies to educational systems to social and government services and policies that shape their lives. The extent to which they can access and use technologies to accomplish their own goals is less clear. This review discusses access to data and technology for people with disabilities, focusing on agency and digital transinstitutionalization—the extension of institutional frameworks, such as surveillance and control, from state hospitals into community settings via data-driven technologies." (March, Just Tech)
Ending the Two-Tier System of Disability Benefits. If you're not already familiar with how Supplemental Security Income (SSI) works, this article has the gruesome lowdown: benefits below the federal poverty line, and you are ineligible to receive them if you don't have other earnings or assets over $2000. (Apr, Brown Political Review) See more on how policy punishes disabled people who save more than $2,000 from Full Stack Economics.
The Impacts of Disability Benefits on Employment and Crime Discontinuing benefits for children with disabilities as they become adults “increased criminal charges substantially“. (Apr, NBER)
Data breach may have exposed personal information of Oklahomans on disability aid list (Mar, The Oklahoman)
The Care Crisis Isn’t What You Think "When it comes to disability, we devalue care (both caregiving and paid care work) because we devalue the people who need it." (Jan, Prospect)
One of the awful features of some disability-related benefits is a limit of the assets that a recipient can have. California just raised the assets limits for medicare from 2000 USD to 130,000 USD. (link to pdf, Dec, State of California)
Tax authorities raise limit allowed benefit recipients in saving accounts (Jan, Disability Scoop)
Surveillance Tech Is Wrongly Accusing Disabled Students of Cheating on Tests (Jun, Truthout)
Reflections on Disabled Students & Active Shooter Preparedness “How can we use anti-ableism in all aspects of gun violence prevention?” (May, Crip News)
Longest Sit-In in UCLA History Ends with Massive Victory for Students: "A 16-day sit-in by a coalition of students striking for hybrid access and equity for marginalized students got results. " (Feb, Knock LA)
I Gave My Child a Smartphone and It's Been the Best Thing for Her. More screen time has been beneficial for my disabled 10-year-old daughter. Here are five rules that make it all work for us. (Feb, Wired)
Cost of Heaven a moving exploration through graphics and text on the closure of a deaf school and importance of its heritage. "The cultural strength of the Deaf schools enable children to learn without the constant pressure to 'overcome' disability." (text transcript also available, Adrean Clark)
College students with disabilities deserve accessible spaces “Student journalists at the University of Maryland spent months scrutinizing their campus and talking to people with disabilities. More college newspapers should.” (May, Washington Post)
Students push for Persons with Disabilities Cultural Center (Feb, Yale News)
New edited collection on Neurodiversity in the Workplace: Interests, Issues and Opportunities. “This collection provides an opportunity to look at how discrimination can occur across the employment process and what can be done to minimize the exclusionary practices that prevent neurodiverse individuals from getting into the workplace, advancing, thriving, and contributing as each of us desires to do.” The chapter on Shaping Organizational Climates to Develop and Leverage Workforce Neurodiversity is open access. (Jul, Routledge)
Making the ‘Business Case for Diversity’ Can Backfire with Underrepresented Groups by leading to a lower sense of belonging. (Jun, Yale Insights)
Detailed report on how Economic Justice Is Disability Justice “Achieving the as-yet unrealized promises of the ADA—and finally breaking the persistent link between disability and poverty in the United States—will require applying a disability lens across the nation’s economic policymaking.” (TCF) See also 7 Facts About the Economic Crisis Facing People with Disabilities in the United States.
Brand activism floods 'disability awareness' holidays. But too often, it ends there as well. (Mar, Business Insider)
Unemployment Soars for New Yorkers With Disabilities as Challenges Outweigh New Opportunities. ”New technologies and an explosion of remote-work jobs hasn’t stopped the unemployment rate for New Yorkers with disabilities from jumping 10 percentage points since 2019, while funding for support groups has been slashed.” (Mar, The City)
How Managers Can Support Employees With Long COVID (Mar, MIT Sloan)
New Microsoft program connects recruiters with neurodivergent talent on a Neurodiversity Career Connector job portal. (Mar, HR Brew)
U.S. Department of Labor eliminates exemption for federal contractors with disabilities to be paid less than the minimum wage (Nov, Council of State Governments)
At last, medical guidelines address care for adults with Down syndrome. (Jul, Washington Post)
The autistic community is having a reckoning with Applied Behaviour Analysis (ABA) therapy. Includes interesting reflections on the privatization of autism services and how ‘ABA has become “the single most reliable way to make money in the human services field beyond being a physician.”’ (May, Fortune)
Key groups overlooked in bias training for doctors (May, The Boston Globe)
Committing to Health Equity for All, Including People with Disability (Apr, Mathematica)
Severe maternal morbidity and other perinatal complications among women with disabilities. (Apr, Paediatric and Perinatal Epidemiology)
Ageism: Signs, Causes, and How to Address It (Mar, Healthline)
An article on Ableism: Types, examples, impact, and anti-ableism. “In healthcare, ableism can affect interactions with doctors and other professionals, healthcare policies, and health outcomes. The idea that disabled people have less value or lower-quality lives contributes to damaging practices that persist today.” (Nov)
A new book, Deaf Rhetoric “An Ecology of Health Communication” (Jan, Spriner)
People with disabilities left behind by telemedicine and other pandemic medical innovations. (Mar, CNN)
Why billions in Medicaid funds for people with disabilities are being held up (Mar, NPR)
Technical Standards from Newly Established Medical Schools: Review of Disability Inclusive Practices: "medical schools may perpetuate historically restrictive technical standards that serve as barriers to applicants with disabilities." (Jan, Journal of Medical Education and Curricular Development)
'I am a medical student with significant hearing loss. ': Here’s what the pandemic has been like for me and others with my disability (Jan, AAMC)
Program Access, Depressive Symptoms, and Medical Errors Among Resident Physicians With Disability. 'Our study establishes an association between a lack of accessibility and heightened risk for depression and self-reported medical errors during training.' (Dec, JAMA Network)
Pregnancy among Women with Physical Disabilities: Unmet Needs and Recommendations (Jan, Brandeis)
Why the Formula Shortage Is Also a Disability Rights Issue (Yes Magazine)
Life at a Distance: Archiving Disability Cultures of Remote Participation. “Autistic self-advocacy, for instance, famously emerged in the 1990s from internet discussion boards, which allowed autistic adults to connect and form communities without having to socialize in person (Sinclair 2010). Even earlier, in the 1940s and 50s, institutionalized disabled people used technologies such as sending quilt patches to their families (as forms of storytelling), while disabled people living at home with families shared tips and tricks in print newsletters for making houses more accessible” (Jun, Just Tech)
Google Doodle Honors Disability Rights Activist Stacey Park Milbern (May, CNET)
Inside the Pentagon’s shameful effort to draft mentally disabled men to fight in Vietnam (May, Task & Purpose)
Harriet Tubman’s Disability and Why it Matters (Feb, Ms Magazine)
The Helen Keller Exorcism. Brilliant rollercoaster-ride of an episode, remembering Helen Keller and her myths today. (complete with transcript, Mar, Radiolab) See also a feature on Helen Keller's Legacy (Teen Vogue).
Neil Marcus, Whose Art Illuminated Disability, Dies at 67 See more about Neil in the introduction and the last newsletter. (Dec, NYT)
The letter that Helen Keller wrote after she visited the Empire State Building. > I will concede that my guides saw a thousand things that escaped me from the top of the Empire Building, but I am not envious. For imagination creates distances and horizons that reach to the end of the world. It is as easy for the mind to think in stars as in cobble-stones. (Jan, Letters of Note)
Refugees with Disabilities Struggle to Join the Workforce (May, Chicago Monitor)
Profit, Pain and Private Equity: ‘BrightSpring Health Services, which KKR bought in 2019, says it helps thousands of people with disabilities “live their best lives.”’:
‘But a yearlong BuzzFeed News investigation found that KKR focused on expanding the business even as a crisis mounted in its group home division, where conditions grew so dire that nurses and caretakers quit in droves, a state prohibited the company from accepting new residents, and some of the most vulnerable people in its care suffered and died.’ (May, Buzzfeed News)
House Approves Ban On Electric Shock Devices For Those With Developmental Disabilities. (Jun, Disability Scoop)
Lawsuit argues the Americans with Disabilities Act should apply to transgender rights (May, Washington Post)
A discussion about the relationships between law, political economy and disability (LPE Project)
Discussion on When an Intellectual Disability Means Life or Death revisiting the case of Pervis Payne and how a disability claim reduced his death sentence to life in jail after over 30 years. (Jan, Undark)
Americans with Disabilities Act Turns 32 Buys a Motorcycle and Gets a Cute Pixie Cut (Jul, The Squeaky Wheel)
Observing Disability Pride Month this July (Jul, Human Rights Watch)
Selma Blair: It’s Time We Shift the Story About How Disabled People Are Represented (Jul, Variety)
Disabled Community Disappointed that Corporations Don't Pander to Them During Disability Pride Month “I have the right to be pandered to and patronized just like any able-bodied person,” one disabled consumer told us. “I already pay more for accessibility in my daily life; I have the right to pay more for branded pride merch too.” (Jul, Squeaky Wheel)
‘Is That Ableist?’ Good Question. (Jul, NYT)
The Tragedy of Nondisability: A Sad and Boring Life. “As crip testimonies show, it can be a relief to be liberated from nondisabled culture, with its fixation on prescriptive life-stages and rituals, to be followed in a specific way and at specific times from birth until death. Crip culture stands in opposition to this culture, as a site of non-normativity, resistance, and playful world-building.” (Jul, Biopolitical Philosophy)
What Counts as Seeing A conversation between Alice Wong and Ed Yong, about Ed Yong's books on biology. Includes reflections on ableism in scientific writing:
“I’ve read a lot of writing on the senses, both about humans and other animals, and it’s really striking to me that people gravitate towards big, sweeping statements about humans as a species that clearly don’t apply to all members of the species. One of the most common things you’ll read on this topic, from almost any source, is that humans are a visual species. We are visual creatures. That’s true on average, but millions of people are blind or have sight impairments. So if you’re a blind person, what does it mean to have someone repeatedly tell you humans are a visual species? Does that mean that you’re less than human?” (Orion Magazine)
In New York City, a video feature on wheelchair users, discussing adaptive sports, accessibility and inclusion. (Jun, CUNY TV)
“The concept of crip time emerges from disabled experience and acknowledges that people with disabilities experience time and the demands of time differently from nondisabled persons. Crip time means that we may need to sleep more or longer, that it may take us longer to cook a meal, that it might take longer to get from point A to point B, or—most relevant to the academy—that it might take longer to write the book, that we may need to schedule meetings later in the day because that is when our bodies and minds are most functional, or that we may need additional time on our tenure clock because of health-related disruptions in our scholarly production.” (Jun, Inside Higher Ed)
Short documentary film, My Disability Roadmap “The path to adulthood is a precarious one for those with disabilities. So Samuel Habib, 21, seeks out guidance from America’s most rebellious disability activists.” (May, NYT) The NYT page doesn't load properly for me; you can also see the film at Like Right Films.
Autism Speaks, and It’s Telling Allistics to Shut Up (Apr, Jonah Rothman)
I'm Deaf And I Have 'Perfect' Speech. Here's Why It's Actually A Nightmare. (Apr, HuffPost)
Rebecca Cokley on her Break-up with Little People America:
“It is harmful to be surrounded by people who are actively celebrating the eradication of your people. Because the reality is, average height people and corporations don’t see us as a distinct people, as a culture. We are patients and a market. A majority of average height family members see us as a flaw in the genetic code, a reminder that their loved one is not EXACTLY like everyone else in their family. For some parents, our dwarfism is a reminder that there is always something that they will not fully understand about their child.” (Mar, Disability Visibility Project)
After Disability Awareness, What’s Next? (Feb, Forbes)
'As I hopped across genres [of writing], and from page to screen, nondisabled people would ask, “Why don’t you just be yourself?” and I would hear, in their question, Tell the story we expect: Your disabled life is very hard, you are very sad, but then you overcome it and are very happy. I refused. I’m not Cyborg Cinderella. I’m not a parable. I’m an artist.' (Mar, The Cut)
Dave Grohl, of Foo Fighters and previously Nirvana, talks about hearing loss: ‘I’ve Been Reading Lips For 20 Years’ “I’m a rock musician. I’m fucking deaf. I can’t hear what you’re saying.” - and more on how he performs and makes music. (Feb, HuffPost)
NPR Life Kit: Don't be scared to talk about disabilities. Here's what to know and what to say, feature with Emily Ladau, with links to further resources. (Feb, NPR)
Disabilities are not binary. Why do we treat them that way? (Feb, AAMC)
Ableism Is More Than A Breach Of Etiquette — It Has Consequences (Feb, Forbes)
Q&A With Lainey Feingold, Disability Rights Lawyer on structured negotiation and "negotiating instead of suing". (Equal Entry)
An interesting twitter thread from @cmmhartmann on "feel[ing] torn about the trend of people describing their physical appearance during meetings for those who are blind/low vision. [...] I am uneasy with the assumption that visual details are better." (Feb)
If you're interested in controversy about Autism, see this Position Statement on Language, Images and Depictions Concerning Severe Autism This statement criticizes "vocal activists and autism self-advocates" in ways that I don't agree with, but I provide this FYI and because there are important issues in play. (Feb, NCSA)
You Are Not Entitled To Our Deaths COVID, Abled Supremacy & Interdependence
"My people are dying and terrified. And you don’t seem to care. You don’t seem to care because you don’t see them–see us–as your people too. When you talk to me about racial justice or housing justice or healing justice or gender justice, who exactly are you talking about? Whose justice are you fighting for? Because it never seems to include disabled people or if it does, it is only in theory, not practice; only to make yourself look better. Or only when disabled people are in the room or when disabled people initiate the conversation. " (
"My people are dying and terrified. And you don’t seem to care. You don’t seem to care because you don’t see them–see us–as your people too. When you talk to me about racial justice or housing justice or healing justice or gender justice, who exactly are you talking about? Whose justice are you fighting for? Because it never seems to include disabled people or if it does, it is only in theory, not practice; only to make yourself look better. Or only when disabled people are in the room or when disabled people initiate the conversation. ", Jan, Mia Mingus)
Tina's art: "How I see the world" Art and photography from someone with Cerebral visual impairment. (Perkins)
On Marta Russell’s Money Model of Disability Locating disability in its economic circumstances, rather than in terms of stigma: seeing the industries of charity and care that commodify disabled people. (Dec, Blind Archive)
"Crip ecologies, crip time, crip ingenuity, crip spirit radically aim to question root systems that keep our imaginations limited and starved. How can we channel joy within our own skins before there is the stethoscope, the specialist’s jackhammered interrogation, before all the stigma we battle? I am not asking to look beyond it, because these constraints in our beings are here and ever-present. I am asking, as poets, as curious people who want liberation, how do we revel in the grief and also the growth we experience? In what ways does this unpack how we are taught to perceive place and nature?" (Jan, Poetry Foundation)
Reframing Entrepreneurship And Disability To Shape A New Business Culture describes the way we make changes within organizations as 'intrapreneurship'. (Dec, Forbes)
Working definition of Ableism updated in January 2022:
A system of assigning value to people's bodies and minds based on societally constructed ideas of normalcy, productivity, desirability, intelligence, excellence, and fitness. These constructed ideas are deeply rooted in eugenics, anti-Blackness, misogyny, colonialism, imperialism, and capitalism. This systemic oppression that leads to people and society determining people's value based on their culture, age, language, appearance, religion, birth or living place, "health/wellness", and/or their ability to satisfactorily re/produce, "excel" and "behave." You do not have to be disabled to experience ableism. (Jan, Talila Lewis)
This Teen Shared Her Troubles With a Robot. Could AI ‘Chatbots’ Solve the Youth Mental Health Crisis? “The pandemic hit and this technology basically skyrocketed. Everywhere I turn now there’s a new chatbot promising to deliver new things,” (Apr, 74 Million)
Doctors Gave Her Antipsychotics. She Decided to Live With Her Voices: “A new movement wants to shift mainstream thinking away from medication and toward greater acceptance.” (May, New York Times)
The Department of Transport Announces First-Ever Bill of Rights for Passengers with Disabilities. The Bill of Rights describes 10 rights for airline passengers with disabilities. (Jul, Department of Transportation)
In New York, M.T.A. Vows to Make Subways 95% Accessible. “It Will Take 33 Years.” (Jun, NYT)
Amtrak Pays $2.25 Million to Disabled People Who Were Unable to Access Train Stations (Jan, Newsweek)
How 3 travelers with disabilities or chronic illness navigate the world "These travelers cope with an added layer of worry and logistics. Here’s how they do it." (Jan, Washington Post)
Accessible Cars Aren’t Born, They’re Made "Car buyers looking for specific mobility features have limited options, but customizers and manufacturers are trying to change that." (Jan, Wired)
Good to see that in NYC the pilor shared e-scooter scheme included possibility to rent wheelchairs or mobility scooters. (Jan, NYC Scooter Share)
What’s Next For Disability Policy? (Apr, Forbes)
Why Vice President Kamala Harris mentioned her blue suit at a disability rights meeting a great set of reflections on the importance to give visual descriptions. (Jul, 19th News)
5 Disability Issue Questions To Ask State And Local Midterm Election Candidates (Jun, Forbes)
Wisconsin voters with disabilities say their right to vote is at risk (May, NPR)
“2020 was probably the most accessible election we’ve seen,” said Michelle Bishop, the voter access and engagement manager at National Disability Rights Network. “We made a lot of changes in response to Covid, which also happened to be best practices for making voting more accessible for people with disabilities. But we are still in the period of pushback to all of those positive changes.” (Apr, Vox)
in Louisiana Disabled people face GOP pushback in bid to study voting access (Apr, Louisiana Illuminator)
The Ignominious Deceits of Congressman Cawthorn ”Representative Madison Cawthorn has misled the public about training for the Paralympics, just as he misrepresented his education and business history.” (Jan, The Nation)
Reflections on the 6th January Insurrection attempt includes a condemnation of people involved using disability to try to get off criminal charges: including the so-called QAnon Shaman attempt to invoke autism. (Jan, AAPD)
For a Woman in a Wheelchair, Abortion Access Was One More Challenge (Jul, NYT)
With Roe v. Wade overturned, disabled people reflect on how it will impact them (NPR) See also the dire cost of forced birth for people with disabilities (Huffington Post).
Statement on the Supreme Court’s Ruling Overturning the Right to Abortion “We are more likely to be sexually assaulted. Especially people with intellectual and developmental disabilities. Some of us have complex medical conditions and pregnancy is dangerous. The government already tries to control our lives and our bodies. Disabled people need abortion.” (Jun, DREDF) See also from AAPD and others.
How do people with disabilities feel about abortion? Ives-Rublee, one of the co-authors, says “I think it’s extremely important for us to expand the way we talk about the impact of having a bodily autonomy, to include abortion access, but to include all of these other issues that particularly affect the disability community.” (May, 19th News)
Reproductive Justice for Disabled Women: Ending Systemic Discrimination. “As access to reproductive rights continues to shrink in the United States, disabled women struggle to gain visibility around their rights and needs.” (Apr, American Progress)
Book review of Eradicating Deafness? Genetics, Pathology, and Diversity in Twentieth-Century America. (Mar, H-Disability)
Sex Workers and Persons With Disabilities: "Persons with disabilities are often taught by society to feel guilty or ashamed of asking for accommodations – seeing a sex worker may overcome that by explicitly focusing on the client’s needs and abilities." (Mar, Psychology Today)
Disability-inspired Valentines Cards "The illness may be chronic but together we're iconic" (Feb, Squeaky Wheel on twitter)
Forced Sterilization of Disabled People in the United States: "Laws allowing forced sterilization exist in 31 states plus Washington, D.C." The latest were passed in 2019. (Jan, NWCL)
"Done right, prenatal testing could allow parents to prepare well for the birth of their children. But without broad social acceptance of people with disabilities, without a medical establishment that conveys the positive social situations of many people with disabilities, and without funding for accurate and up-to-date information in the face of a prenatal diagnosis, more and more women will face decisions about their pregnancies without the support they deserve." (Feb, NYT)
We Talked To People Living With Disabilities About Sex And Here's What They Had To Say (Dec, BuzzFeed)
I was very happy to find The Squeaky Wheel: a parody disability news site - think the Onion, but for us
This space company wants to help people with disabilities become astronauts “So often we make design decisions up front that are exclusionary to entire segments of the population. That’s why I’m so excited about space. Space, to me, is a blank canvas.” and “NASA proved that deaf space flight participants would be more adaptable to the foreign gravitational environments, and yet there has never been a deaf astronaut.” (Dec, The Hill)
The Hardest Part About Being a Deaf Hiker? Everyone Else. (Jun, Backpacker)
Deaf Performers Were Not Included At The Halftime Show: Separate is Not Equal. See a more positive article on inclusion of deaf rappers. (Feb, Access Vine)
‘I need to speak my truth’: Allegations of emotional abuse led to the resignation of the Paralympic women’s wheelchair basketball coach (Dec, 19th News)
2022 Anti-Filicide Toolkit. Parents murdering their disabled children is reported in the media as "justifiable and inevitable" and this contributes to a cycle of violence. (March, Autistic Self Advocacy Network)
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“The weather is not good”: exploring the menstrual health experiences of menstruators with and without disabilities:
“Menstrual restrictions were widespread for all, but collecting water and managing menstrual materials was harder for menstruators with disabilities, particularly those requiring caregivers’ support. These factors negatively impacted menstruators with disabilities’ comfort, safety and hygiene, yet they reported less interference of menstruation on participation. [...] Menstruators with disabilities may have reported less interference because they are accustomed to greater participation restrictions than others.” (Jan, Lancet Regional Health - Western Pacific)
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Pope Francis uses wheelchair in public for the first time (May, the Guardian)
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Experts of the Committee on the Rights of Persons with Disabilities Ask about Braille and Sign Language in Education and Public Life and about the Situation of Women with Disabilities (Mar, OHCHR)
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Efforts made to ensure best care for children with disabilities (Apr, Vietnam Plus)
A project officer with disability reflects on his experience in CBM's project (Feb, CBM Australia)
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Information and Communication Technologies and Inclusive Education "Despite their potential to foster inclusive learning, the use of ICT in schools in the intervention countries faces a number of barriers" (Humanity and Inclusion)
ECOWAS hosts regional experts’ meeting on disability inclusion to validate a regional plan of action. (Apr, ECOWAS)
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Alarming new report on the dire situation for people with disabilities. 81% of those surveyed could not reach or use humanitarian services. Of the 300 local organizations providing disability services before the war, “only a fraction remain, with extremely limited capacity and resources”. One person interviewed said that:
“we simply cannot escape when explosions or armed clashes take place. This is a fear of every Yemeni, yet our limitations prevent us from being able to quickly get away from such hostile situations. It is a constant fear persons with disabilities in Yemen live with, and it’s holding us back from being able to do many things such as looking for sources of income.” (May, Humanity & Inclusion)
A feature on safe latrines for the Bait Al-Amir community includes a section on inclusion of persons with disabilities. (Feb, Sanitation Learning Hub)
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A path toward disability-inclusive health in Zimbabwe Part 1: A qualitative study on access to healthcare “People with disabilities experienced difficulties accessing health services in Zimbabwe prior to COVID-19. These experiences were shaped by health literacy, self-stigma and affordability of services, which limited demand. Supply of health services was constrained by the perceived poor capacity of health workers to treat people with disabilities and discrimination. Inclusion was facilitated by clinic staff support of people with disabilities’ access to medication through referral to mission hospitals and private clinics, and the lobbying of organisations of people with disabilities.” (May, African Journal of Disability)
A path toward disability-inclusive health in Zimbabwe Part 2: A qualitative study on the national response to COVID-19 “People with disabilities demonstrated good awareness of COVID-19 mitigation strategies, but faced difficulties accessing COVID-19 information and health services. Challenges to the implementation of COVID-19 guidelines related to a person’s functional impairment and financial ability to do so. A key supply-side constraint was the perceived de-prioritisation of rehabilitation services. Further restrictions on access to health services and rehabilitation decreased an individual’s functional ability and exacerbated pre-existing conditions.” (May, African Journal of Disability)
Should disability-inclusive health be a priority in low-income countries? This paper proposed four complementary arguments why it is important to focus on people with disabilities. They include a “a growing rationale that disability-inclusive health systems will work better for all“ and “that they will create cost savings“. (Mar, Global Health Action)
"Unlike most fellow children with deafblindness, I was lucky enough to have an educated, working and caring father who supported me in my education. By the time he died, when I was doing my junior secondary school, he had built a foundation for my upbringing. My disability nevertheless haunted him. I would hear my parents whisper their helplessness and despair when I lost a great deal of my hearing and sight at the age of 10 and 15 respectively. It was a miracle to them that I continued to pass at school despite my deteriorating senses of sight and hearing. This is what encouraged them to keep me in school. They concentrated on enhancing my ability, rather than limiting me because of my disability. " (Feb, Thought Leader)
Include PWDs in politics, governance, govt urged (Feb, News Day)